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ENFA European Network of Fibromyalgia Associations ivzw

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Presentation on theme: "ENFA European Network of Fibromyalgia Associations ivzw"— Presentation transcript:

1 ENFA European Network of Fibromyalgia Associations ivzw
Overview of ENFA from the start till now.

2 ENFA European Network of Fibromyalgia Associations ivzw
First meetings. Germany, the Netherlands 2002 2003

3 ENFA European Network of Fibromyalgia Associations ivzw
September 2004 London ENFA official started and supported by United Kingdom, Scotland, The Netherlands, Switzerland, Denmark, Norway and France.

4 ENFA European Network of Fibromyalgia Associations ivzw
member countries at time (2008) include: UK Netherlands France Spain Germany Sweden Denmark Belgium Israel Italy Portugal

5 ENFA European Network of Fibromyalgia Associations ivzw
Fibromyalgia Global Impact Survey 2008 Presentation in the European parliament A survey sponsored by Pfizer executed by Harris Interactive

6 ENFA European Network of Fibromyalgia Associations ivzw
Written declaration

7 ENFA European Network of Fibromyalgia Associations ivzw
SIGN NOW Petition for a European recognition of fibromyalgia disease Fibromyalgia has been recognized by the WHO as a disease since 1992, as mentioned in the list ICO-10, M-79-7, even though it is still questioned by a number of medical professionals and some health authorities. Fibromyalgia is an invisible condition which is characterized by chronic pain and many symptoms, like morning myo-acampsia (morning stiffness), sleep disorder, a general tiredness, and fatigability of muscles. In Europe, 12 million people are affected! The reality of this situation, which affects all the European countries, is that the right of people affected by a chronic disease to have a good quality of life is being ignored. It is therefore called on the medical community, national and European policy makers: 1. To fight against the skepticism around this disease 2. To improve the quality of patients’ lives 3. To put in place an individual and interdisciplinary support programmes which allows the patient to stay economically and socially independent, and further avert any form of isolation 4. To ensure in-depth training of this subject in the mandatory courses of medical experts and medical professionals 5. To support and assist awareness programmes that will facilitate early diagnosis and early treatment, as well as access to care at any time. 6. To allocate the adequate aid for scientific research against this pathology 7. To put in place an EU programme on the exchange of best practices on Fibromyalgia With this petition, I am signing for a European Union in which the rights of 12 million people affected by Fibromyalgia are recognized. AN INVISIBLE CHRONICAL PAIN IS STILL A PAIN SIGN NOW by visiting our website on

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Trapped in pain

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10 ENFA European Network of Fibromyalgia Associations ivzw
DOD’s Awards

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12 ENFA European Network of Fibromyalgia Associations ivzw
SIP 2011

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General assemblies

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EULAR

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Video Poster presentation During PARE meeting 2015

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Monique Fibromyalgie

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Written questions on Fibromyalgia from 2008 About strategy, Research, Recognition, Awareness, Need for treatment / diagnoses, Social and economic exclusion,

18 ENFA European Network of Fibromyalgia Associations ivzw
Thank you for your attention


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