1. Transitioning Spina Bifida Patients from Pediatric Rehabilitation Goals to Adult Rehabilitation Purpose
Samuel R. Rosenfeld, M.D.
CHOC Childrens Hospital
Rancho Los Amigos National Rehabilitation Center
27 June 2016

2. Disclosure Consultant, MediCrea Spine
I have no potential conflicts with this presentation

4. Sacral Myelomengocele 1994
Normal Function
Few Complications
Uniformly do well
The “Lucky” Ones

48. Transitioning to Adulthood
Yearly evaluation with interdisciplinary team
evolution to the “medical home”
Prevention and treatment of pressure sores
Socialization and independence
Education and vocational counselling
Urologic care
Maintain orthotics and equipment

49. Goals for Quality Adult Spina Bifida Care
Seamless transition to adult providers
Ensure quality, value
Ready access to appropriate health care
Define and ensure outcomes
Provide proactive care
Accountability

50. Interdisciplinary Adult Clinics
“Medical Home” to provide comprehensive care
Define and measure performance metrics to assure quality and value
Align community, healthcare providers, employers, and education goals
Technology solutions to develop a “Clinical care Network”