1. AN Introduction

2. Introduction
Registered charity since January Set up for ALL affected by childhood Interstitial Lung Disease (chILD):
Provides emotional and practical support
Financial assistance for practical items of care
Holiday portable oxygen hire
Close links with other International chILD organisations
Contributed to medical research
Working with clinicians and researchers, moving the field of chILD forward
Formed in 2009 by my husband and I when our son was diagnosed with a genetic form of chILD. Over our time we have had to educate ourselves with a lot of the medical termininlogy and found that chILD is very rare and complex. Over our time we have had contact from approx. 90 families – which highlghts how rare it is. And as a charity we consult with families on a regular basis and we have grown out of ’their’ needs rather than what we ‘think’ they need. So as hsown here, this here is what we perform to help support families and other organisations and individuals to help move the field of chILD frward.

3. Small Grants
Our small grant award of up to £250 is designed to help children and their families affected by chILD in a practical way. Example of grant funding can be towards:
portable oxygen saturation monitor
holiday oxygen
a specialist pram or pushchair
If you are interested in applying, please check out our website.

4. Support & Education EMOTIONAL & PRACTICAL
ChILD Community - Facebook Closed Group
One to one or telephone advice
EDUCATIONAL
‘Get up and Go with chILD’ and chILD EU educational booklet
Offers access to search literature
Biennial conferences
Formed in 2009 by my husband and I when our son was diagnosed with a genetic form of chILD. Over our time we have had to educate ourselves with a lot of the medical termininlogy and found that chILD is very rare and complex. Over our time we have had contact from approx. 90 families – which highlghts how rare it is. And as a charity we consult with families on a regular basis and we have grown out of ’their’ needs rather than what we ‘think’ they need. So as hsown here, this here is what we perform to help support families and other organisations and individuals to help move the field of chILD frward.

5. Medical Research
ChILD UK has contributed to the following medical research:
Penn University $100,000 Bike a Million for chILD (Bronchiolitis Obliterans)
UK Family Psychosocial Survey
American Thoracic Society, chILD Foundation US and ChILD Lung Foundation joint research award in NEHI

6. Holiday Oxygen Hire of airline approved portable oxygen concentrator.
Offers up to 4 batteries (times and rates vary)
Annual servicing
Free of charge
This service has literally opened up the world to chILD families!*
*Certain terms and conditions do apply

7. Childhood ILD Patient Organisations
ChILD Lung Foundation – UK
Starke Lunge – Germany
Working together to support research and improve the lives of families affected by chILD
Pequenos Pulmones - Spain
ChILD Foundation - USA
AFPIE – France
ChILD Foundation - Australia

8. ChILD Research and Respiratory Societies
European Respiratory Society
European Lung Foundation
British Thoracic Society
ChILD-EU
British Paediatric Orphan Lung Disease
British Paediatric Respiratory Society

9. How YOU can help
There are many ways you can help chILD UK and what has accomplished so far could not have been without your help. ChILD is rare so there are little funds available to research and support. Please help us how best you can. Here are some ideas on how you can help ChILD:
Fundraise and/or awareness raising events
EasyFundraising – shopping online and giving to chILD
Share your Story
Volunteering
Make a donation or sign up to Regular Giving

10. In Summary
ChILD Lung Foundation is a registered charity that offers different sources of support. These include emotional, practical, financial and educational initiatives.
ChILD is working with a wide range of organisations to help move the field of chILD forward
YOUR help is needed too! Without YOU there is no chILD UK.
THANK YOU!!
Working to improve the lives of families affected by childhood Interstitial Lung Disease (chILD)