1. Please use this template to create presentations utilizing the WVU brand.
Perceptions of Asthma QOL in Child-parent Dyads in two Rural Counties in West Virginia
Susan Pinto, APRN
Susan McCrone, PhD, PMHCNS-BC
Supported by a grant from the Sisters of Saint Joseph Charitable Fund
In Honor and Memory of our late friend and colleague,
Dr. Heidi Putman-Casdorph

2. Objectives
The participant will be able to understand relationships between perceived QOL in child-parent/ guardian dyads living with asthma
The participant will identify strategies to utilize a QOL assessment tool in school settings.
The participant will understand the importance of academic/school partnerships to improve health outcomes in school aged children.

3. Background & Significance
Asthma – one of most common chronic disorders of childhood:
Affects nearly 7 million children under age 181
One of leading causes of missed school days 2
Annual U.S. health care costs $56 billon 3
Stressful symptoms impact QOL for child and parent

4. QOL related to asthma severity
Related to source of information and type of instrument
Recommended use of asthma-specific QOL tool 4
Rural school aged children
Coping frequency, asthma severity & minority status predicted child’s asthma QOL using PAQOL scale 5
Child and parent perception of health related QOL influenced by asthma control 6, 7

5. Poorly controlled asthma symptoms impaired QOL of children and caregivers 6
One study addressed agreement of child parent scores
Mean scores for children lower than parents perception except for older children with severe asthma 8

6. Educational interventions improved parent’s QOL symptom assessment and was associated with child’s asthma management 9
Case management improved child’s perceived QOL in relation to asthma symptom and treatment scores10

7. Methods IRB and Board of Education approval obtained
Child/parent dyads recruited from 2 WV schools in Health Professional Shortage Areas
School nurses (trained as study personnel) sent recruitment letters to children with Asthma Action plans, collected demographics on participants, and administered Peds QL 3.0 TM Asthma Module to children 11

8. Parents completed tool at home and returned them to school
Data analysis with SPSS
Frequencies and descriptive statistics calculated on demographics
Mean scores calculated for each dimension
Correlations calculated between child to child, parent to parent, and parent to child dimensions on the Peds QLTM 3.0 Asthma module

9. Instrument
The Peds QL TM 3.0 Asthma module was used to describe the child’s and parent’s perceptions of problems with four dimensions:
asthma symptoms
asthma treatment
aspects of worry
communication about problems with asthma

10. Four Dimensions
Asthma (11 items) - focused on problems related to asthma symptoms like chest pain or tightness, wheezing, and ability to take deep breaths
Treatment (11 items) - focused on problems with administration, use and side effects of medications
Worry (3 items) - focused on problems related to treatment side effects and effectiveness and worry about asthma in general
Communication (3 items) – focused on problems the child has talking to health care providers about his/her asthma

11. Demographics of Children Participating (N = 49)
Characteristics N
Range %
Age (Years)
Mean SD
9.59
1.31
7-11
N/A
Gender
Male
Female 25 24
51.0
49.0
Race/Ethnicity
White
Black
Biracial 43 1 5
87.8
2.0
10.2
Number of School Days Missed
6.82
5.61
0-26

12. Demographics of Children Participating (N = 49)
Characteristics N
Range %
Comorbidities
Yes No 17 28
N/A
37.8
62.2
Allergies 8 37
17.8
82.2
Lives with
One Parent
Two Parents 12 36
25.0
75.0

13. Results
Pearson’s Correlations (r) Between Asthma Module PedsQL™ 3.0 Dimension Scores
Child
Asthma
Child Treatment
Worry
Communication
Adult
Treatment
------
.663**
.511**
.564**
.162
.665**
.611**
.326*
.535**
.083
.468**
.215
.431**
.473**
.320*
.361*
.464**

14. Results
Higher child mean scores in all dimensions compared to QOL scores in children with asthma in the literature
Parents of males perceived son’s QOL to be higher in asthma and treatment dimension
Strongest relationships between child treatment and child worry dimensions & child asthma and child treatment dimensions
Strong relationships between child asthma & child communication scores, child worry & child communication, and child asthma & child worry

15. Implications
School nurses positioned to serve as educator, case manager and advocate for children in rural settings as they may be only health care provider children see on a regular basis
Permission was received from author of PedsQL™ 3.0 Asthma Module for school nurses to use the tool in school settings 11
Implementing the routine use of an asthma QOL assessment tool that explores child & parent perceptions would provide information to enhance the care and potentially the QOL of children living with asthma.

16. How to access the tool??? Log on to www.proqolid.org
Search for Peds QL 3.0 Asthma Module
Select and click on “Conditions of Use” tab
Scroll to bottom of the page and click “Download”
Complete user agreement
··         ·         

17. Download, continued Click “Next” at the end of each page
Make sure to select option that you intend to use the questionnaire in non-funded academic studies, individual practice only
Follow the next instructions to download the questionnaire (a new screen will appear and you will be able to download the questionnaires by clicking on each link highlighted in orange)

18. TERESA BAYER MOOREHEAD JUDY HUDSON KERI STRAIGHT
SPECIAL THANK YOUS!!!!!!!!!
TERESA BAYER MOOREHEAD
JUDY HUDSON
KERI STRAIGHT

19. Questions ??????
Contact Info-
Susan
Susan McCrone=