1. Start the Conversation
Prostate Cancer
Start the Conversation
Us TOO International
Prostate Cancer Education & Support Network

2. Value of Us TOO to Prostate Cancer Community
Us TOO educational resources and support services help men and their spouses/partners and families make informed decisions about prostate cancer detection, treatment options and related side effects.
Us TOO website (
Inspire online communities
Toll-free Us TOO Prostate Cancer HelpLine ( ); which includes matching callers with similar survivors or caregivers for peer-to-peer conversations
Chapter/support group services & telephone support group
Monthly Hot SHEET newsletter
Frequent ‘News You Can Use’ updates and articles
Educational content – digital and printed
Educational events and presentations
Awareness/fundraising through special events like the Rochester SEA Blue Ribbon Walk, SEA Blue Chicago Walk & Run
walk/run and numerous local events across the country
Advocacy initiatives to impact legislation for prostate cancer research funding

3. What’s a prostate and what does it do?
Gland that’s about the size and shape of a walnut
Located below the bladder and in front of the rectum
Produces a fluid that mixes with sperm

4. Prostate Cancer Stats
Prostate cancer is the most common cancer among men
It’s the second most common cause of death from cancer in men (following lung cancer)
Nearly 30,000 men die every year from prostate cancer
More than 200,000 men are diagnosed every year
More than 2 million men in the U.S. are living with a prostate cancer diagnosis
That number is estimated to climb to 4 million by 2024

5. High Risk Factors Age: 97% are men age 50+ and 60% are men 65+
Race - African American men:
Have the highest incidence of prostate cancer
Are 60 % more likely to develop the disease compared to Caucasian men
And more than twice as likely to die from it
Genetics: Men with a family history of prostate cancer are at higher risk for developing prostate cancer
Veterans: Vietnam & Korean War veterans exposed to Agent Orange (or men exposed to excessive chemicals)

6. Prostate Cancer Diagnosis
Screening for prostate cancer includes:
PSA (prostate specific antigen) blood test
DRE (digital rectal exam)
Biopsy for diagnosis
Confusion over inconsistent messages about the value of PSA testing
USPSTF
Current CMS “Non-Recommended PSA-Based Screening”
Increased diagnosis of advanced disease

7. Gleason Grades Cell formations are graded on a scale of 3 to 5:
Grade 5: cancer cells appear as sheets;
high-grade cancer/aggressive
Grade 4: cancer cells appear poorly differentiated (irregular shapes and combinations)
 Grade 3: cancer cells appear moderately differentiated

8. New 5 Grade Group System
Grade Group 1 (Gleason score ≤ 6) Only individual discrete well-formed glands
Grade Group 2 (Gleason score 3+4=7) Predominantly well-formed with lesser component of poorly-formed glands
Grade Group 3 (Gleason score 4+3=7) Predominantly poorly-formed glands with lesser component of well-formed glands
Grade Group 4 (Gleason score 8) Only poorly-formed/fused glands
Grade Group 5 (Gleason score 9 to 10) Lacks gland formation

9. Prostate Cancer Diagnosis
Rather than any “quick fix” for prostate cancer, there are many treatment options and related side effects that each patient needs to evaluate
Avoid being over-treated or under-treated

10. Prostate Cancer Treatment Options
Active Surveillance
Surgery
Radiation (external or brachytherapy)
Cryotherapy
Hormone Therapy
Chemotherapy
Biotherapy

11. Initial Treatment Common Side Effects Managing Side Effects Surgery
Radiation
Common Side Effects
Erectile Dysfunction
Incontinence

12. Erectile Dysfunction Incontinence Intimacy Issues Pills Injections
Pumps
Implants
Incontinence
Pads
Slings
Artificial Sphincter

13. Prostate Cancer Recap
Lack of prostate cancer awareness & education about the disease/detection
No symptoms until disease is advanced
Confusion over PSA testing per USPSTF guidelines
Once diagnosed, there’s no single “best” treatment
Every treatment has side effects
Misnomer that men don’t die from prostate cancer
If detected early, it can be cured… There IS a cure for cancer – under the right circumstances!

14. Find Prostate Cancer Educational Resources & Support Services at www
Find Prostate Cancer Educational Resources & Support Services at Thank You!