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Dr. Marjory Phillips Sarah Glover Dr. Jen Scully Integra Program, CDI
Improving Wait Times: An Innovative Assessment and Consultation Clinic Model for Children and Youth with Complex Needs Dr. Marjory Phillips Sarah Glover Dr. Jen Scully Integra Program, CDI
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Outline Defining the Waitlist Problem
Nature of the clinical population Systems changes: increased referrals Service structure bottlenecks Waitlist Solution: new Clinic model Change management strategies New service structure Innovative use of Psychology service Outcomes and Lessons Learned
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Learning Objectives To present an innovative model for intake and assessment of children and youth with Neurodevelopmental Disorders and mental health and behaviour issues To share assessment tools, templates and strategies for optimizing efficient use of psychological assessment data and other information to guide clinical formulation and treatment planning To share learnings about implementing systems change across an organization
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Who are our Clients? Children and youth ages 8 to 18 years with a diagnosed Learning Disability and Mental Health Issues (LDMH) On average, clients have been to 3 to 4 mental health providers BEFORE Integra Program Referrals from educators, psychologists (school, private practice), children’s mental health agencies, hospitals
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Defining The Problem: Clients with Complex Needs
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Overlapping Processes for LD & MH
Among Integra’s clinical population of children and youth with LDMH, 2 key processes are common: Emotion Regulation Experiential Avoidance
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Difficulties with Emotion Regulation
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Neurodevelopmental Disorders and Mental Health
Continuum of behaviours in children Green zone -> Yellow zone -> Red zone Wellness -> Stress -> Distress (Mental Illness) Most kids with LDs experience stress At Integra, we also see kids with LDs who have more serious mental health issues
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Integra Clinical Services
We Tailor Evidence-Based Therapy to the Individual’s Style of Learning We Develop, Evaluate and Disseminate New Types of Therapy Therapy is Learning
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Defining The Problem: Increasing Referrals
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Defining The Problem: Intake
Intake Worker Integra Young Warriors Integra Social Competence Group Towhee Child & Family Therapist Integra MMA Psych Consult
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Defining The Problem: Intake
Structure Creates Bottleneck to Service Need to get the Right Service for the Identified Need
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Impact: Longer Wait for Service
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Increasing Numbers on Waitlist
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Increasing Wait Times
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Need for Change Jan 2015 Problem Ident Mar 2015 Triage Model
Jul-Aug 2015 Pilot Sep 2015 Clinic Start May 2015 Clinical Team Clinic Model
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Roles Redefined Intake Worker – Task Analysis: Administrative duties:
Screening intake package, following up with families for missing documents, school boards and agencies. Filing and computer input of information, SIR
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Roles Redefined Intake Worker – Clinical Tasks:
BCFPI (telephone interview, 30 min-1hour) ‘Holding’ families while on the wait list Assigning clients to clinicians
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Roles Redefined Role of Intake worker was removed
BCFPI and Background questionnaire were given as an link once families came to the top of the waiting list. In order to book 1st appointment for service, families needed to complete both questionnaires. Administrative tasks became the responsibility of an Administrative Coordinator
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Roles Redefined Role of Clinical Supervisor was extended to include:
Oversight of the waiting list Supervision of the assessment and consultation clinic (including schedule creation) Assignment of families to clinicians Management of distressed families on the waiting list.
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Assessment Clinic Second Session:
Clinic First Session: Parents/Guardians and child or youth meet with clinician to discuss presenting problems, strengths, service needs Assessment Clinic Second Session: Parents/Guardians and clinician meet with Psychologist to review child/youth’s learning profile; Parents/Guardians and clinician develop a treatment plan Ages 8-18 Parents only Ages 8-18 Ages 9-11 Ages 12-18 Ages 10-18
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Assessment and Consultation Clinic Structure
Pre-clinic steps: Intake questionnaires (parent/guardian and teacher) Psycho-educational assessment report is reviewed– confirms diagnosis of a Learning Disability Parents/guardians offered access to workshops and training Offered access to Triple P Parenting sessions
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Pre-clinic steps continued
Parents/guardians are invited to book Assessment Clinics as their child’s name comes to the top of the waiting list These appointments are offered to families at a time Parents/Guardians are asked to complete a BCFPI on-line as well as a Background Questionnaire prior to booking an appointment
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Assessment Clinics Families book 2, 2 hour appointments
Most appointments are during the day (9:30-11:30am or 1:00-3:00pm) There is one evening clinic per month
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Erica: Information from the file
14 years old, Grade 9 (arts school for drama) Diagnosed Learning Disability (visual-spatial/ ‘nonverbal’) Diagnosed Anxiety Disorder (generalized, social) ADHD (inattentive) Past services: anxiety (CBT), family therapy BCFPI : challenges with regulation, separation from parents, anxiety, mood, some social, family relationships, some school refusal. WISC IV Percentile Verbal Comprehension 66th Visual-Perceptual Reasoning 10th Working Memory 25th Processing Speed
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Clinic: 1st Session (2 hours)
Structure: Family, parents alone, Erica alone Problem Identification (panic attacks at school, fighting with siblings and parents, struggles with school, concerns about self harm, mood) Previous Services (have tried many services) When asked if she knew what an LD was, Erica said ‘it means learning is hard’ Parents describe that they don’t like to use the term learning ‘disability’. They prefer ‘learning difference’ Parents already knew about Integra’s MMA program and are interested Erica says she has a camp she goes to already and that she has friends Erica is a ‘cool’ looking kid Attended a private school for grades 5 – 8 to support learning and social challenges Both parents attend the meeting. They are educated and middle class and have sought out many services and supports for Erica Erica has an older sister who struggles with her mood and anxiety and a younger sister who is a high achiever and in competitive sports Father describes that he has struggled ‘just like Erica’
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2nd appointment (2 hours)
Parents/guardians, clinician, and psychologist (youth do not usually attend this appointment) 1st hour: Consult with Integra’s psychologist 2nd hour: Review of main concerns, formulation, goals and treatment plan
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Psychology consultation
A core component of Integra’s approach to providing treatment for children and youth with LDMH Who? Parents, clinician, psychologist What? Review youth’s profile and prepare summary for parents and for youth’s file Why? Translate technical information into accessible language so parents can understand youth’s strengths and challenges in terms of learning, behaviour, social, and emotional functioning Goal: increase parents’ knowledge and build empathy
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Skills/Ability to Cope Demands of Environment
Behaviour Challenging Behaviours are seen as a lack of skill not will and arise when: “Kids Do Well If They Can” (Ross Greene) Skills/Ability to Cope Demands of Environment 32
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Information processing: way youth thinks,
reasons, problem solves, remembers, etc . e.g., language, visual spatial, memory, processing speed, executive functioning ASD, ADHD, mood, anxiety Temperament, puberty Physiological–health, nutrition, sleep Sensory (over-or under-regulated) Life stressors, trauma Family environment Learned behaviour/patterns Social and cultural factors
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Erica’s strengths Erica learns and remembers (especially meaningful information) best with verbal information/language (i.e., listening and speaking) rather than with visual information (i.e., seeing, visualizing) Visually, Erica does best when she can talk through visual information (i.e., verbal mediation) Academically: oral language, reading, does best with structure and predictability, when supported she is hardworking and persists with challenges, enjoys arts (music and dance) Other strengths/talents: Empathic, friendly, creative, wonderful with younger children and animals, leadership skills, supportive family
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Erica’s challenges Erica struggled to understand visual information/
things she saw like patterns/problems, how things go together, etc. Although Erica is strong verbally, she can struggle to organize and retrieve language (impact of anxiety/perfectionism, processing speed/working memory, executive functioning?) Processing speed: Erica took longer to work with visual information using a paper and pencil. Her parents report that she is also slower to take in, think about, and express herself *noted to be easily overwhelmed *other reasons why may be slow? (e.g., anxiety, perfectionism, OCD?)
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Erica’s challenges continued
Working memory Executive functioning: initiation, planning and organization, monitoring performance and behavior, shifting (‘rigid’) Academically: math, written expression, attention/focus, anxiety about school work and social relationships, hard on herself with perceived challenges and when makes errors, can be resistant to tackling ‘hard stuff’, easily overwhelmed Emotional: regulation (e.g., 0 to 10 quickly), anxiety, fears Social: relationships with family, peers (i.e., misreads, rigid/ inflexible, overreacts, etc.) Behavior: argumentative, blames others, avoidance Sensory: smells, taste, touch “Teen hormones”
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Here’s one way to think about it …
} Other Processes Executive Functioning 37 37
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2nd appointment – 2nd hour
LD is now at the forefront of everyone’s mind Main concerns, events, feelings and coping are reviewed Formulation is co-created with family Goals are created Integra services are chosen that best address the goals created. Goals and treatment plan are written, signed and copied
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How well are these working?
Events Issues Feelings Coping How well are these working? Individual Characteristics Family Characteristics
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Sister left for university this fall Issues
Events School refusal Grade 4 Sister left for university this fall Issues Struggles with emotion regulation Not completing school work (last minute) Conflict at home between parents and Erica Conflict between Erica and younger sister Social challenges Feelings Frustration Worry Overwhelmed Stress Shame Embarrassed Parents: frustration Coping ‘holds it together’ at school At home: Meltdowns Cries Yells Avoidance Rules about school items Procrastination ‘takes out’ on sister Yell Avoid Seek supports How well are these working? Individual Characteristics Bright Verbally LD in visual spatial Executive Functioning Challenges Anxiety Artistic Creative Family Characteristics Supportive and loving Family history of LD’s and anxiety Older sister struggled with anxiety Younger sister is high achieving, no LD’s.
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Erica: Goals and Treatment plan
Priority Concerns: Panic attacks and anxiety, meltdowns at home, yelling and conflict between family members Goals: 1) Increase Erica’s ability to regulate and cope with her strong emotions, especially anxiety and frustration 2) Increase parents ability to support Erica with her strong emotions 3) Increase Erica and her parents’ understanding of her strengths and challenges
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Treatment Plan Individual Therapy: CBT and DBT informed therapy for increasing emotion regulation Integra Mindfulness Martial Arts: for emotion regulation Family Therapy to address Erica’s emotion regulation and family dynamics Psychoeducation for Erica and her parents re: Erica’s Learning Disability
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Treatment plan Erica is placed on Internal Waiting Lists for:
-Therapy Stream (Family, Individual, Psychoeducation) -Integra MMA Parents agree to and sign treatment plan. They take a copy home.
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Outcomes Anticipated Outcomes: Waitlist Smaller
Wait Times for initial service Shorter Increased Numbers of Clients for Group Programs
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Wait List Size
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Wait Times for Service
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Increase in # New Clients
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Increased # Clients Served
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Efficient Use of Specialized Consultation
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Unexpected Positive Outcomes
Group Programs have a steady stream of participants (no ebbs and flows). Clients are taken off the wait list at a consistent rate (min 12 per month) Clients are streamlined into programs more quickly Clinicians have less ‘case management’ of clients who are not engaged in therapy
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Unexpected Positive Outcomes
Clients are assigned with more consideration to Clinicians re: goals, availability Therapy stream is often shorter and more focused Improved compliance with timelines for initial documentation
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Positive Experience Clients report the system is clear, predictable and provides an innovative and useful service at the beginning (Psych consult) Clinicians like the daytime hours, manageable rate of service hours, relatively easy documentation requirements
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Lessons Learned Challenges:
Overlap of old/new system (Psychology time) Need for communication, ‘ownership’ of case management for program only clients Change management worked well with: Transparent Communication Team Problem Solving Involvement of Admin staff
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For More Information Dr. Marjory Phillips, C.Psych Director, Integra Program Sarah Glover, MSc Clinical Supervisor, Integra Program Dr. Jenifer Scully, C.Psych Psychologist, Integra Program
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