1. From peer support to participatory methods in diabetes: how can our research make a real difference in Newham? Dr Sarah Finer Senior Lecturer, Barts and the London School of Medicine and Dentistry, QMUL Honorary Consultant in Diabetes, Newham University Hospital, Barts Health NHS Trust

2. Participatory research – general principles 1.Has the potential to answer complex questions relating to real world rather than trial contexts 2.Turns research into something that is done with people, not on or to people 3.Could have lasting impact on health through collaboration, active participation and community mobilisation Participation Individuals, families, communities, society, health and social care Research Knowledge, advancement, mobilisation Action Experience, opinion, beliefs, behaviour

3. What can participatory research bring to diabetes? 1.Has the potential to answer complex questions relating to real world rather than trial contexts 2.Turns research into something that is done with people, not on or to people 3.Could have lasting impact on health through collaboration, active participation and community mobilisation

4. What can participatory research bring to diabetes? How do we prevent, or improve the lives of people with type 2 diabetes in Newham? 1.Has the potential to answer complex questions relating to real world rather than trial contexts 2.Turns research into something that is done with people, not on or to people 3.Could have lasting impact on health through collaboration, active participation and community mobilisation

5. What can participatory research bring to diabetes? Active participation, self-management, lived experience, empowerment How do we prevent, or improve the lives of people with type 2 diabetes in Newham? 1.Has the potential to answer complex questions relating to real world rather than trial contexts 2.Turns research into something that is done with people, not on or to people 3.Could have lasting impact on health through collaboration, active participation and community mobilisation

6. What can participatory research bring to diabetes? Active participation, self-management, lived experience, empowerment How do we prevent, or improve the lives of people with type 2 diabetes in Newham? Community-level interventions, socio-culturally congruent, broad scope, less medicalisation 1.Has the potential to answer complex questions relating to real world rather than trial contexts 2.Turns research into something that is done with people, not on or to people 3.Could have lasting impact on health through collaboration, active participation and community mobilisation

7. Together study: Can group clinics offer a better way to meet the complex health and social care needs of young adults with diabetes in an ethnically diverse, socioeconomically deprived population? NIHR Health Services and Delivery Research (£480,000, funded over 3 years) Co-leads: Sarah Finer (QMUL) and Dougal Hargreaves (UCL) Co-investigators: Association for Young People’s Health Prof Trish Greehalgh (University of Oxford) Prof Martin Marshall (UCL) Prof Anita Patel (QMUL) Dr Shanti Vijayaraghavan, Desirée Campbell-Richards (Barts Health)

8. Together study: Can group clinics offer a better way to meet the complex health and social care needs of young adults with diabetes in an ethnically diverse, socioeconomically deprived population? WorkstreamOperational objective 1Evidence synthesis and scoping To perform a scoping exercise and realist review of group clinics and their use in diabetes care. 2Co-design of a group clinic-based care model To use experience-based co-design to design a group clinic-based care model that meets the complex needs of young adults with diabetes within their socio- cultural context 3Implementation of the group clinic-based care model.Implement the co-designed group clinic-based new care model 4Evaluation of the group clinic-based care model To conduct a comparative evaluation of the model against standard existing care to elucidate patient and provider perceptions and mechanisms of action. To analyse the potential for group clinics to improve clinical and service-level outcomes, patient engagement and/or reduce care costs, in order to inform the design of definitive future studies (workstream 4) 5Dissemination To disseminate the outcome(s) of our scoping and systematic review, the co- designed new care model and its evaluation to service users and relevant stakeholders and generalise our findings to a wider context

9. Dialog-Diabetes: can a patient-focused communication tool using solution-focused therapy help people living with type 2 diabetes with care planning and self-management? NIHR RfPB grant, in development Uses an evidence-based tool developed for chronic psychiatric care Structured communication to help promote self-care and shared decision-making in consultations Applies solution-focused therapy to promote self-change Technology-supported Planned co-creation with stakeholders to adapt the tool for use in type 2 diabetes care With Prof Stefan Priebe and Dr Victoria Bird (Centre for Community and Social Psychiatry, QMUL), and ?Newham CCG

10. Cooking skills and diabetes prevention: Can a cooking skills intervention during and after gestational diabetes reduce the chances of type 2 diabetes in a woman and her family? NIHR Public Health Research programme grant, in development Cooking skills interventions have been shown to bring about healthy behaviour change and could have a beneficial impact on obesity and type 2 diabetes. Family-delivered intervention with potential to offer more than an individualised intervention Mechanisms of action: enhanced cooking skills and self-efficacy, active participation and peer support Proposed randomised controlled trial with strong emphasis on co-design With Prof Martin White (University of Cambridge), Carlos Montes (Food Academy), and ?Newham CCG

11. Thank you