1. Project HealthDesign CONNECTING HEALTH IN EVERY-DAY LIVING TO THE CARESTREAM Patricia Flatley Brennan, RN, PhD, FAAN University of Wisconsin – Madison School of Nursing

2. We need to go from this… Project HealthDesign: Mission

3. To this! Project HealthDesign: Mission

4. Project HealthDesign $9.5 Million National Program Created in 2006 Funded by the Robert Wood Johnson Foundation – Through its Pioneer Portfolio National Program Office: University of Wisconsin - Madison School of Nursing Project HealthDesign: About the Project

5. Collecting ‘observations of daily living’ may be the most important feature of PHRs Mood, sleep, diet, exercise, and adherence to medications, etc. Selected and reported by patients Rarely collected in the clinical setting Project HealthDesign: What We’ve Learned

6. People don’t live from clinical episode to clinical episode… Project HealthDesign: What We’ve Learned they manage their health every day

7. Testing whether and how ODLs can be collected interpreted and acted upon by patients and clinicians Project HealthDesign: What We’re Doing Now

8. Five grantee teams Regulatory & Assurance Core Policy & Communications Core Technical Core Design Consultancy Project HealthDesign: What We’re Doing Now

9. Working with target populations to: – Identify, capture & store ODLs – Analyze & interpret the ODLs data – Provide feedback to patients – Integrate ODLs into the clinical workflow Project HealthDesign: Current Grantee Teams

10. Using innovative technology Mobile devices Like smartphones & iPods Wireless sensors & bio-monitors to observe routine tasks Interfaces Interpret & display data to different audiences – people & professionals Project HealthDesign: Current Grantee Teams

11. Capitalizing on Data Integrators Project HealthDesign Common Platform, Microsoft HealthVault, GoogleHealth, The Carrot Accelerates development Increases interoperability Improves security Can support a variety of personal health application tools Reduces implementation time Project HealthDesign: Current Grantee Teams

12. Carnegie Mellon University Seniors with arthritis and at risk of cognitive decline RTI International & Virginia Commonwealth University Patients with asthma and depression or anxiety San Francisco State University Low-income teens who are managing obesity and depression University of California, Berkeley Adults with Crohn’s Disease University of California, Irvine & Charles Drew University Pre-term, low-birth-weight infants and their caregivers Project HealthDesign: Current Grantee Teams

13. Users’ ethical, legal, and social concerns about sharing PHR information are real, but surmountable Top three concerns: Control over access to information Managing privacy rights Shifting shared decision-making to the patient Project HealthDesign: What We’ve Learned

14. Watch Us As We Work www.projecthealthdesign.org On Twitter: @PrjHealthDesign