Leading Diversity Disability Etiquette People First Language John Fuller, Ed.D. Department of Veterans Affairs Office of Diversity and Inclusion

What is Person First Language? Puts the person before the disability, and describes what a person has, not who a person is. Source: A Few Words about Person First Language, Kathy Snow, 2008

Words Make A Difference The difference between the right word and the almost right word is the difference between lightning and the lightning bug. Mark Twain

Interacting Top 5 Things to Consider Ask before you help People desire to be independent and treated with respect Be sensitive about physical contact People depend on their arms for balance, consider equipment part of their personal space Think before you speak Speak directly to the person Don’t make assumptions People are the best judge of what they can or cannot do Respond graciously to requests An accommodation is not a complaint

Common Courtesies Personal Questions – Disability relevance Presume competence Patience Offering Assistance Meetings & Events Courtesy of the Tennessee Disability Coalition www.tndisability.org 1. Personal Questions – Avoid asking personal questions about someone’s disability. If you must ask, be sensitive and show respect. Do not probe if the person declines to discuss it. 2. Patience – It may take extra time for a person with a disability to do or say something. 3. Offering Assistance – Be polite and friendly when offering assistance and wait until your offer is accepted. Listen or ask for specific instructions. 4. Meetings & Events – Create an environment that is welcoming to everyone. Anticipate specific accommodations that a person with a disability or group might need and contact them for information on how to best meet their needs.

Meeting a Person with a Disability A handshake is NOT a standard greeting for everyone. A smile along with a spoken greeting is always appropriate. Speak directly to the person with a disability Don’t mention the person’s disability Treat adults as adults Don’t patronize with gratuitous but well meaning praise, i.e., courageous, brave, special, superhuman, overcoming, etc. 1. Disability relevance – Do not refer to a person’s disability unless it is relevant to a situation or discussion. 2. Disability vs. handicap – The use of the word “handicap” is considered offensive, and the preferred term is “disability.” 3. People first language – Say “person with a disability” rather than a “disabled person.” 4. Referencing groups – Avoid referring to a group of individuals as the disabled, quadriplegics, or the retarded. Instead, use references such as “persons with a disability,” “persons with quadriplegia,” and “persons with an intellectual disability.” An exception involves people who are deaf and prefer the phrase “The Deaf.” 5. Negative and sensational descriptions – Do not say “suffers from,” “a victim of,” “afflicted with,” or “crippled.” Never say “invalid.” These portrayals elicit unwanted sympathy, or worse, pity toward individuals with disabilities. 6. Gratuitous, but well-meaning praise – Don’t portray people with disabilities as overly courageous, brave, special, or superhuman because they have “overcome” a disability. Doing so implies that it is unusual for people with disabilities to have talents, skills, and the ability to contribute in society. 7. Wheelchairs and adaptive technology – Never say “wheelchair-bound” or “confined to a wheelchair.” People use mobility or adaptive equipment as tools of greater independence. 8. Presume competence – Never assume that a person who looks or speaks differently has a cognitive disability.

Meeting a Person with a Disability Be patient and give your undivided attention, especially with someone who speaks slowly or with great effort. Never pretend to understand what a person is saying. It is okay to use common expressions like “see you soon” or “I’d better be running along.” Relax. We all make mistakes. Offer an apology if you forget some courtesy. Keep a sense of humor and a willingness to communicate.

Communicating with People with Disabilities Say Person with a disability Person with a physical disability Person who is blind Person who is hard of hearing or Deaf Person who communicates differently Person with a psychiatric disability Uses a wheelchair Don’t Say Disabled person Avoid referencing groups The blind Negative or sensational descriptions, i.e., suffers from, afflicted with, a victim of, etc. Nuts, crazy, mental case Wheelchair bound Handout will give further examples which we can go over now for more clarity. People first language – Say “person with a disability” rather than a “disabled person.” 4. Referencing groups – Avoid referring to a group of individuals as the disabled, quadriplegics, or the retarded. Instead, use references such as “persons with a disability,” “persons with quadriplegia,” and “persons with an intellectual disability.” An exception involves people who are deaf and prefer the phrase “The Deaf.” 5. Negative and sensational descriptions – Do not say “suffers from,” “a victim of,” “afflicted with,” “invalid” or “crippled.” 6. Gratuitous, but well-meaning praise – Don’t portray people with disabilities as overly courageous, brave, special, or superhuman because they have “overcome” a disability. Doing so implies that it is unusual for people with disabilities to have talents, skills, and the ability to contribute in society. 7. Wheelchairs and adaptive technology – Never say “wheelchair-bound” or “confined to a wheelchair.” People use mobility or adaptive equipment as tools of greater independence. 8. Presume competence – Never assume that a person who looks or speaks differently has a cognitive disability

Interacting With a Wheelchair User Personal space – Do not push, lean on, or hold onto a person’s wheelchair unless the person asks you to. Eye-to-Eye – Try to put yourself at eye level when talking Clear a path; know building layout Directions – When giving directions to a person in a wheelchair, consider distance, weather conditions, and physical obstacles (curbs, stairs, steep hills, etc.). The wheelchair is part of his or her personal space. Rearrange furniture or objects to accommodate a wheelchair before the person arrives. If asked, know where someone can find accessible restrooms, telephones, and water fountains in the building.

Person Who is Blind or a Disability Affecting Vision Greetings – Identify yourself and introduce others Departing – Don’t leave the person without excusing yourself first. Guiding – When asked to guide someone, never push or pull the person. Offer your arm and allow him or her to reach for you, then walk slightly ahead. Point out doors, stairs, and curbs as you approach them. The landscape – As you guide a person into a room, describe the layout, the location of furniture, and note who else is nearby. Guide dogs – Don’t pet or distract a guide dog. Greetings – When meeting the person, identify yourself and introduce others who may be present. 2. Departing – Don’t leave the person without excusing yourself first. 3. Guiding – When asked to guide someone, never push or pull the person. Offer your arm and allow him or her to reach for you, then walk slightly ahead. Point out doors, stairs, and curbs as you approach them. 4. The landscape – As you guide a person into a room, describe the layout, the location of furniture, and note who else is nearby. 5. Details matter – Be specific when describing the location of objects. (Example: “There is a chair three feet from you at eleven o’clock.”) 6. Guide dogs – Don’t pet or distract a guide dog. The dog is responsible for its owner’s safety and is always working. It is not a pet.

Service Animals It takes all kinds – Service animals come in all shapes and sizes. Detect seizures, enhance therapies, calming Engaging animal – A service animal is a physical extension of a person with a disability and is there to work. In addition to the traditional guide dog, a variety of dogs and other service animals may detect seizures before they occur, enhance therapies for children with autism, provide a calming presence for adults, or assist with a wide range of daily living activities. Canine Partners for Life http://k94life.org/programs/servicedog/ It may be tempting to pet or call for a service animal’s attention. However, for the safety and well-being of the team ask permission from the service animal’s owner first.

ADA Guidance Service & Therapy Animals Service animals are defined as dogs that are individually trained to do work or perform tasks for people with disabilities. Individual states may expand categories The work or task a dog has been trained to provide must be directly related to the person’s disability. Dogs whose sole function is to provide comfort or emotional support do not qualify as service animals. Service animals may be extended by respective states to include more. The one exception to the ADA law are miniature horses which, under restrictive circumstances may be allowed by businesses.

Communicating with People who are Deaf or Heard of Hearing Make direct eye contact and use natural facial expressions and gestures Tap shoulder or arm to gain attention Interpreters should not be included in the conversation Explain if there is an interruption Source: Interaction & Etiquette Tips, United Cerebral Palsy (National)

Someone Who is Deaf or Uses an Assisted Hearing Device Let the person take the lead in establishing the communication mode. Talk directly to the person even when a sign language interpreter is present and in your normal voice. If the person lip-reads, face him or her directly, speak clearly and with a moderate pace. With some, it may help to simplify your sentences.

Assistive Technology Deaf/Hard of Hearing Interpreting services Assistive listening devices Personal amplification devices TTY phones Signaling devices Captioning services Smart Phones

People with Cognitive Disabilities Assume their life experiences are similar to other adults and speak with them from that perspective. Allow the person time to respond, ask questions and clarify your comments. Focus on the person as he or she responds to you and pay attention to body language. Repetition. If appropriate, repeat back any messages to confirm mutual understanding. Keep your communication simple. Meeting someone with a cognitive impairment that affects learning, intelligence, or brain function. Veterans have acquired many of these disabilities through battlefield injuries i.e., traumatic brain injuries. Having patience is always a key to communication. Be patient, flexible and supportive

Assistive Technology Cognitive/Communication Disabilities Voice recognition software Word prediction software Screen reader software Cueing/memory aids Text based devices Communication devices Assistive listening devices

Disability Affecting Speech Pay attention, be patient, and wait for the person to complete a word or thought. Do not finish it for the person. Ask the person to repeat what is said if you do not understand. Tell the person what you heard and see if it is close to what he or she is saying. Be prepared for persons who use assistive technology to enhance or augment speech.

Tips to Remember Disability relevance Disability vs. handicap People first language Referencing groups Negative and sensational descriptions Gratuitous, but well-meaning praise Wheelchairs and adaptive technology Presume competence 1. Disability relevance – Do not refer to a person’s disability unless it is relevant to a situation or discussion. 2. Disability vs. handicap – The use of the word “handicap” is considered offensive, and the preferred term is “disability.” Generally, it is only acceptable to use “handicap” when referring to accommodations such as handicap parking, although accessible parking is preferred today. 3. People first language – Say “person with a disability” rather than a “disabled person.” This emphasizes that individuals with disabilities are people first and thus should not be defined by their disability. 4. Referencing groups – Avoid referring to a group of individuals as the disabled, quadriplegics, or the retarded. Instead, use references such as “persons with a disability,” “persons with quadriplegia,” and “persons with an intellectual disability.” An exception involves people who are deaf and prefer the phrase “The Deaf.” 5. Negative and sensational descriptions – Do not say “suffers from,” “a victim of,” “afflicted with,” or “crippled.” Never say “invalid.” These portrayals elicit unwanted sympathy, or worse, pity toward individuals with disabilities. 6. Gratuitous, but well-meaning praise – Don’t portray people with disabilities as overly courageous, brave, special, or superhuman because they have “overcome” a disability. Doing so implies that it is unusual for people with disabilities to have talents, skills, and the ability to contribute in society. 7. Wheelchairs and adaptive technology – Never say “wheelchair-bound” or “confined to a wheelchair.” People use mobility or adaptive equipment as tools of greater independence. 8. Presume competence – Never assume that a person who looks or speaks differently has a cognitive disability.

The most important thing a person can do is to remember to relax in their conversation. Too many times, people get so nervous that they say or do things we have discussed without thinking it through. When you are relaxed, the person you are talking to will be as well most of the time.

Disability Etiquette People First Language Leading Diversity Disability Etiquette People First Language John Fuller, Ed.D. Department of Veterans Affairs Office of Diversity and Inclusion John.Fuller2@va.gov 1-202-491-5969

Resources Great quick glance online site: http://askearn.org/refdesk/Inclusive_Workplaces/Etiquette Disability Etiquette Tips/Interacting with People with Disabilities http://www.unitedspinal.org/documents/DownLoad/DisabilityEtiquette.pdf#search='Disability%20Etiquette Disability Etiquette Handbook http://www.sanantonio.gov/planning/disability_handbook/disability_handbook.asp?res=1024&ver=true Communicating with and About People with Disabilities http://www.dol.gov/odep/pubs/fact/comucate.htm The Ten Commandments http://www.rehab.cahwnet.gov/workplace/comand10.htm