A Proposal to Modify the NCHS Data Release Policy – A Response to the States A Proposal to Modify the NCHS Data Release Policy – A Response to the States.

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Presentation transcript:

A Proposal to Modify the NCHS Data Release Policy – A Response to the States A Proposal to Modify the NCHS Data Release Policy – A Response to the States Centers for Disease Control and Prevention National Center for Health Statistics

Revised policy provides 4 types of electronic (CD) data releases: Individual-level NATIONAL public-use data file with no geographic detail (no State, county, or city identifiers) or exact dates; Aggregated public-use data file, such as Compressed Mortality File on CDC’s WONDER internet system; Customized individual-level file for Federal agencies with approved research proposals; Customized individual-level file for non- Federal researchers with approved research proposals.

Individual-level public-use data file National file only—no State, county, or city identifiers; Individual-level data; Include all items and detail in the current PUF except for geography; Available for births, deaths, fetal deaths, linked birth/infant death

Aggregated Public Use Death File CDC’s interactive web-system WONDER extracts data from NCHS’s Compressed Mortality File (CMF), including death files since 1979; WONDER provides aggregate counts/rates for all counties, but suppresses cells <=5 for single-year data and county population < 100,000; WONDER Variables: age in categories, race (white, black, other), sex, underlying cause of death (all causes according to ICD in effect for a given year); Propose release of aggregated (CMF) file on CD- ROM for counties >= 100,000; Other future options: change 10-year age intervals to 5 year intervals; add race and Hispanic detail.

Aggregated Public-Use Birth File Available now on CDC’s interactive internet system WONDER, using individual-level natality files; WONDER provides aggregate data for counties >= 100,000 population; Categorized variables: mother’s age and education; birthweight, gestation, month prenatal care began; Other variables: mother’s race and Hispanic origin, sex of child, and plurality; Propose release of aggregated birth file on CD-ROM for counties >= 100,000; Future options: Add all counties in WONDER with small cell suppression. Add mother’s marital status, number of prenatal visits, adequacy of prenatal care index, live birth order (to 6+), and cesarean delivery.

Aggregated Public-Use Linked Birth/Infant Death File Available now on CDC’s interactive internet system WONDER, using period files for ; WONDER provides aggregate data for counties >= 250,000 population; Categorized variables: mother’s age and education; birthweight, gestation, month prenatal care began, child’s age at death; Other variables: mother’s race and Hispanic origin, marital status; live birth order (to 6+); Propose release of aggregated linked birth/infant death file on CD-ROM for counties >= 250,000; Future option: Add all counties in WONDER with suppression of small cells. Add number of prenatal visits, adequacy of prenatal care index, and cesarean delivery.

Custom individual-level files for Federal agencies Agency provides proposal and signed Data User Agreement; Proposal review by NCHS committee, including NAPHSIS representative with veto power; Customized individual-level file for specific project—may include exact dates and/or all State, county, and city codes, as needed and approved; Return files to NCHS within one year unless renewal is requested and approved.

Custom individual-level files for non-federal researchers Researcher provides proposal and signed Data User Agreement; Proposal review by NCHS committee, including NAPHSIS representative with veto power; Customized individual-level file for specific project—may include all State, county, and city codes, as needed and approved, but not exact dates; Return files to NCHS within one year unless renewal is requested and approved.

NCHS Research Data Center Researchers whose requests for individual- level files are not approved, or who request exact dates, may use facilities of NCHS’s Research Data Center (RDC); RDC allows access for a fee to detailed data in a secure environment with stand-alone computer at NCHS that controls confidentiality; output is inspected and no confidential data leave NCHS premises.