Theme II, Breakout Session 3

 Rebecca Burkholder, National Consumers League  Barbara Warren, National Coalition for Lesbian, Gay, Bisexual and Transgender Health  Terrie Cowley, The TMJ Association

 G-I-N PUBLIC Toolkit: Patient and Public Involvement in Guidelines n.net/activities/gin-public/toolkithttp:// n.net/activities/gin-public/toolkit  Serving on Clinical Practice Guidelines Video, by Richard Rosenfeld for Consumers United for Evidence-Based Healthcare (CUE) practice-guideline-panel practice-guideline-panel

 Consultation ◦ Collecting information from the public to inform guideline development  Participation ◦ Participation of patients and consumers in guideline development groups  Communication ◦ Dissemination and implementation of guidelines; plain language versions of guidelines; patient decision aids

 Goal ◦ Foster mutual learning between health professionals and consumers & patients ◦ Facilitate compromise and consensus on decisions about guidelines

 Recruitment ◦ Nomination or open  Support ◦ Training ◦ Practical ◦ Informal ◦ Financial  Out of pocket  Compensation for time and effort  Moderating – the importance of the Chair ◦ Structure of meetings – calls, in-person ◦ Encouraging broad participation  After Development ◦ Recognition ◦ Plain language version

 How to foster consumer and patient involvement? (How to make is easy?)  What are the do’s and don’ts for involving consumers?  Other?

 Check out the resources: ◦ G-I-N PUBLIC Toolkit: Patient and Public Involvement in Guidelines n.net/activities/gin-public/toolkithttp:// n.net/activities/gin-public/toolkit ◦ Serving on Clinical Practice Guidelines Video, by Richard Rosenfeld for Consumers United for Evidence-Based Healthcare (CUE) guideline-panel guideline-panel 