NJ Statewide Family Centered HIV Care Network Funded by Part D of the Ryan White Care Act through the Health Resources and Services Administration since 1988 Presented by Ellen Dufficy, April 28, 2014

Family Centered Care Service Part D - Goals:  Enhance service delivery to the target population: infants, children, adolescents, women, and their family members  Provide state-of-the-art medical care in conjunction with comprehensive medical case management  Target pregnant women for HIV counseling and testing, and when appropriate, provide subsequent treatment plans to foster healthy birthing outcomes and thus reduce the rate of perinatal transmission  Facilitate access to clinical trials

Family Centered Care Service Continued  Educate clients with the “Prevention for Positives” messages  Maintain consumer involvement in the strategic planning process, and enhance their ability to serve as peer mentors  Maintain a culturally competent environment to promote engagement and maintenance in care for minority clients  Provide all adolescents with a service plan to assure successful transition to adulthood  Engage in activities that continually assess the needs of the clients, measure levels of satisfaction, and evaluate the quality of care

Statewide Locations 1. FXB Center, UMDNJ Newark 2. Newark Beth Israel, Newark 3. Jersey City Medical Center 4. St. Joseph’s Hospital, Paterson 5. Robert Wood Johnson, New Brunswick 6. Jersey Shore University Medical Center, Neptune 7. Cooper University Hospital, Camden Encompasses the entire State

Medical Services Medical Services  HIV specialty care  Nutrition counseling  Hepatitis and TB screening  Dental care  Clinical trials  Inpatient care  Treatment adherence  Immunizations  Co-located mother/child clinics  Ob/Gyn and Prenatal Services  Mental Health

Medical Case Management Services Medical Case Management Services  Coordination of services  Permanency planning  Crisis intervention  Disclosure counseling  Logistical support  Support groups  Family planning  Outreach  Long term maintenance in care

Clients Served in Year 2013  More than 55 Pregnant HIV+ women  More than 1500 women  More than 590 HIV+ perinatally infected individuals  More than 450 HIV+ adolescents

Racial and Ethnic Composition  White, Non-Hispanic8%  Black, Non-Hispanic68%  Hispanic/Latino22%  Asian<1%  More than one race <1% Race/EthnicityPercent

 Rates of vertical transmission have been on a decline since 1993, primarily due to the administration of AZT to pregnant women.  A Standard of Care was implemented in NJ in 2002 with the intent to provide HIV counseling and voluntary rapid or expedited testing of women who present in labor with an unknown serostatus.  A Standard of Care was implemented in NJ to require HIV testing in the first trimester and a repeat HIV testing in the third trimester. Perinatal Transmission in NJ

Part D Network Staff in NJ  Available to provide medical case management and/or medical care to pregnant HIV+ women  Available to provide guidance to other providers on appropriate care and treatment of exposed neonate, including information on ART and breastfeeding.  Provides follow-up care for more than 88% of all exposed neonates born in NJ.

Network Contact Information  Ellen Dufficy, Project Director :  Cooper Hospital, Camden: Susan Burrows-Clark  The FXB Center, Newark: Peter Oates  Jersey City Medical Center: Ext Evelyn Lomax  Jersey Shore Medical Center, Neptune: Carleen Brewer  Newark Beth Israel Hospital: Kristen Ehlers  Robert Wood Johnson, New Brunswick: Roseann Marone  St Joseph’s Hospital, Paterson: Linda Smith