INTRODUCTION TO PEDIATRICS BIOETHICS Guillermo Godoy, MD Professor of Pediatrics and Obstetrics University of Alabama, Tuscaloosa DCH Health System, NICU’s

THE UNIVERSITY OF ALABAMA

AMERICAN FOOTBALL UA STADIUM

“ETHICS” DEFINITION Set of moral principles Set of moral principles

“ETHICS” DEFINITION Set of moral principles Set of moral principles Set of rules governing a particular class of human actions Set of rules governing a particular class of human actions

“ETHICS” DEFINITION Set of moral principles Set of moral principles Set of rules governing a particular class of human actions Set of rules governing a particular class of human actions Branch of Philosophy dealing with values relating to human conduct. Their rightness and wrongness of actions, motives and ends Branch of Philosophy dealing with values relating to human conduct. Their rightness and wrongness of actions, motives and ends

Ethics principles RESPECT OF THE INDIVIDUAL RESPECT OF THE INDIVIDUAL BENEVOLENCE BENEVOLENCE NONMALEFICENCE NONMALEFICENCE JUSTICE JUSTICE

Ethics quandary THE DECISION MAKING PROCESS

ETHICS and THE decision MAKING process in adults Patient Health Care Team

THE PEDIATRIC decision making ETHICAL CONFLICT Parents Health Care Society C H I LD

ETHICS IN PEDIATRICS ethical fields CLINICALCLINICAL

ETHICS IN PEDIATRICS ethical fields CLINICALCLINICAL RESEARCHRESEARCH

ETHICS IN PEDIATRICS ethical fields CLINICALCLINICAL RESEARCHRESEARCH ALLOCATIONALLOCATION

ETHICS IN PEDIATRICS ethical fields CLINICALCLINICAL RESEARCHRESEARCH ALLOCATIONALLOCATION PUBLIC POLICYPUBLIC POLICY

CLINICAL ETHICS Who the decisions affects Who the decisions affects

CLINICAL ETHICS Who the decisions affects Who the decisions affects Who influence these decisions Who influence these decisions

CLINICAL ETHICS Who the decisions affects Who the decisions affects Who influence these decisions Who influence these decisions The Best Interest Standard The Best Interest Standard

CLINICAL ETHICS Who the decisions affects Who the decisions affects Who influence these decisions Who influence these decisions The Best Interest Standard The Best Interest Standard The QUAD model of Ethical questions The QUAD model of Ethical questions

THE “QUAD” FRAMEWORK OF ETHICS QUESTIONs SOLVING DEFINITION UNDERSTANDING ASSESSMENT RECOMMENDATIONS

THE PRINCIPAL OF HUMAN RESEARCH: THE INFORMED CONSENT Utilitarian Utilitarian

THE PRINCIPAL OF HUMAN RESEARCH: THE INFORMED CONSENT Utilitarian Utilitarian Deontological Deontological Contractualisms Contractualisms

THE PRINCIPAL OF HUMAN RESEARCH: THE INFORMED CONSENT Utilitarian Utilitarian Deontological Deontological The risk-benefit equation The risk-benefit equation

THE IRB foundation Who needs the protection Who needs the protection Therapeutic v. non-therapeutic Therapeutic v. non-therapeutic The Duty to Act: The Duty to Act: LOW DISTANT RISK HIGH DISTANT RISK

Allocation of resources Approved v. not Approved Society/LawParentsHealth Care

ETHICS IN PUBLIC POLICY Organ Transplantation for Children: * How are organs allocated? * How are organs allocated? Scores for survival v. sickness Scores for survival v. sickness * Organ transplants and Medical * Organ transplants and Medical Ethics: Ethics: Donor v. Recipient Donor v. Recipient

ETHICS IN PUBLIC POLICY * Orphan Disorders and Orphan Drugs : Resources usage in rare Resources usage in rare disorders: disorders: The Many v. The Few The Many v. The Few * The Social Media Factor * The Social Media Factor