People with a learning disability in Sheffield: population and conditions Richard Parrott, Commissioning Manager, Learning Disabilities, Sheffield City Council John Wolstenholme, Information Manager, Sheffield Health and Social Care NHS Foundation Trust

Strength of the current evidence? Valuing People Now (2007) Data about the increasing demands on learning disability services is not as well researched as for other service areas Valuing People Support Team to develop a better understanding to inform spending decisions in the next Comprehensive Spending Review… … meanwhile, local commissioners expected to develop accurate information on numbers and future changes

Sheffield Case Register Any person satisfying one or more of the following criteria should be included on the Register: People who are assessed as having a severe learning disability and needing a developmental curriculum. Has used or is using a learning disability service on a regular basis. Has a clinical condition which is a recognised cause of learning disability. Has a diagnosis of “Mental Retardation” other than “Mild Mental Retardation”. Requires or is expected to require support from residential, day or community services by reason of learning disability.

Between 1998 and 2008… the total number of people with a learning disability increased 25% from 2465 to 3080

Between 1998 and 2008… the number of 10 to 20 year olds with a learning disability increased by 120% from 313 to 699

Between 1998 and 2008… the number of over 65s with a learning disability increased by 25% from 180 to 225

Between 1998 and 2008… the number of people with a learning disability from BME communities increased by 80% from 187 to 339

Between 2003 and 2008… the number of 10 to 14 year olds increased 38% from 507 to 699

Between 2003 and 2008… the number of adults (over 20) increased by nearly 10% from 1954 to 2126

People with complex needs Definition of ‘severe or complex needs’ based on Case Register ‘Social and Physical Incapacity Ratings’ 1.Non-ambulant 2.At least partly mobile with severe incontinence and severe behaviour problems 3.Severe behaviour problem 4.Severe incontinence 5.No severe problems but only partly mobile 6.Ambulant but mild behaviour and incontinence problems 7.Mild behaviour problem only 8.Mild incontinence problem only 9.Not incapacitated Severe or complex needs Moderate Low

Between 1998 and 2008… the overall number of people with severe or complex needs rose by 17% from 682 to 786 the number of 15 to 19 year olds with severe or complex needs increased by 70% from 85 to 144

Future demand 27% increase in adults over 20 with a learning disability from 2020 in 2007, to 2575 in 2017 (based on age specific mortality data, 2007) 400 people in Sheffield live with family carers over the age of 65 Increase in learning disabled people from BME communities Changing expectations Increase in level and complexity of people’s needs Increase in number of people with ‘profound and multiple learning disability’ (PMLD)

Further information “Changes in demography and demand for services for people with complex needs and profound and multiple learning disabilities” Richard Parrott, John Wolstenholme and Nigel Tilley. Tizard Learning Disability Review, Volume 13, Issue 3, 2008