ض م أ في المغرب PID in Morocco : When an NGO takes a country and a…continent احمد عزيز بوصفيحة Ahmed Aziz Bousfiha. Clinical Immunology.

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Presentation transcript:

ض م أ في المغرب PID in Morocco : When an NGO takes a country and a…continent احمد عزيز بوصفيحة Ahmed Aziz Bousfiha. Clinical Immunology Unit. Department of Pediatric Infectious Diseases. CHU Ibn Rushd. Casablanca. Morocco. Association Hajar Moroccan Society for Immunodeficiencies. African Society for Immunodeficiencies ASID

Objectives Particularities of PID in Morocco How to succeed a Center in a limited resources country ?

Epidemiology PID are unrecognized in Morocco : –PIDs expected in 10 years: 2000 patients 650,000 births per year PID expected per year : 1 / 2000 Births 300 / year –But at 2010 : only 10% diagnosed = 290 HIV infection is less common – : –PIDs: 225 –HIV infections: 150 Consanguinity: 20%

Ibtihal Benhsaein and Fatima Ailal

Particularities of PID in Morocco

The 752delG26 mutation in the RFXANK gene associated with major histocompatibility complex class II deficiency: evidence for a founder effect in the Moroccan population. Naamane H, El Maataoui O, Ailal F, Barakat A, Bennani S, Najib J, Hassar M, Saile R, Bousfiha AA. Eur J Pediatr Apr 23.

Hajar, 15 mois, Consanguinité +, Cas similaires, DICS T-B+ NK – : Déficit en Jak 3 ?

Khaoula, 13 mois, lymphopénie. DICS T- B+ NK+ IL7Rα BMT in Span, 2002 … et celui qui la fait revivre, cest comme sil avait fait revivre lhumanité entière. Le Coran : Le festin, verset 32

Ayoub, SCID T-B-NK + RAG1 1st Baby grafted in Morocco,2010 Thanks to the technical assistance of our Saudis brothers : Saleh and Hamoud. Thanks to Saudi Arabia. Congratulation for Arab cooperation!

Saleh AL Muhsen Hamoud Al Moussa SAOUDI EXPERTS AT CASABLANCA: 2008, 2009, 2010,...

JL Casanova, Parrain and ASID Cofounder. Casablanca 2008

JMF, Dream MackersNew York, 2009

- Recommendations For : - GPs - Students

Functional Classification of the 2007 Update

How to succeed a PID Center in a limited resources country ?

F and R : disponibles Formation et Recherche : non disponibles Soins disponibles Diagnostic et Traitement : non disponibles

F and R : disponibles Morocco: Country with Limited Resources Formation et Recherche : non disponibles Soins disponibles

Diagnostic et Traitement : non disponibles F and R : disponibles Morocco: Country with Limited Resources Hajar Association Formation et Recherche : non disponibles Soins disponibles Morocco : People with illimited Generosity

Diagnostic et Traitement : non disponibles F and R : disponibles Morocco: Country with Limited Resources JL Casanova Formation et Recherche : non disponibles Soins disponibles Parrain with illimited Generosity Morocco : People with illimited Generosity Hajar Association

Diagnostic et Traitement : non disponibles F and R : disponibles Morocco: Country with Limited Resources Hajar JL Casanova Formation et Recherche : non disponibles Soins disponibles Royaume dArabie Saoudite Tunisie Contribution in developping PID in Africa In Arab Region In the World JMFIPOPI France Parrain with illimited Generosity Morocco : People with illimited Generosity

1997 Necker 2000 Hajar Flux Cytometer 2007 IgIV 100% Clin Immunol Unit 1st Allograft 2008 ASID 2009 Benhsaein au KFH 1998 Labo Immu

Honestly, it is not only the dynamism and the organization. Allah helps sincere wishes.