1. Prevention of sudden cardiac death in young adults in the UK ‘Every week in the UK at least 12 apparently fit and healthy young people die suddenly from undetected cardiac abnormalities. The majority of these deaths are preventable. This meeting urges Her Majesty’s Government to put in place a national strategy for the prevention of young sudden cardiac death to ensure that all young people between the ages of 14 and 35 have access to heart screening by appropriately qualified professionals to identify any potentially life-threatening conditions.’

2. What is Young Sudden Cardiac Death? YSCD: ‘death occurring within one hour of the onset of symptoms in a young person without a previously recognised cardiovascular abnormality.’

3. Devastating Impact

4. How YSCD is Different from Cardiac Death in Older Adults The causes of YSCD are fundamentally different to those associated with cardiac death in older adults Myocardial infarction (heart attack) and coronary artery disease are two of the principal causes of cardiac death in adults. Those conditions: show symptoms, are often linked to lifestyle, can be preventable, and do not always lead to death In contrast, the underlying causes of YSCD (such as an arrhythmia)often show no symptoms, are due almost entirely to an inherited abnormality, and do invariably lead to death

5. YSCD & Athletes Medics saving the life of Fabrice Muamba after he collapsed on the field

6. National Prevention & Treatment Strategy There is no strategy in place for diagnosing, treating, or researching YSCD Grieving families get no support or guidance The campaigning group Cardiac Risk in the Young (CRY) is calling for the implementation of a national strategy of screening, support, awareness, and research

7. A National Screening Programme Campaigners argue that a large proportion of these deaths in young people could be avoided if they had access to heart screening technologies to detect these abnormalities Screening young and seemingly healthy people will pick up minor abnormalities in around 1% of the population and serious, potentially life-threatening abnormalities in.3% (almost one in three hundred people)

8. Doubts Over Screening Critics argue that the efficacy and feasibility of a screening programme to detect the risk of YSCD is in doubt Screening has a 20% false positive rate Screening is very cost ineffective The American College of Cardiology concluded that conducting electrocardiographic screening of all young competitive athletes in the US could cost up to $60 billion over a 20 year period and save 4,813 lives – making the cost per life saved between 10 and 14 million dollars

9. The National Screening Committee ‘There are a number of uncertainties over the test, the conditions that cause SCD, and the overall benefit of identifying those at risk when weighed against potential harms There is very little research into the reliability of the tests for identifying those at risk of SCD There is no agreed treatment or care pathway for supporting those who have been identified at risk of SCD.’

10. Arguments for the Resolution Many of the barriers that the National Screening Committee have identified can be overcome; now is the time to act before the 2018/2019 review of screening policies to build the robust evidence base and treatment and care pathway that the Committee identifies as necessary These tragic deaths are preventable; is doing nothing really an option? Other nations like Italy and Israel have instituted screening programmes. Even though the United States does not have mandatory screening, it does have a system in place for detecting at risk individuals involved in athletics. The UK must explore options along these lines to prevent the needless deaths of young people.

11. Arguments against the Resolution The National Screening Committee has just recommended against a national screening programme to detect SCD in July 2015. This resolution directly contravenes current government policy that will not change until the 2018/2019 review Although these deaths are tragic and senseless, they are miniscule in comparison to those who perish from other heart diseases. Might the WI have a greater impact campaigning on wider heart health issues?

12. Groups To Contact for Further Information NFWI Public Affairs Tel: 020 7371 9300 ext. 238 Email: publicaffairs@nfwi.org.ukpublicaffairs@nfwi.org.uk British Heart Foundation Tel: 020 7554 0000 Email: supporterservices@bhf.org.uksupporterservices@bhf.org.uk Web: www.bhf.org.uk/www.bhf.org.uk/ UK National Screening Committee Secretariat Tel: 020 3682 0890 Web: http://legacy.screening.nhs.uk/email_us_form.phphttp://legacy.screening.nhs.uk/email_us_form.php