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Structured Data Capture (SDC) The Use of Structured Data Capture for Clinical Research November 2015 S&I Initiative Coordinator: Ed Hammond HHS/ONC Sponsor:

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Presentation on theme: "Structured Data Capture (SDC) The Use of Structured Data Capture for Clinical Research November 2015 S&I Initiative Coordinator: Ed Hammond HHS/ONC Sponsor:"— Presentation transcript:

1 Structured Data Capture (SDC) The Use of Structured Data Capture for Clinical Research November 2015 S&I Initiative Coordinator: Ed Hammond HHS/ONC Sponsor: Farrah Darbouze

2 SDC FHIR Milestones Kickoff for FHIR SDC Profile – May 2014 Draft for Comment Ballot – September 2014 S&I 1 st SDC FHIR Virtual Connectathon – April 2015 DSTU Ballot – May 2015 S&I 2 nd SDC FHIR Virtual Connectathon – August 2015 DSTU published – September 2015 – http://hl7.org/fhir/sdc/sdc.html http://hl7.org/fhir/sdc/sdc.html Test track in the FHIR Connectathon – October 2015 2

3 Structure Data Capture Use Case

4 CDE Library 4 1 5 Sends requested form/template Fills, stores/transmits structured data Sends request for form/template 3 Converts, populates and displays form Extract, Transform, and Load Data by form/ template Forms Manager Forms Filler Actor Key Structured Data Capture Workflow 2 Form Library External Repository SDC Scope Form/Template Repository Form/Template Repository

5 SDC FHIR Profile Workflow 5 SDC FHIR Actors SDC Data Element Registry SDC Form Designer SDC Form Manager SDC Form Filler SDC Form Receiver

6 Next Steps for the FHIR Profile

7 SDC Profile Alignment 1.Data Element Standard DataElement Resource needs to be aligned with ISO/IEC 11179-3 based SDC Data Element Conceptual Model 2.Form Definition Model SDC form definition schema models are currently being updated. Questionnaire and QuestionnaireResponse resources will need to be aligned with changes to the Schema files 3.Link to HTML/URI FHIR does not currently support redirect to URI or the pass-back of an HTML 7

8 Oct 2015 HL7 WGM HSI WG meeting to discuss SDC Profile Alignment – O&O should be the sponsoring WG, but should coordinate with the Patient Care WG as Questionnaire is the resource most likely to be impacted 8

9 Initiative Coordinator: Dr. Ed Hammond (william.hammond@duke.edu )william.hammond@duke.edu Federal Lead: Farrah Darbouze (farrah.darbouze@hhs.gov)farrah.darbouze@hhs.gov Project Manager: Jenny Brush (jenny.brush@esacinc.com)jenny.brush@esacinc.com Technical and Harmonization Lead: Vijay Shah (vshah@jbsinternational.com)vshah@jbsinternational.com Harmonization Support: Perri Smith (perri.smith@accenturefederal.com )perri.smith@accenturefederal.com DE Subject Matter Expert: Mark Roche (mrochemd@gmail.com)mrochemd@gmail.com FHIR Subject Matter Expert: Lloyd McKenzie (lloyd@lmckenzie.com)lloyd@lmckenzie.com SDC Wiki Page: http://wiki.siframework.org/Structured+Data+Capture+Initiativehttp://wiki.siframework.org/Structured+Data+Capture+Initiative Weekly All-Hands Meeting Info (Thursdays): Time: 3:25pm – 4:30Ppm Eastern URL: https://siframework1.webex.com/https://siframework1.webex.com/ Dial-In Number: 1-650-479-3208 Access Code: 663 397 496 Contact Information

10 Thank you!

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