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History, Eugenics, and Genetics Personal Genetics Education Project (pgEd) Harvard Medical School www.pged.org.

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Presentation on theme: "History, Eugenics, and Genetics Personal Genetics Education Project (pgEd) Harvard Medical School www.pged.org."— Presentation transcript:

1 History, Eugenics, and Genetics Personal Genetics Education Project (pgEd) Harvard Medical School www.pged.org

2 The Beery twins, Noah and Alexis http://the-scientist.com/author/lucy-reading/http://the-scientist.com/author/lucy-reading/ (2011)

3 Oxford Nanopore MinION Genome sequencing technology

4 Fanconi anemia (disorder of DNA repair) Cure: PGD, umbilical cord blood stem cells http://tvnoviny.sk/sekcia/spravy/zahranicne/vo-francuzsku-sa-narodilo-prve-dizajnerske-dieta.html Molly and Adam Nash

5 Schwartz 2011 Jewish News PGD: Preimplantation genetic diagnosis

6 Hudson 2006 Fertility & Sterility Fatal TransplantsAdult illness GenderStrength & Intelligence Men Women Public attitudes regarding the use of PGD

7 Big idea: Improving society and humanity via selective breeding and sterilization. First half of the 20 th century. State and Federal laws addressing issues ranging from immigration to mandatory sterilization Burlington Free Press, January 24, 1925, p. 1. American eugenics movement

8 Photo by Jacob Riis, courtesy of the Museum of the City of New York

9 http://www.eugenicsarchive.org/eugenics/view_image.pl?id=348

10 Georgia State Fair 1924 http://news.wustl.edu/news/Pages/792.aspx “Fitter Family” contests: 1920s – 1940s

11 http://www.eugenicsarchive.org/html/eugenics/static/images/958.html

12 http://www.saponitown.com/eugenics-carrie-buck/eugenics-carrie-buck.htm Carrie Buck

13 http://www.hsl.virginia.edu/historical/eugenics/ “...society can prevent those who are manifestly unfit from continuing their kind... Three generations of imbeciles are enough.” Oliver Wendell Holmes, Jr.

14 “We do not stand alone” http://en.wikipedia.org/wiki/File:Wir_stehen_nicht_allein.jpg

15 Nuremberg Code 4 of the 10 directives for Human Subjects Research 1. The voluntary consent of the human subject is absolutely essential… 2. The experiment should be such as to yield fruitful results for the good of society, … 4. The experiment should be so conducted as to avoid all unnecessary physical and mental suffering and injury. 9. During the course of the experiment the human subject should be at liberty to bring the experiment to an end…

16 http://www.wfae.org/ Pamphlet from the Human Betterment League of North Carolina – 1950

17 http://rt.com/usa/news/north-carolina-eugenics-vote-372/ Los Angeles Times Protests against forced sterilization

18 http://abcnews.go.com Elaine Riddick – sterilized without her knowledge at the age of 14

19

20 Presidential Commission on Bioethical Issues


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