1. From Information to Action: Using an Interactive Website to Access Data from the National Survey of Children’s Health Christina Bethell, Ph.D. The Child and Adolescent Health Measurement Initiative

2. What is the Data Resource Center? A website that delivers: –Hands-on, user-friendly access to national, state and regional data from the 2001 NS-CSHCN and the 2003 National Survey of Children’s Health (NS-CH) –Technical assistance by email/telephone and online materials, such as examples of data use by states and links to related websites –Education -- thru e-updates, e-facts & in-person, telephone, and online workshops

3. What are the Data Resource Center goals ? Provide centralized, user-friendly interactive access to standardized national survey findingsProvide centralized, user-friendly interactive access to standardized national survey findings Build common knowledge, capacity, and passion for using data to stimulate and inform system change locally and nationallyBuild common knowledge, capacity, and passion for using data to stimulate and inform system change locally and nationally

5. What features are available? Learn about the surveysLearn about the surveys Search and compare national, state, and regional survey results for subgroups of children (age, race, sex, income, insurance and health status, etc.)Search and compare national, state, and regional survey results for subgroups of children (age, race, sex, income, insurance and health status, etc.) Get resources and idea on how to report your findings in a valid and effective manner Get expert help – by e-mailing us your questions, plus get links to other data sets and resourcesGet resources and idea on how to report your findings in a valid and effective manner Get expert help – by e-mailing us your questions, plus get links to other data sets and resources

6. What other features are available? Download cleaned, labeled state-specific national survey datasets with pre-constructed indicators and additional variables (SAS & SPSS)Download cleaned, labeled state-specific national survey datasets with pre-constructed indicators and additional variables (SAS & SPSS) Sign up for regular e-updates and “e-facts”Sign up for regular e-updates and “e-facts” Find out about and access the latest publications, reports & abstracts using the national survey dataFind out about and access the latest publications, reports & abstracts using the national survey data

8. Data Search “RECIPE”

12. Thinking about ways data could be used Identifying/documenting needsIdentifying/documenting needs –How many children in your state have what needs? –How does data support what you’re hearing from the field (providers, families, other agencies)? Building partnershipsBuilding partnerships –What partners could use this data: Public Programs, Health plans, Hospitals, Providers, community groups, faith based organizations? –How can you share data to support common efforts, improve care?

13. Additional ways data might be used: Educating PolicymakersEducating Policymakers –What are key policy issues for your state ? –What programs need what information? –What data could help them learn about child health needs? AdvocacyAdvocacy –Are there key pressure points in program budgets or priorities coming up? –What methods would be most effective in presenting your case? –How could you use data in Fact Sheets, Testimony, the media, along with family stories? Grant WritingGrant Writing –How can you use data to strengthen your proposal?

14. Visit soon! National Survey of Children with Special Health Care NeedsNational Survey of Children with Special Health Care Needs www.cshcndata.org National Survey of Children’s HealthNational Survey of Children’s Health www.nschdata.org