1. © The Children's Mercy Hospital, 2014. 03/14 Critical Congenital Heart Disease (CCHD) Meagan Dorton, MSN, MBA, RN-CPN Pulse Oximetry Screening for Detecting

2. © The Children's Mercy Hospital, 2014. 03/14 What is the prevalence of babies born with a Congenital Heart Defect? Data & Statistics. (2014, October 20). Retrieved March 18, 2015, from http://www.cdc.gov/ncbddd/birthdefects/data. http://www.cdc.gov/ncbddd/birthdefects/data html A.3.3% B.1% C.0.1% D.0.03%

3. © The Children's Mercy Hospital, 2014. 03/14 Prior to CCHD screening recommendations, approximately how many babies per year were discharged with an unrecognized CCHD? A.280 B.170 C.520 D.96

4. © The Children's Mercy Hospital, 2014. 03/14 4

5. 5 Laws and Regulations Missouri –Chloe’s Law –http://health.mo.gov/living/famili es/genetics/birthdefects/doc/cch dreportingform.dochttp://health.mo.gov/living/famili es/genetics/birthdefects/doc/cch dreportingform.doc Kansas –Quality initiative program Nationwide –37 states have passed a law or regulation (CDC) –Many hospitals have chosen to screen even if states don’t require it

6. © The Children's Mercy Hospital, 2014. 03/14 6 Statistics KDHE (information current as of 9/19/2014) –94.8% of babies in KS currently being screened prior to discharge –84% of birthing facilities in KS currently screening for CCHD –47% of birthing facilities reporting CCHD screens to KDHE –500 screens reported since May 2014 Critical Congenital Heart Defects. (n.d.). Retrieved March 4, 2015, from http://www.kdheks.gov/newborn_screening/CCHD.htm

7. © The Children's Mercy Hospital, 2014. 03/14 What is the estimated cost of screening for CCHD? A.$14 B.$20 C.$36 D.$72

8. © The Children's Mercy Hospital, 2014. 03/14 8 Obstacles Cost Time Education Resources http://www.childrensmercy.org/library/uploadedFiles/childre nsmercyorg/Clinics_and_Services/Clinics_and_De partments/Neonatology/20140319_Pulse%20OX% 20toolkit.pdf

9. © The Children's Mercy Hospital, 2014. 03/14 9 Resources 1-877-Pulse Ox (1-877-785-7369) –Consultation –Remote evaluation Education and Training –Onsite ECHO –Training materials for nursing staff http://www.childrensmercy.org/PulseOx/

10. © The Children's Mercy Hospital, 2014. 03/14 10 References Congenital Heart Defects: Current Research Activities. (2014, June 25). Retrieved March 4, 2015, from http://www.cdc.gov/ncbddd/heartdefects/current-research.html Critical Congenital Heart Defects. (n.d.). Retrieved March 4, 2015, from http://www.kdheks.gov/newborn_screening/CCHD.htm.http://www.kdheks.gov/newborn_screening/CCHD.htm Critical Congenital Heart Disease. (n.d.). Retrieved March 4, 2015, from http://health.mo.gov/living/families/genetics/birthdefects/cchd.php.http://health.mo.gov/living/families/genetics/birthdefects/cchd.php Data & Statistics. (2014, October 20). Retrieved March 18, 2015, from http://www.cdc.gov/ncbddd/birthdefects/data.htmlhttp://www.cdc.gov/ncbddd/birthdefects/data.html Knapp, A., Metterville, D., Kemper, A., Prosser, L., & Perrin, J. (2010, September 3). EVIDENCE REVIEW: Critical Congenital Cyanotic Heart Disease. Retrieved March 18, 2015, from http://www.hrsa.gov/advisorycommittees/mchbadvisory/heritabledisorders/nominatecondition/reviews/cyanoticheart.pdf Newborn Screening for Critical Congenital Heart Disease (CCHD)-2014 State Actions. (2014, October 20). Retrieved March 4, 2015, from https://www.aap.org/en-us/advocacy-and-policy/state- advocacy/Documents/2014%20CCHD%20Newborn%20Screening%20Bills,%20Regulations,%20and%20Executive%20Orders%20- %20AAP%20Division%20of%20State%20Govt%20Affairs.pdf. https://www.aap.org/en-us/advocacy-and-policy/state- advocacy/Documents/2014%20CCHD%20Newborn%20Screening%20Bills,%20Regulations,%20and%20Executive%20Orders%20- %20AAP%20Division%20of%20State%20Govt%20Affairs.pdf Peterson C, Ailes E, Riehle-Colarusso T, et al. Late Detection of Critical Congenital Heart Disease Among US Infants: Estimation of the Potential Impact of Proposed Universal Screening Using Pulse Oximetry. JAMA Pediatr. 2014;168(4):361-370. doi:10.1001/jamapediatrics.2013.4779. Peterson C, Gross SD, Glidewell J, Garg LF, Van Naarden Braun K, Knapp MM, Beres LM, Hinton CF, Olney RS, Cassell CH. A public health economic assessment of hospitals’ cost to screen newborns for critical congenital heart disease. Public Health Rep. 2014;129(1):86-93.