1. 1 Comprehensive Cancer Control In Action

2. Presentation objectives… Better understand the role of the state comprehensive cancer control coalition Discuss Kentucky’s colon cancer burden Better understand the challenges of implementing evidence-based CRC screening interventions in the community Share what Kentucky cancer control partners are doing to address the CRC burden

3. Comprehensive Cancer Control is a collaborative process through which a community pools resources to reduce the burden of cancer that results in risk reduction, early detection, better treatment, enhanced survivorship. COMPREHENSIVE CANCER CONTROL: Definition

4. COMPREHENSIVE CANCER CONTROL in KY: State level (KCC) The Kentucky Cancer Consortium (KCC) is Kentucky’s state comprehensive cancer control coalition –one of the 64 state, tribe and territorial programs participating in the National Comprehensive Cancer Control Program. Funded through CDC. KCC efforts are focused on issues related to cancer that are shared by multiple regions and/or the entire state. Consortium is made up of almost 40 organizations who meet quarterly

5. COMPREHENSIVE CANCER CONTROL in KY: Regional level (KCP)

6. We know, we know…

7. Model for Cancer Control Source: Kentucky Cancer Program

8. BRFSS Colorectal Cancer Screening Rates, Kentucky 1999-2008 Source: CDC/BRFSS Website, Accessed Jan. 2010

9. Colorectal Cancer Incidence, Kentucky (1999-2006) P<.05 Source: KCR Website, Accessed Jan. 2010

10. Colorectal Cancer Mortality, Kentucky (1999-2006) P<.05 Source: KCR Website, Accessed Jan. 2010

11. Where do communities get stuck when implementing “evidence”? Surveillance Data Systematic Reviews of Multiple Intervention Studies An Intervention Research Study Program Evaluation Word of Mouth Personal Experience

12. WHY do we have trouble? Evidenced-based interventions: –aren’t always “printer-ready”, ready-to-go –aren’t always easily adapted to new settings It may have limited sample generalizability Limited resources, staff time, and expertise to adapt program!!! –don’t always address the outcomes important to practitioners, community leaders, and policy makers: costs, cost- effectiveness, etc. Source: How Can We Increase Translation of Research into Practice? Types of Evidence Needed. Glasgow & Emmons. Annual Review of Public Health 2007. 28:413-33.

13. How can Comprehensive Cancer Control help get us out of trouble with evidence- based interventions?

14. The Answer: The Role of Comprehensive Cancer Control (CCC) We are not an organization per se, but a table at which many organizations sit…

15. Role of CCC Provides a neutral forum for organizations to work together… –We’re like Switzerland! Acts as bridge / peacemaker between researchers, state level organizations, and the community

16. Make the state Cancer Action Plan a PRACTICAL, working document –Do our Goals state the desired end result? –Are our Objectives SMART? –Are our strategies the best methods to meet our objectives on “the front lines”? Are they evidenced-based? Role of CCC

17. Present latest cancer data in an easy to understand manner –Cancer Registry involved and supportive Do the research, and present it in an easy-to- understand way –Cancer Control P.L.A.N.E.T. –Don’t overwhelm Collect and present other states’ Cancer Action Plan CRC goals, objectives and strategies, and what their outcomes have been Role of CCC

18. Pro-active facilitation of meetings to ensure: –Everyone feels ‘heard’ –Elephants in room are acknowledged –Partners’ work is highlighted and promoted –Agendas are well-thought out, and followed –Emphasize transparency –Priorities are set collectively Provide seed funding for regional efforts Keep bringing people back to the table!

19. Example: Colon Cancer Prevention Committee Formed in response to the CAP goal Built on momentum from Kentucky’s 2008 Dialogue for Action for Colon Cancer Screening Leadership Summit Developed three working subcommittees to identify and implement strategies to increase colon cancer screening statewide: –The Public Awareness/Messaging Subcommittee –Grassroots Advocacy Subcommittee –The Provider/Medical Home Subcommittee

20. Example: Colon Cancer Prevention Committee The Public Awareness Subcommittee –Developed simple key messages using posters and other print materials to increase awareness of the need to be checked for colon cancer –Tailored the message KCP conducted 23 focus groups with 315 participants in all 15 Kentucky Area Development Districts to tailor the messages.

21. Regional CCC takes message across state KCP began implementation of the Targeted Colon Cancer Outreach Program (TCCOP)* –Tested and evidenced based –Educate public and health care providers through multi-faceted approach –Coordinated through regional District Cancer Councils –3-year plan: systematic with evaluation

22. Go back to the table for seconds… Don’t underestimate the power of bringing people together in a neutral environment Make the “evidence-finding” homework a priority Involve the community in the entire process! Consider finding help to publish

23. How can the National Partners make the food go down easier? Hire staff dedicated to creating and/or tailoring evidence-based interventions –Technical assistance, technical assistance!! –Help in writing articles for publication Simplify criteria for RTIPs or create an RTIPs “Lite” When creating RFA’s or RFP’s, appreciate multiple types of evidence Provide scholarships for registration/travel to cancer control research conferences

24. Contact Information Kentucky Cancer Consortium –http://www.kycancerc.orghttp://www.kycancerc.org Katie Bathje, Program Coordinator (859) 219-0772 x275 kbathje@kycancerc.org