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DELIVERING BETTER OUTCOMES FOR PEOPLE WITH DEMENTIA THE NATIONAL DEMENTIA STRATEGY AND THE LONDON CENTRE FOR DEMENTIA CARE Maria S. Parsons Executive Director.

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Presentation on theme: "DELIVERING BETTER OUTCOMES FOR PEOPLE WITH DEMENTIA THE NATIONAL DEMENTIA STRATEGY AND THE LONDON CENTRE FOR DEMENTIA CARE Maria S. Parsons Executive Director."— Presentation transcript:

1 DELIVERING BETTER OUTCOMES FOR PEOPLE WITH DEMENTIA THE NATIONAL DEMENTIA STRATEGY AND THE LONDON CENTRE FOR DEMENTIA CARE Maria S. Parsons Executive Director London Centre for Dementia Care University College London

2 Dementia in the UK 2008 estimated 700,000 people with dementia2008 estimated 700,000 people with dementia 2021 rise of 38% to just over 1,700, rise of 38% to just over 1,700,000 68% over 8068% over 80 62% Alzheimers disease62% Alzheimers disease 66.5% live in the community66.5% live in the community 36.5% in care homes36.5% in care homes 36% of estimated £18 billion costs of care borne by families36% of estimated £18 billion costs of care borne by families No cure -it helps to understand dementia as a disabilityNo cure -it helps to understand dementia as a disability

3 London Borough of Sutton Fig 3. People aged 65 in Sutton predicted to have dementia

4 Challenges in London Increases in prevalence of dementia in London boroughs estimated as circa 10% (Inner) and 32% (Outer) over next 17 years.Increases in prevalence of dementia in London boroughs estimated as circa 10% (Inner) and 32% (Outer) over next 17 years. Disparities of income and wealth – groups dependent on public services & self payersDisparities of income and wealth – groups dependent on public services & self payers Cross cutting inequalities – dementia + low health status, social deprivation, ethnicity and discrimination, social isolation and living alone.Cross cutting inequalities – dementia + low health status, social deprivation, ethnicity and discrimination, social isolation and living alone. Diversity of workforceDiversity of workforce Low level of skills and specialist knowledgeLow level of skills and specialist knowledge Complexity/gaps in health and social care servicesComplexity/gaps in health and social care services Cost pressuresCost pressures

5 Drivers and levers Demographic pressuresDemographic pressures Overall low quality services and integration patchyOverall low quality services and integration patchy November 2006 Supporting People with dementia and their Carers in Health and Social Care NICE/SCIE - evidence baseNovember 2006 Supporting People with dementia and their Carers in Health and Social Care NICE/SCIE - evidence base February 2007 Dementia UK Alzheimers Society – major report – prevalence and costsFebruary 2007 Dementia UK Alzheimers Society – major report – prevalence and costs 4 July 2007 Improving services and support for people with dementia and their families, NAO – services poor value for money4 July 2007 Improving services and support for people with dementia and their families, NAO – services poor value for money August 2007 Ivan Lewis announces work on National Dementia Strategy (NDS)August 2007 Ivan Lewis announces work on National Dementia Strategy (NDS)

6 NDS programme and timescale DH Lead David Behan, Director General of Social CareDH Lead David Behan, Director General of Social Care Professor Sube Banerjee, Professor of Mental Health and Ageing at the Institute of Psychiatry, King's College London, & Jenny Owen, Executive Director of Adults, Health and Community Wellbeing in Essex joints leadProfessor Sube Banerjee, Professor of Mental Health and Ageing at the Institute of Psychiatry, King's College London, & Jenny Owen, Executive Director of Adults, Health and Community Wellbeing in Essex joints lead Neil Hunt, CE, Alzheimer's Society chairs programme's External Reference Group - main core group & 3 sub-groupsNeil Hunt, CE, Alzheimer's Society chairs programme's External Reference Group - main core group & 3 sub-groups 3 key themes: Raising Awareness, Early diagnosis and intervention and quality of care3 key themes: Raising Awareness, Early diagnosis and intervention and quality of care

7 NDS Timetable Listening and Engagement ExercisesListening and Engagement Exercises December – March 2008 December – March 2008 Report from work streams to Minister March 2008Report from work streams to Minister March 2008 Formal consultation on the draft Strategy between June and August 2008Formal consultation on the draft Strategy between June and August 2008 The final National Dementia Strategy and Implementation Plan will be published inThe final National Dementia Strategy and Implementation Plan will be published in Autumn 2008 Autumn 2008 Must dos?Must dos? Who will provide leadership at regional level?Who will provide leadership at regional level?

8 Improving Awareness Developing a better understanding of dementia by public and professionals alikeDeveloping a better understanding of dementia by public and professionals alike Ensuring that better information is provided on how to seek help and what help and treatment is available; andEnsuring that better information is provided on how to seek help and what help and treatment is available; and Tackling the stigma and misunderstandingsTackling the stigma and misunderstandings that currently exist that currently exist Not confined to general public – low in healthNot confined to general public – low in health services particularly acute sector services particularly acute sector

9 Early Diagnosis and Intervention GPs reluctant to diagnose or misdiagnoseGPs reluctant to diagnose or misdiagnose Only a third of people with dementia receive a formal diagnosis at any time in their illness.Only a third of people with dementia receive a formal diagnosis at any time in their illness. Late diagnosis reduces ability to plan and make choice.Late diagnosis reduces ability to plan and make choice. Early diagnosis and intervention services not universal or comprehensiveEarly diagnosis and intervention services not universal or comprehensive Inherent tension between early diagnosis and social services as stringent eligibility criteria of CSSRs mean those deemed eligible for services have critical needs/severe dementiaInherent tension between early diagnosis and social services as stringent eligibility criteria of CSSRs mean those deemed eligible for services have critical needs/severe dementia

10 Improving the Quality of Care for People with Dementia Quality of careQuality of care CommissioningCommissioning Supporting the workforceSupporting the workforce Monitoring and regulationMonitoring and regulation Care pathwaysCare pathways Acute hospital careAcute hospital care Liaison and linksLiaison and links Whole systems/integrationWhole systems/integration

11 London Centre for Dementia Care Established 1998 at University College LondonEstablished 1998 at University College London A Dementia Services Development Centre for the capital (DSDCs provide information, education, consultancy and research for professionals and care staffA Dementia Services Development Centre for the capital (DSDCs provide information, education, consultancy and research for professionals and care staff Executive Director: Maria Parsons. Chair of Strategy Group: Professor Martin Orrell + CEs and senior managers from statutory & voluntary sector and academiaExecutive Director: Maria Parsons. Chair of Strategy Group: Professor Martin Orrell + CEs and senior managers from statutory & voluntary sector and academia 2006 for dementia provided 2 year Strategic Partnership grant2006 for dementia provided 2 year Strategic Partnership grant

12 Vision The London Centre for Dementia Care will promote and facilitate the dissemination and implementation of best practice in dementia care The London Centre for Dementia Care will promote and facilitate the dissemination and implementation of best practice in dementia care

13 Strategic Aims Act as a hub and portal for professionals and care staff to information and knowledge in dementia careAct as a hub and portal for professionals and care staff to information and knowledge in dementia care Contribute to developing a skilled workforceContribute to developing a skilled workforce Facilitate the transfer of knowledge from researchFacilitate the transfer of knowledge from research Provide expertise to commissioners and providersProvide expertise to commissioners and providers

14 LCDC Development and events 2007 Feasibility study2007 Feasibility study 2008 Business Plan, Governance and Fundraising Strategy Spring Business Plan, Governance and Fundraising Strategy Spring 2008 What works in dementia care? April 8, UCLWhat works in dementia care? April 8, UCL Dementia Summer School July 1 UCLDementia Summer School July 1 UCL Programme of development includes website and database of good practiceProgramme of development includes website and database of good practice Dementia NetworkDementia Network

15 LCDC Services and activities Information and inquiry serviceInformation and inquiry service Dissemination of researchDissemination of research Quarterly Margaret Butterworth Care Homes ForumQuarterly Margaret Butterworth Care Homes Forum LCDC Newsletter (1000 circulation) 3 times a yearLCDC Newsletter (1000 circulation) 3 times a year Quarterly Dementia Education and Training Network (DETN) with for dementiaQuarterly Dementia Education and Training Network (DETN) with for dementia Seminars and conferencesSeminars and conferences Consultancy projectsConsultancy projects

16 Current projects DBA Inclusive Challenge (Dementia) with Helen Hamlyn Centre, RCADBA Inclusive Challenge (Dementia) with Helen Hamlyn Centre, RCA Sutton Council population needs and servicesSutton Council population needs and services DementiaSpace and Dementia Forum – workforce development for national care home companyDementiaSpace and Dementia Forum – workforce development for national care home company

17 People at the London Centre for Dementia Care Professor Martin Orrell, UCL, Chair, LCDC Strategy GroupProfessor Martin Orrell, UCL, Chair, LCDC Strategy Group Barbara Stephens, Chief Executive, for dementiaBarbara Stephens, Chief Executive, for dementia Vice Chair, LCDC Strategy Group Vice Chair, LCDC Strategy Group Maria Parsons, Executive Director, LCDCMaria Parsons, Executive Director, LCDC

18 Do contact us Maria S. Parsons Executive Director London Centre for Dementia Care University College Riding House Street London W1W 7EJ T M


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