1. 1 Getting the Evidence: The People Living with HIV Stigma Index Lucy Stackpool-Moore

2. 2 For now …. Stigma is widely recognised as a barrier to achieving universal access to prevention, treatment, care and support. How do we really know? What effect does criminalisation have in this environment? For later …. How can the evidence gathered from the stigma index generate change in …. policies such as criminalisation? …. programme responses such as testing? …. the lives of people living with HIV? Some questions to start …

3. 3 “Criminalizing HIV can affect people living with HIV who are already suffering from several kinds of stigmatization and discrimination…. If the law criminalizes HIV transmission it could lead to the total exclusion of people living with HIV” Ghizlane Naoumi Moroccan Family Planning Association

4. 4 Introducing The People Living with HIV Stigma Index … Tool By and for people living with HIV Quantitative questionnaire and in-depth case study research Measure: Change over time What is and isn’t working; unintended outcomes Experiences of different communities most vulnerable to infection (MSM; IDU; Sex workers; migrants, women and young girls) Stigma in different settings e.g. workplace, home, community, church, self Process as important as the results Tool for GIPA enactment—product of a partnership between IPPF, UNAIDS, GNP+ and ICW Referral, follow-up,‘side by side’ interviewing Where we are now—regional rollout and capacity building with national networks of people living with HIV

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8. 8 Using evidence to generate change 1. Evidence to improve policies and ensure that policies are grounded in the realities of living with HIV. The findings from the index will be used to promote the human rights of people living with HIV and advocate for policy change on key issues including the criminalization of HIV transmission 2. Improved programs influenced by the perspectives of people living with HIV to better meet the needs of people living with HIV and increased access to, and uptake of, services 3. Models of best practice for the greater involvement of people living with HIV (GIPA) by putting people living with HIV at the centre of the process and ensuring that it remains by, and for, people living with HIV throughout all stages of implementation

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10. 10 Online debate (www.aidsportal.org) Can the law control intimate behaviours? Know your rights Campaign with ICW, GNP+, Young Positives Publication—a ‘dummies’ guide to criminalization and human rights Consider the alternatives Positive prevention Empowering people to know their status Country rollout of the index …. ! Stay involved in this debate

11. 11 Thank you lstackpoolmoore@ippf.org www.stigmaindex.org lstackpoolmoore@ippf.org