1. NCHS and Public Health Data Standards Centers for Disease Control and Prevention National Center for Health Statistics

2. Mission of CDC’s National Center for Health Statistics: “NCHS monitors the nation’s health, providing statistical information that will guide actions and policies to improve the health of the American people.”

3. NCHS and PHDSC Long history of involvement in development and implementation of data standards Early supporter of PHDSC; housed initial organization Founding member of PHDSC Current collaborative projects Web-based Resource Center Health Care Service: Data Reporting Guide

5. Vision for 21 st Century Health Statistics Influences on the Population's Health Vision for 21 st Century Health Statistics Influences on the Population's Health Place & Time Context Natural Environment Cultural Context Political Context Community Attributes Biological Characteristics Social Built Environment Health Services Economic Population-based Health Programs Collective Lifestyles and Health Practices The Population’s Health LevelDistribution Disease Functioning Well-being

6. Vision for health statistics enterprise: ten guiding principles Enterprise-wide planning Broad collaboration Protection of privacy, confidentiality and security Flexibility to address emerging data needs Use of data standards Sufficient detail at all levels Timely production Integrated and streamlined data collection Appropriate access and ease of use Continuous evaluation

8. Major NCHS Data Systems National Vital Statistics System National Survey of Family Growth National Health Interview Survey National Health Care Survey National Health and Nutrition Examination Survey State and Local Area Integrated Telephone Survey

9. National Vital Statistics System 57 reporting areas Decentralized US historical development-self- governing States Nothing on registration in US Constitution Responsibility based in state law Responsibility with provider of services

10. Vital Statistics Core of our health data system Base for public health, social science, economic planning and program development Monitor key indicators of health world-wide Track progress to goals Identify disparities Alert to emerging problems

12. Promoting Consistency and Uniformity Model State Vital Statistics Act and Regulations Standard Certificates and Reports – standardized worksheets Training materials – handbooks, videos, instruction manuals Technical assistance – ICD 10 Software – ACME, MICAR, etc…

13. Future for Vital Statistics Revised Birth Certificate Revised Death Certificate

14. Re-engineering Vital Statistics Automation of records at the source Flexibility to revise rapidly, address new data needs Speed the flow of data Implemented by states along with new standard certificates Protocols and standards

15. Back Office Use Cases Diagram

16. Vital Statistics Messaging Project To establish standardized messaging for vital events consistent with PHIN Joint project – PHDSC, NAPHSIS, State representatives, CDC, and NCHS Recognizes value of including vital statistics with its strong state-based system in PHIN Next step: Identify state partners for testing and development

17. Major NCHS Data Systems National Vital Statistics System National Survey of Family Growth National Health Interview Survey National Health Care Survey National Health and Nutrition Examination Survey State and Local Area Integrated Telephone Survey

18. Standardizing data from multiple sources

21. Medical records from doctors’ offices, inpatient and outpatient hospital care Facility questionnaires CAPI interviews in the home Clinical and laboratory tests Medical examination findings

22. International Standards Setting WHO’s Family of International Classifications International Classification of Diseases International Classification of Functioning and Disabilities Summary health measures Interview and examination survey methodologies International Collaborative Efforts Injury Automated Mortality Coding

23. NCHS support for WHO standards in mortality coding NCHS developed automated coding system for mortality data, based on ICD Distributes software at no charge Offers international ICD coder training course at RTP NCHS’s ICE on Automation promotes automated system via meetings, symposiums Automation seminar for Eastern European nations in June 2004

25. Conference Format Theme: Data for the Public Workshop Sessions ( 1 ½ hours) Overview of Programs In-depth Program Analysis Cross-Cutting Issues, such as Data Standards Hands-On Exhibits – NCHS, CDC and vendors Focus groups

26. Conference Registration 2004 Invitation: to be mailed soon and will be available also on-line