1. Data Quality Toolbox for Registrars MCSS Workshop December 9, 2003 Elaine Collins

2. Quality Data Toolbox ArtisanRegistrar MediumComputerized data Raw MaterialsMedical information Shaping toolsKnowledge, skills DirectionsStandards Measuring toolsEditing “tools” Final ProductCancer record GoodnessMatch to standards

3. Quality Data - Goodness Accurate Consistent Complete Timely Maintain shape across transformation and transmission

4. Measuring Tools Reabstracting studies Structured queries and visual review Text editing EDITS MCSS routine review

5. Exercises MCSS reabstracting study – 2003 Sites: Breast, Corpus uteri, Lung, Melanoma, Testis, Soft tissue sarcoma 2000 diagnosis year 12 facilities Review of reported data – Structured query Review of reported data – Text editing

6. Reabstracting Studies Compares original medical record with reported cancer record Considered the “gold standard” Labor-intensive; all records used at initial abstracting may not be available; biased by reabstractor’s training and skills

7. Structured Queries Compares coding across series of records sorted by selected characteristics Useful for finding pattern discrepancies across many records Manual process; some comparisons may be converted to automated edits

8. Text Editing Compares text with coded values for individual records Useful for immediately identifying coding problems Manual process; most effective on completion of each individual case

9. EDITS Checks range validity for many fields, comparability of few fields for individual records Automated process, can be applied on completion of each record or on preparation of batch report; warnings and over-rides are alternatives to failures Expansion of interfield edits requires careful logic

10. Edits Analysis Edits to be included in MCSS Set Edits in Hospital/Staging Edit Sets – C edits are included in confidential data set No Text Edits displayed Criteria –Valid codes/dates –Alpha/numeric –Timing –Interfield comparisons –Absolute conditions

11. MCSS Review Requests values for missing or unknown data; resolves conflicts between data items from multiple facilities and between data items updated by single facility Allows incorporation of information from multiple facilities Review for limited number of conditions

13. Cancer Registrar – Resource for Quality Data Registrar Facility System Medical Record Physician Other Registries Patient ICD-O COC AJCC SEER NAACCR Facility Staff Committees Protocols NCDB Central Registry Quality Monitors CDC Cancer Research Cancer Control NAACCR Public

14. Data Inputs Patient data from facility systems Medical record reports and notes Pathology reports Staging forms Communication with physician offices Communication with other registries Communication with patients

15. Process Inputs Registrar training, knowledge, skills Coding standards – ICD-O-3, COC, AJCC, SEER, NAACCR Interpretations of standards – I&R, SEER Inquiry, Ask NAACCR Medical literature – printed and online Registry software data implementations

16. Sources of Error Patient data from facility systems Medical record reports and notes Pathology reports Staging forms Communication with physician offices Communication with other registries Communication with patients

17. Sources of Error Registrar training, knowledge, skills Coding standards – ICD-O-3, COC, AJCC, SEER, NAACCR Interpretations of standards – I&R, SEER Inquiry, Ask NAACCR Medical literature – printed and online Registry software data implementations

18. Types of Errors Missing/conflicting data Shared data errors Timing/coding errors Standards and interpretations – ambiguities, omissions, confusions, contradictions Discrepancies among local/central registry practice and national standards

19. Software Implementations Discrepancies between implementations and national standards Lack of registrar knowledge/training on correspondence between registry and exported data Logic errors in matching registry data to reporting formats Conversion errors

20. AJCC Staging Dilemma Are pathologic nodes required for pathologic stage grouping? How do Minnesota registrars answer this question?

21. Clinical/Pathologic Staging in Study

22. Collaborative Staging Provides specific rules for coding known vs unknown staging elements Accommodates “best” stage for AJCC stage assignment

23. AHIMA 75 th Annual Conference October, 2003 Minneapolis: Coming Events Data mining ICD-10-CM SNOMED Natural language processing

24. AHIMA 75 th Annual Conference October, 2003 Minneapolis: Challenges What is our professional purpose? How do we envision ourselves as professionals?

25. Foundation for Quality Data Registrar’s commitment to registry purpose Registrar’s knowledge, understanding of cancer data Registrar’s management of communication technologies Registrar’s advocacy for data use

26. SUMMARY Consistent recording and reporting of quality cancer data requires commitment. Routine and regular review of data patterns facilitates data knowledge and quality. Passing EDITS assists but does not ensure data quality. Data standards change, use the manuals. Welcome Collaborative Stage.