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Jacob B Weiss, PhD 4/24/2009 CanConnect.org Department of Biomedical Informatics, Vanderbilt University.

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Presentation on theme: "Jacob B Weiss, PhD 4/24/2009 CanConnect.org Department of Biomedical Informatics, Vanderbilt University."— Presentation transcript:

1 Jacob B Weiss, PhD 4/24/2009 CanConnect.org Department of Biomedical Informatics, Vanderbilt University

2 Catch It Early

3 Themes from Summit Day 1 Collaboration Community-based participatory research Cancer survivorship Awareness of community resources Emerging Web Technologies?

4 Cancer as a Chronic Illness Diagnosis Treatment Survivorship

5 Community-Based Support Inpatient Clinic Team Outpatient Community Support

6 Clinical Care Team Clinical Care Team Patients and Families Local Community Support Institute of Medicine (IOM). Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs. Washington, DC: The National Academies Press, 2007 Gustafson DH, Hawkins RP, et al. CHESS: 10 years of research and development in consumer health informatics for broad populations, including the underserved. International Journal of Medical Informatics. 2002;65(3):

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9 Awareness Connecting Collaboration Community & Survivorship Focus Knowledge Management Underserved Populations Local cancer-related calendar & news blog Local resource listings (tagged by keywords) Design of the Online Community

10 Awareness Connecting Collaboration Community & Survivorship Focus Knowledge Management Underserved Populations Patient-to-patient mentorship connection Social networking profiles Design of the Online Community

11 Awareness Connecting Collaboration Community & Survivorship Focus Knowledge Management Underserved Populations Private community partner forum Design of the Online Community

12 Awareness Connecting Collaboration Community & Survivorship Focus Knowledge Management Underserved Populations Stories shared emphasize life lessons and humor Focus on community support resources and partners Design of the Online Community

13 Awareness Connecting Collaboration Community & Survivorship Focus Knowledge Management Underserved Populations Google map to visualize support organizations Searchable archive of local events, news, program contacts Design of the Online Community

14 Awareness Connecting Collaboration Community & Survivorship Focus Knowledge Management Underserved Populations Increase visibility through shared stories and relevant resources Design of the Online Community

15 A Home To Share

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18 A Home To Celebrate and Recognize

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20 Provide Access To Information

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23 Synthesize and Filter Windows into the Community

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27 Listen and Participate The Pulse of the Community

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31 Partner Supporting Community Activities

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34 As wonderful as the web is, this kind of philosophical commitment to each other has to take place at least initially in person.

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