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2. Health Care Transition
A Parent, Family and Caregiver’s Guide to Helping Youth Transition from Pediatric to Adult Health Care 2 2

3. The NC Family to Family Health Information Center
Brought to you by:
The NC Family to Family Health Information Center
A project of the Exceptional Children’s Assistance Center
Carolina Health and Transition (CHAT) 3 3

4. CHAT : Carolina Health and Transition
A federally funded project though the NC Division of Public Health, Children and Youth Branch.
Youth Initiative
Family Initiative
Health Care Providers
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5. Goals of this workshop
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6. What is Transition? Types of transition: School Work Independence
Health
Our focus will be on transitioning from pediatric to adult health care systems.
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7. Keys to Understanding Health Care Transition
Health Care Transition is:
A process
different from transfer of care
which is an event
Individualized
one size does not fit all
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8. Why Understanding Health Care Transition is Important
What are some transition realities?
Where can successful transition lead?
What does it mean for youth to
manage their own health care?
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9. Potential Barriers: Personal barriers (Individualized)
Service barriers (Access)
Structural barriers (External)
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10. Tips for Successful Transition:
Teachable moments
Assess your situation
Partners
Make sure your child knows…
Resource materials
Record keeping
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11. Checklists and Timelines
Page 49-51
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12. What is a Medical Home? Primary care that is: Accessible
Family Centered
Continuous
Comprehensive
Coordinated
Compassionate
Culturally Effective
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13. Medical Home Family Index
Skill Builders:
Medical Home Family Index
Pages 55-58
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14. Health Care Transition and the Patient Centered Medical Home
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15. Adult Health Care Providers
Roles of Pediatric vs.
Adult Health Care Providers
Pediatric Provider
Adult Provider
Transition Team
Communication
Support services and ongoing
education
Care Coordinators
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16. Skill Builders: Care Notebook and Portable Medical Summary
Record Keeping
Skill Builders: Care Notebook and Portable Medical Summary
Pages 61-64
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17. Roles of Care Coordinators
Assess and identify needs
Develop a Plan of Care
Put the plan into action
Evaluate
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18. Skill Builders: Transition Planning
Page 67
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19. Health Care Coverage and Legal Issues
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20. Legal Issues Related to Health Care Coverage:
Age restrictions for insurance
Medical Power of Attorney
Health Insurance Portability and
Accountability Act (HIPAA)
Family Educational Rights and
Privacy Act (FERPA)
Guardianship
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21. Cultural Competence and Transition:
Health literacy
“Ask Me 3”
Pages
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22. Advocacy, Support and Mentoring:
Advocacy Skills for Parents
Support
Circle of Friends
Mentoring
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23. Health Care Transition Toolkit
Timelines and checklists
Medical Home Family Index
Portable Medical Summary & Emergency Medical Form
Transition Care Plan
Health Insurance & Legal issues
Cultural Competence & Health Literacy
Advocacy, Support Networks
Resources
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24. Resources National State Care Notebook ICE 24 24
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25. Questions?
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26. NC Family to Family Health Information Center At ECAC
For more information please contact:
NC Family to Family Health Information Center
At ECAC
(800) ext. 35
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