Presentation on theme: "Coping / Living with a brain tumour Leicester Information Day Alex J Mitchell Leicester"— Presentation transcript:
Coping / Living with a brain tumour Leicester Information Day Alex J Mitchell Leicester
Classic Medical Model: Authoritarian 1. need to know 2. dont tell / clinician in charge 3. Sick role 4. Victim / Lack of control 5. Reactive 6. Physically based
New Medical Model: Interactive 1. what would you like to know 2. Patient is at the centre 3. Rehab early 4. Promote control / autonomy 5. Proactive => prevention 6. Holistic
Issues Picked Up?
Psychooncology Nov;20(11): doi: /pon Epub 2010 Sep Cancer Patients in Florida (Jacobsen, 2010)
Johnsen Do advanced cancer patients in Denmark receive the help they need? A nationally representative survey of the need related to 12 frequent symptoms/problems Psychooncology Adv Cancer Patients in Denmark (Johnsen, 2013)
94.2% 37.4% 8 yrs N= 9282 NCS-R P Wang Harvard In cancer?=>
If mental ill health is present in cancer: 1.Lower rates of cancer screening 2.Lower rates of cancer diagnosis 3.Lower rates of cancer treatment 4.Poorer adherence with treatment 5.Higher mortality
1.Worry about future 2. Fatigue / energy 3. Anxiety / depression 4. Family / relationships 5. Memory / concentration 6. Feeling helpless/alone
Distress 40% Depress 25% Anger 20% Anxiety 50% I feel low, hopeless I feel stressed I feel worriedI feel irritable why me?
What Help is Wanted? 19% wanted medication (eg antidepressants) 31% want self help guidelines 31% wanted group therapy 56% wanted illness information. 58% complementary therapies 62% trusted face-to-face psychological support
Help – Who From? Nurse specialists (54%) Family and friends (21%) Spiritual advisor (8%) Psychiatrist (4%).
Problems Getting Timely Help 1.Help not requested (?trust) 2.Help not available 3.Help not given 4.Wrong help given
Offers of Help (n=2557)
Top Tips for Coping Successfully 1.Ask for help when needed 2.Talk with other patients / support groups 3.What can I do not what have I lost 4.Start slow but build up 5.Use family and friends 6.Plan for the future
What is Ideal Treatment? 1.Effective 2.Acceptable 3.Easily accessible 4.Proven (evidence based) 5.Value for money