1. EC LN ENGAGING COMMUNITIES LEARNING NETWORK Choice, Risk and Accountability Event 15 th January 2004 Bristol Marriott Royal Hotel Using Expert patients Telling the truth Equity Patient expectations How patients can help us Chronic Disease Trust Political reality Respect Affordability of real choice

2. EC LN ENGAGING COMMUNITIES LEARNING NETWORK Choice, Risk and Accountability Event 15 th January 2004 Bristol Marriott Royal Hotel Strengthen role of patient and carer Left over paternalism Patient/public responsibility Main stream involvement to front line staff Worried where PCTs arent finding their place in the game

3. EC LN ENGAGING COMMUNITIES LEARNING NETWORK Choice, Risk and Accountability Event 15 th January 2004 Bristol Marriott Royal Hotel * Identification of expert patients is the wrong way to raise awareness – Patients need to identify themselves in many ways Target people Way idea promoted Self management main stream No public motivation Re-target health promotion £s * PCTs really understanding what commissioning is about Forget Me Not NSF

4. EC LN ENGAGING COMMUNITIES LEARNING NETWORK Choice, Risk and Accountability Event 15 th January 2004 Bristol Marriott Royal Hotel Re-educate the worried well Expert Patient needs to be generic How about (Patients) people with long term Problems Stop using phrase Patients with chronic disease please

5. EC LN ENGAGING COMMUNITIES LEARNING NETWORK Choice, Risk and Accountability Event 15 th January 2004 Bristol Marriott Royal Hotel Link in to new and existing networks Drop-in centres Ages in education Talk to educators TV campaign – central government push Government (JANUS) PCTs to share invention -or