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2002 ISHLT THE REGISTRY OF THE INTERNATIONAL SOCIETY FOR HEART AND LUNG TRANSPLANTATION: NINETEENTH ANNUAL REPORT.

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Presentation on theme: "2002 ISHLT THE REGISTRY OF THE INTERNATIONAL SOCIETY FOR HEART AND LUNG TRANSPLANTATION: NINETEENTH ANNUAL REPORT."— Presentation transcript:

1 2002 ISHLT THE REGISTRY OF THE INTERNATIONAL SOCIETY FOR HEART AND LUNG TRANSPLANTATION: NINETEENTH ANNUAL REPORT

2 2002 ISHLT Major Contributors to the ISHLT Transplant Registry Eurotransplant (ET): AustriaNetherlands BelgiumSlovenia Germany United Kingdom Transplant Services Authority (UKTSSA): United KingdomIreland United Network for Organ Sharing (UNOS): United States 75 Individual centers from Canada, Central/South America, Europe, Asia, Australia, and Africa (reporting transplants since 1995)

3 2002 ISHLT ACKNOWLEDGMENTS: We wish to extend our sincere thanks to the many thoracic transplant surgeons, physicians and data coordinators in transplant programs throughout the world whose timely and accurate submission of data has made these analyses possible.

4 2002 ISHLT ISHLT International Heart and Lung Transplant Registry Proposed Mission Statement (8/24/01) The ISHLT International Heart and Lung Transplant Registry was created to advance the state of knowledge and patient care regarding therapies for the failing heart and lung. This mission is accomplished by maintaining a repository of the worldwide thoracic organ transplant experience and by fostering related outcomes research in order to: 1.Create new knowledge related to advanced heart and lung failure and transplantation; 2.Serve as a resource for healthcare providers seeking information regarding patient care;

5 2002 ISHLT ISHLT International Heart and Lung Transplant Registry Proposed Mission Statement (8/24/01) 3. Provide benchmark aggregate date for use by individual centers to assess their center-specific practices and outcomes; 4. Serve as a resource for governmental agencies worldwide when formulating public policy regarding thoracic organ transplantation; 5. Serve as a resource for patient-related organizations and pharmaceutical companies regarding disease-specific therapies and transplant outcomes (contd)

6 2002 ISHLT Goals of New Registry Structure 1.Increase the number of publications/studies using Registry data 2.Increase the number of non-US reporting centers 3.Optimize the data quality and integrity 4.Improve the process of receiving, processing and fulfilling data and analysis requests 5.Develop sources of external funding 6.Develop a formal publication policy regarding the use of Registry data 7.Increase the number of centers reporting data online 8.Redefine and improve the working relationship with UNOS Registry staff

7 2002 ISHLT Goals of New Registry Structure (contd) 9.Optimize the value and image of the Registry to the Society, its members, and the external research community 10.Identify patient-related organizations and pharmaceutical companies and make them aware of the Registry as a resource 11.Restructure the data fields into a tiered system and increased the number of required fields 12.Increase the number of reporting agreements with non- US government regulatory agencies (i.e, Swiss Transplant, France Transplant, Scandia Transplant, etc.)

8 2002 ISHLT REGISTRY STEERING COMMITTEE Marshall Hertz – Medical Director Elbert Trulock – Associate Director for Lung Transplantation David O. Taylor – Associate Director for Heart Transplantation Mark Boucek – Associate Director for Pediatric Transplantation Paul Mohacsi – Associate Director for Non-US Centers Amanda Rowe – ISHLT Executive Director Berkeley Keck – Associate Director for Database Management Leah Bennett Edwards – Associate Director for Data Analysis

9 2002 ISHLT General Registry Statistics

10 2002 ISHLT REGISTRY DATABASE: Number of Transplants Performed ORGANTransplants Reported Through 2001 Heart61533 Heart-Lung2935 Lung14588

11 2002 ISHLT REGISTRY DATABASE: Number of Centers Reporting Transplants Organ Ever Reported Data Centers Reporting Transplants in 1993 Centers Reporting Transplants in 2001 Centers with Continuous reporting through 2001 % of 2001 centers that are continuous reporters Heart32823020018391.5 Heart- Lung 12860351542.9 Lung181102998282.8

12 2002 ISHLT REGISTRY DATABASE: Number of Centers Reporting Heart Transplants * Numbers may be low due to delayed reporting

13 2002 ISHLT REGISTRY DATABASE: Number of Centers Reporting Lung Transplants * Numbers may be low due to delayed reporting

14 2002 ISHLT REGISTRY DATABASE: Number of Centers Reporting Heart-Lung Transplants * Numbers may be low due to delayed reporting

15 2002 ISHLT APPENDIX

16 2002 ISHLT Centers Reporting to the ISHLT Transplant Registry COUNTRY/Center Transplants Performed in 2000 and Reported to ISHLT Transplants Performed in 2001 and Reported to ISHLT ARGENTINA Fundacion Favaloroxx AUSTRALIA St. Vincentxx The Prince Charles Hospitalxx The Alfred Hospitalx Royal Perth Hospitalxx AUSTRIA University of Viennaxx Innsbruck University Hospitalxx University Klin fur Chir (Graz)xx BELGIUM Erasme Univ. Hospital (Brussels)xx Univ. Hospital Gasthuisberg (Leuven)xx (Contd)

17 2002 ISHLT Centers Reporting to the ISHLT Transplant Registry COUNTRY/Center Transplants Performed in 2000 and Reported to ISHLT Transplants Performed in 2001 and Reported to ISHLT BELGIUM (contd) University Hospital Antwerp xx OLV Hospital (Aalst) xx University Hospital Gent xx Centre Hospitalier Universitaire de Liege, CHU Sart-Tilman xx CANADA Royal Victoria Hospital xx Montreal Heart Institute xx The Toronto General Hospital xx Quebec Heart Institute - Laval Hospital xx Ottawa Heart Institute xx Univ. of Alberta Hospitals/ Walter C. Mackenzie Health Sciences xx (Contd)

18 2002 ISHLT Centers Reporting to the ISHLT Transplant Registry COUNTRY/Center Transplants Performed in 2000 and Reported to ISHLT Transplants Performed in 2001 and Reported to ISHLT CANADA (contd) St. Paulxx Vancouver General Hospitalxx The Hospital for Sick Childrenxx CHILE Hospital DIPRECAx Clinica Las Condesx FRANCE Hopital Cardiolgiquexx Hopital La Pitiexx GERMANY Organisationsbuero des K.F.H. (Homburg/Saar) xx Martin-Luther Universitaet Hallexx Technischen Universitaet Dresdenxx (Contd)

19 2002 ISHLT Centers Reporting to the ISHLT Transplant Registry COUNTRY/Center Transplants Performed in 2000 and Reported to ISHLT Transplants Performed in 2001 and Reported to ISHLT GERMANY (contd) German Heart Institute (Berlin) xx Universitat Hamburg xx Universitaetsklinik (Koeln) xx University of Leipzig - Heart Center xx Kerckoff-Klinik der Max-Planck- Gesellschaft zur Forderung der Wissenschaften e.V. (Bad Nauheim) xx Klinikum der Universitaet (Heidelberg) xx Herz-und Diabetesentrum Nordrhein -Westfalen (Bad Oeynhausen) xx Chirurgische Universitaetsklinik/ Univ. Rostock (Freiburg Im Breisgau) xx Essen University Medical School xx I. Med. Klinik J. Gutenberg (Mainz) xx (Contd)

20 2002 ISHLT Centers Reporting to the ISHLT Transplant Registry COUNTRY/Center Transplants Performed in 2000 and Reported to ISHLT Transplants Performed in 2001 and Reported to ISHLT GERMANY (contd) der Heinrich-Heine-Universitat Dusseldorf xx Klinikum GroBhadern, Ludwig- Maximilians-Universitat Munchen xx Klinikum der Universitat Kaiserslautern x Chirurgische Universitatsklinik Heidelberg xx Medizinische Hochschule Hannover xx Universitatsklinik Gottingen xx Klinikum der Rheinisch- Westfalischen Technischen Hochschule Aachen xx Fulda Medical Center xx (Contd)

21 2002 ISHLT Centers Reporting to the ISHLT Transplant Registry COUNTRY/Center Transplants Performed in 2000 and Reported to ISHLT Transplants Performed in 2001 and Reported to ISHLT GERMANY (contd) Klinikum der J. W. Goethe University (Frankfurt am Main) xx Klinikum Der Christian-Albrechts- Universtat zu Kiel xx Transplantations-Zentrum (Frankfurt) xx Friedrich Schiller Universitaet (Jena) xx Klinikum Karlsburg x Klinik fuer Herzchirurgie Karlsruhe xx Medizinische Einrichtupgen der Universiteat, Nurenberg xx Chirurgische Univ. Klinik/Julius Maxmillians Universitaet (Wurzburg) x GREECE Onassis Cardiac Surgery Center xx (Contd)

22 2002 ISHLT Centers Reporting to the ISHLT Transplant Registry COUNTRY/Center Transplants Performed in 2000 and Reported to ISHLT Transplants Performed in 2001 and Reported to ISHLT IRELAND Mater Hospital xx ISRAEL Sheba Medical Center xx Hadassah University Hospital x ITALY Policlinico S. Orsola - Universita degli Studi x JAPAN Tohoku University, IDAC Hospital x Osaka University Hospital xx (Contd)

23 2002 ISHLT Centers Reporting to the ISHLT Transplant Registry COUNTRY/Center Transplants Performed in 2000 and Reported to ISHLT Transplants Performed in 2001 and Reported to ISHLT NETHERLANDS Heart-Lung Institute, University Hospital Utrecht xx Thoraxcenter - University Hospital Rotterdam xx University Hospital Groningen xx NEW ZEALAND Green Lane Hospital xx NORWAY Rikshospitalet - National Hospital of Norway x SINGAPORE National Heart Centre x SLOVENIA University Medical Center Ljubljana xx (Contd)

24 2002 ISHLT Centers Reporting to the ISHLT Transplant Registry COUNTRY/Center Transplants Performed in 2000 and Reported to ISHLT Transplants Performed in 2001 and Reported to ISHLT SWEDEN University Hospital of Lund xx SWITZERLAND Bern University Hospital xx UNITED STATES University of Alabama Hospital xx Baptist Medical Center, xx Arkansas Childrens Hospital xx The University Hospital of Arkansas xx University Medical Center, University of AZ xx Childrens Hospital Los Angeles xx Cedars Sinai Medical Center xx Loma Linda Univ. Medical Center xx (Contd)

25 2002 ISHLT Centers Reporting to the ISHLT Transplant Registry COUNTRY/Center Transplants Performed in 2000 and Reported to ISHLT Transplants Performed in 2001 and Reported to ISHLT UNITED STATES (contd) California Pacific Medical Center xx UCSD Medical Center xx University of CA San Francisco Medical Center xx Sutter Memorial Hospital xx Sharp Memorial Hospital xx UC Davis Medical Center x Stanford University Medical Center xx St Vincent Medical Center xx UCLA Medical Center xx USC University Hospital xx The Childrens Hospital, Denver xx University Hospital, Denver xx (Contd)

26 2002 ISHLT Centers Reporting to the ISHLT Transplant Registry COUNTRY/Center Transplants Performed in 2000 and Reported to ISHLT Transplants Performed in 2001 and Reported to ISHLT UNITED STATES (contd) Hartford Hospital xx Yale New Haven Hospital xx Childrens National Medical Center x Washington Hospital Center xx All Childrens Hospital xx Jackson Memorial Hospital xx St Lukes Hospital x Tampa General Hospital xx Tallahassee Memorial Hospital xx Shands Hospital at University of Florida xx Egleston Childrens Hospital xx Emory University Hospital xx (Contd)

27 2002 ISHLT Centers Reporting to the ISHLT Transplant Registry COUNTRY/Center Transplants Performed in 2000 and Reported to ISHLT Transplants Performed in 2001 and Reported to ISHLT UNITED STATES (contd) St Joseph Hospital of Atlanta xx St Francis Medical Center, Honolulu xx Univ. of Iowa Hospital and Clinics xx Childrens Memorial Hosp xx Loyola University Medical Center xx Northwestern Memorial Hospital x Rush Pres St Lukes Medical Center xx OSF St Francis Medical Center xx St. Johns Hospital x Univ. of Chicago Medical Center xx University of Illinois Hospital xx Clarian Health-Methodist/IU/Riley xx Indiana University Medical Center xx (Contd)

28 2002 ISHLT Centers Reporting to the ISHLT Transplant Registry COUNTRY/Center Transplants Performed in 2000 and Reported to ISHLT Transplants Performed in 2001 and Reported to ISHLT UNITED STATES (contd) Lutheran Hospital of Ft Wayne xx St Vincent Hosp. and Health Care Ctr xx Via Christi Regional Medical Center xx Jewish Hospital xx Kosair Childrens Hospital x Univ. of Kentucky Medical Center xx Ochsner Foundation Hospital xx Tulane University Medical Center xx Willis Knighton Medical Center xx Children's Hospital, Boston xx Massachusetts General Hospital xx New England Medical Center xx Brigham and Womens Hospital xx (Contd)

29 2002 ISHLT Centers Reporting to the ISHLT Transplant Registry COUNTRY/Center Transplants Performed in 2000 and Reported to ISHLT Transplants Performed in 2001 and Reported to ISHLT UNITED STATES (contd) UMass Memorial Medical Center x Johns Hopkins Hospital xx Univ. of Maryland Medical System xx Childrens Hospital of Michigan xx Henry Ford Hospital xx Univ. of Michigan Medical Center xx Abbott Northwestern Hospital xx St Marys Hospital, Rochester xx Fairview University Medical Center xx Barnes-Jewish Hospital xx Cardinal Glennon Childrens Hospital xx St Louis Childrens Hospital xx St Lukes Hospital of Kansas City xx (Contd)

30 2002 ISHLT Centers Reporting to the ISHLT Transplant Registry COUNTRY/Center Transplants Performed in 2000 and Reported to ISHLT Transplants Performed in 2001 and Reported to ISHLT UNITED STATES (contd) St Louis University Hospital xx Univ. of Missouri Hospital and Clinic xx University of MS Medical Center xx NC Baptist Hospital xx Carolinas Medical Center xx Duke University Medical Center xx UNC Hospitals xx Bryan LGH Medical Center East xx Newark Beth Israel Medical Center xx Robert Wood Johnson Univ. Hosp xx Presbyterian Hospital, Albuquerque xx Albany Medical Center Hospital xx The Presbyterian Hospital in NY City xx (Contd)

31 2002 ISHLT Centers Reporting to the ISHLT Transplant Registry COUNTRY/Center Transplants Performed in 2000 and Reported to ISHLT Transplants Performed in 2001 and Reported to ISHLT UNITED STATES (contd) Strong Memorial Hospital x Montefiore Medical Center x Mt Sinai Medical Center xx New York University Medical Center x Westchester County Medical Center x Cleveland Clinic Foundation xx Children's Hospital Medical Center, Cincinnati xx Medical College Hospital, Toledo xx Ohio State University Hospital xx Univ. of Cincinnati Medical Center xx University Hospital of Cleveland xx Integris Baptist Medical Center xx (Contd)

32 2002 ISHLT Centers Reporting to the ISHLT Transplant Registry COUNTRY/Center Transplants Performed in 2000 and Reported to ISHLT Transplants Performed in 2001 and Reported to ISHLT UNITED STATES (contd) St. Francis Hospital, Tulsa xx Providence Portland Medical Center xx Oregon Health Sciences Univ. Hosp xx Allegheny General Hospital xx Childrens Hospital of Pittsburgh xx Childrens Hospital of Philadelphia xx Penn State Milton S Hershey Med Ctr xx Hahnemann University Hospital Tenet xx Univ of Pittsburgh Medical Center xx Temple University Hospital xx The Hospital of the University of PA xx Cardiovascular Center of PR xx Medical University of SC xx (Contd)

33 2002 ISHLT Centers Reporting to the ISHLT Transplant Registry COUNTRY/Center Transplants Performed in 2000 and Reported to ISHLT Transplants Performed in 2001 and Reported to ISHLT UNITED STATES (contd) Baptist Memorial Hosp, Memphis xx St Thomas Hospital xx Vanderbilt University Medical Center xx Brooke Army Medical Center xx University Hospital, San Antonio xx Childrens Medical Center of Dallas xx Seton Medical Center xx Columbia Hosp at Medical City Dallas xx St Lukes Episcopal Hospital xx Methodist Specialty & Transplant Hosp xx University of Texas Medical Branch xx The Methodist Hospital, Houston xx (Contd)

34 2002 ISHLT Centers Reporting to the ISHLT Transplant Registry COUNTRY/Center Transplants Performed in 2000 and Reported to ISHLT Transplants Performed in 2001 and Reported to ISHLT UNITED STATES (contd) Christus Santa Rosa Medical Center xx St Paul University Hospital xx Baylor University Medical Center xx LDS Hosp xx University of Utah Medical Center xx Primary Childrens Medical Center xx Inova Fairfax Hosp xx Henrico Doctors Hosp xx MCV Hospitals xx McGuire VA Medical Center xx Sentara Norfolk General Hospital xx University of Virginia HSC xx Childrens Hosp Medical Ctr, Seattle xx (Contd)

35 2002 ISHLT Centers Reporting to the ISHLT Transplant Registry COUNTRY/Center Transplants Performed in 2000 and Reported to ISHLT Transplants Performed in 2001 and Reported to ISHLT UNITED STATES (contd) Sacred Heart Medical Center xx Univ. of Washington Medical Center xx Childrens Hospital of Wisconsin xx Froedtert Memorial Lutheran Hosp xx St Lukes Medical Center xx Univ. of Wisconsin Hosp. and Clinics xx UNITED KINGDOM Great Ormand Street Hospital for Children xx University of Glasgow/Glasgow Royal Infirmary xx Northern General Hospital xx The Freeman Hospital xx (Contd)

36 2002 ISHLT Centers Reporting to the ISHLT Transplant Registry COUNTRY/Center Transplants Performed in 2000 and Reported to ISHLT Transplants Performed in 2001 and Reported to ISHLT UNITED KINGDOM (contd) Harefield Hosp xx Wythenshawe Hospital xx St. George's Hospital x Queen Elizabeth Hospital xx Papworth Hospital xx

37 2002 ISHLT Data Currently Available on the ISHLT Web Site: http://www.ishlt.org 1.Quarterly reports of recent continent-specific statistics are available for general public: Transplant counts Tabulation of recipient, transplant and donor demographics Survival rates stratified by demographics 2.Quarterly reports for center-specific data are available for each center through the secure section of the ISHLT web site. If your center does not currently have access to the secure site, contact Denise Wise to obtain an ID and password 3.Registry Report slides will be available for download from the ISHLT web site on August 1.

38 2002 ISHLT Requesting Data from the ISHLT Registry Data request form is available on the ISHLT web site: http://www.ishlt.org PROCESS FOR SUBMITTING A DATA REQUEST: Complete form and send to Amanda Rowe Request will be reviewed by the appropriate Registry staff If approved, request will be processed and programmed. Results are usually sent out within 2 weeks of being received by analytical staff. DATA/ANALYSES: Datasets (patients and centers will not be identified) Simple descriptive statistics Multivariate analyses -- may require more extensive review


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