1. Health The Public Health Data Standards Consortium By Hetty Khan Health Informatics Specialist CDC/NCHS

2. Background of Consortium Resulted from workshop held on November 2-3, 1998 Sponsored by NCHS/CDC in conjunction with AHCPR and NCVHS Attended by 85 organizational representatives

3. Consensus Recommendation Organize Public Health and Health Services Research representation on standards development bodies Educate public health and research communities about data standards issues Participate in efforts to assure continued access to information

4. Consensus Recommendation Convene organizations around data standards issues Identify high priority data needs Seek formal representation on data content committees

5. Consortium members Participants include: –NCHS/CDC, AHCPR, HCFA, NCVHS –NAHDO, NAPHSIS, CSTE, ASTHO, AHSR Other organizations to include: – NACCHO, AMCHP, ASTPHLD, State Medicaid Directors, Cancer registries, mental health and substance abuse

6. Priority Items Inventory of Public Health data elements User-friendly data dictionary Identify high priority data needs Seek representation on data content committees Increase representation at standards development organizations

7. Inventory Inventory of current content requirements for state hospital discharge databases and other encounter databases –NAHDO project with AHCPR – NAHDO to : Design simple Information Model of data elements Identify variations in definitions of data elements Identify additional high priority data needs

8. Data Dictionary User-friendly data dictionary: – to communicate the content of standard claims transactions to non-technical audience to map data elements from NAHDOs Information Model to the standards not to duplicate efforts already accomplished e.g HL7, X12, Metadata registry efforts

9. Representation Increase participation in HL7 and X 12 –organizational memberships Representatives to NUBC and NUCC –Federal and state representative on each content committee –NUCC, May, 1999 (Denise Koo; Walter Suarez) –NUBC, August, 1999 (Marjorie Greenberg; Bob Davis)

10. Communication Web site: http://www.lewin.com/hipaa –workshop documents –meeting minutes Listserv: PH-CONSORTIUM-L

11. Planned Consortium meeting Consortium steering committee meeting, March 2000 –New organizational invitees –Organizational structure –Workplan