Presentation on theme: "Virginias Newborn Hearing Screening Program Tracking From Birth Pat T. Dewey, M.Ed. Program Manager Virginia Department of Health."— Presentation transcript:
Virginias Newborn Hearing Screening Program Tracking From Birth Pat T. Dewey, M.Ed. Program Manager Virginia Department of Health
Virginias Program Mandated by Code of Virginia Hospitals screen and inform parent Hospitals report to VDH VDH responsible for tracking Confidentiality also in the Code Consent not required
A Web-based, Integrated Data Management and Tracking System VISITS Virginia Infant Screening and Infant Tracking System
VISITS: General Information web-based, integrated tracking and data management system developed by the Virginia Department of Health through a contractual agreement with Health Informatics. major funding provided by Virginia Department of Mental Health Mental Retardation and Substance Abuse Services (DMHMRSAS), lead agency for Part C of IDEA. Title V funds used for project management.
General Information VISITS supports the following statewide programs: n Newborn Hearing Screening Program n VaCARES (Virginia Congenital Anomalies Reporting and Education System) n Newborn Metabolic Screenings n At-Risk (Child Find for Part C)
VISITS: Primary Features Tracks all infants born in Virginia. Provides a single point of entry for infant records. Provides a user-friendly mechanism to electronically transmit required data to a centralized database. Establishes a statewide, web-based centralized Oracle database.
Primary Features Allows immediate access to all infant records without the need for exporting or transferring data. Facilitates information sharing and improved communication among VDH programs.
Primary Features Provides ability to quickly and easily detect statewide trends and report statistics. Generates letters to ensure that infants testing positive receive the necessary follow-up services and information.
VISITS: Confidentiality n Firewall n Encryption n Password Protection n Assigned security rights
Data Items Test/equipment used Screeners name Screening results, each ear Setting Reason not screened Risk indicators for hearing loss
Record Identifiers System assigns a unique number No master index Linkages with birth certificate data is being pursue
Primary Care Providers Hospitals required to inform PCP VDH contacts PCP on infants who refer and infants lost to follow-up PCP has no access to VISITS Follow-up and tracking information entered by VDH
Audiologists Regulations require reporting to VDH Follow-up forms distributed statewide Form can be mailed or faxed Can be completed on line (program Web site) and sent via e-mail No access to VISITS
Parents Code of Virginia gives responsibility to VDH to establish and maintain the identification and tracking system Code allows VDH to contact families VDH sends letter to parent to remind them of the need for follow-up VDH sends letter when child identified with hearing loss
Collaborations Children with Special Health Care Needs Program Part C of IDEA New Pediatric Screening and Genetic Services Unit
Pediatric Screening and Genetic Services n Newly created within VDH, Division of Child and Adolescent Health n Director is Nancy Ford, MPH, RN n Will ultimately include the following genetics-related programs, some of which are currently within Division of Womens and Infants Health: n VaCARES n Virginia Newborn Screening Services n Virginia Newborn Hearing Screening Program n VDH representation to Part C – IDEA.