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From Diagnosis to Self-Actualization Jodee Crace, MA Cindy Lawrence, MA-CCC-A March 4, 2005 EHDI Conference Atlanta.

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Presentation on theme: "From Diagnosis to Self-Actualization Jodee Crace, MA Cindy Lawrence, MA-CCC-A March 4, 2005 EHDI Conference Atlanta."— Presentation transcript:

1 From Diagnosis to Self-Actualization Jodee Crace, MA Cindy Lawrence, MA-CCC-A March 4, 2005 EHDI Conference Atlanta

2 Introduction Purpose of presentation: A paradigm shift from the medical model of diagnosing hearing loss to an educational/human hearing loss to an educational/human relations model of identity formation relations model of identity formation

3 Fundamental Principle: People are internally compelled to respond to situations in ways that will support or be consistent with their beliefs. Point: Humans have the unique ability to define their identity, choose their values and establish their beliefs.

4 VALUES A principle that promotes well- being or prevents harm A principle that promotes well- being or prevents harm Our guidelines for success Our guidelines for success Our paradigm about what is acceptable Our paradigm about what is acceptable

5 Our Challenge: How will UNHS-EHDI support the VALUES that will support the journey of parents/families becoming self-actualized? How will UNHS-EHDI support the VALUES that will support the journey of parents/families becoming self-actualized? How will these processes create Deaf/HH babies who become self-actualized individuals? How will these processes create Deaf/HH babies who become self-actualized individuals?

6 Self-Actualization What?How?Why? Point: When the will and the emotions are in conflict, the emotions most often win. (American Psychologist: William James)

7 How do Providers Shape Families Responses: The meaning of diagnosis Objective Use of equipment to measure Scientific Medically oriented: presence or absence of sound

8 The meaning of diagnosis Diagnosis Medicine. Diagnosis Medicine. The act or process of identifying or determining the nature and cause of a disease or injury through evaluation of patient history, examination, and review of laboratory data. The act or process of identifying or determining the nature and cause of a disease or injury through evaluation of patient history, examination, and review of laboratory data. The opinion derived from such an evaluation. The opinion derived from such an evaluation. A critical analysis of the nature of something. A critical analysis of the nature of something. The conclusion reached by such analysis. The conclusion reached by such analysis. Diagnosis Biology. Diagnosis Biology. A brief description of the distinguishing characteristics of an organism, as for taxonomic classification. A brief description of the distinguishing characteristics of an organism, as for taxonomic classification.

9 Medical Provider Image of the Baby: (Study - 1 in 5 doctors) DiagnosisDiseaseDisability Medical Condition Objective Auditory Society

10 Explanation of Results Tone, Attitude, Comfort Level Tone, Attitude, Comfort Level 4 Approaches (Marion Downs, 1978) 4 Approaches (Marion Downs, 1978) Hit and Run Minimize the Problem Objectivity Action Oriented

11 Start with Diagnosis? or Identification? Accuracy of information Accuracy of information Identification of Identification of A disability, A disability, medical condition, medical condition, or state of being? or state of being? Medical diagnosis typically to determine treatment, fixing or cure. Medical diagnosis typically to determine treatment, fixing or cure.

12 Definitions Identify v. tr. To establish the identity of. To establish the identity of. To ascertain the origin, nature, or definitive characteristics of. To ascertain the origin, nature, or definitive characteristics of. To consider as identical or united; equate. To consider as identical or united; equate. To associate or affiliate (oneself) closely with a person or group. To associate or affiliate (oneself) closely with a person or group. To establish an identification with another or others. To establish an identification with another or others. Medieval Latin identific re, to make to resemble : Late Latin identit s, identity; see identity + Latin -fic re, -fy.] i·den ti·fi a·ble adj. Medieval Latin identific re, to make to resemble : Late Latin identit s, identity; see identity + Latin -fic re, -fy.] i·den ti·fi a·ble adj.

13 Key Points from Definition of IDENTIFY: to associate or affiliate to associate or affiliate psychological empathy psychological empathy has become common jargon has become common jargon

14 The Koinonia Connection The coming together in a solidified one- ness in an atmosphere of openness, honesty, trust, affirmation, support and encouragement. Greek term coined by Dave Weber, author of Sticks and Stones Exposed

15 Parents Image of the Baby Parents Imperfect Child New parent Stress Culturally unaccepted Unknown territory IsolationBurden Self defeated

16 Providing Messages Fear Fear Myths Myths Cultural incompetence Cultural incompetence Disability model Disability model Hearing perception of hearing society Hearing perception of hearing societyOR

17 Self analysis, our view of Deaf people Self analysis, our view of Deaf people How do our feelings set a tone and send messages to parents How do our feelings set a tone and send messages to parents Understanding the self actualization process is critical to delivering the news Understanding the self actualization process is critical to delivering the news

18 Self-Actualization Survival Security Social Acceptance Self Esteem SA

19 Traits of Self-Actualized Person Knowing who you are and your beliefs Comfortable with yourself Views learning and experience as an ongoing process EmpoweredConfidentInsightfulValuable High Self-respect High Self-respect High Self-esteem Independent

20 How can a Deaf/HH Person be Self- Actualized? Confidence instilled at birth Encouragement from healthy others Ongoing process of learning Accepting mistakes Taking risks Having role models Exposure to many opportunities/experiences Being balanced Feeling Whole Confidence is instilled at birth Feeling Proud as a Deaf/HH Person Self Determination of ones own life plans

21 Transition from: Diagnosis to Ability Model Parents benefit from: Support in letting go of predetermined image Support in letting go of predetermined image Time to grieve in natural healthy way Time to grieve in natural healthy way Replacing old vision with new hope Replacing old vision with new hope Strategies to help them feel capable as parents of this child Strategies to help them feel capable as parents of this child EMPOWERMENT***SELF AWARENESS*** SELF-ACTUALIZATION

22 From Diagnosis to Self-Actualized Person Medical Model Failed screening Failed screening Diagnosis Diagnosis Audiogram and ABR show hearing loss/impairment: such as mild, moderate, severe, profound Audiogram and ABR show hearing loss/impairment: such as mild, moderate, severe, profound Self Actualized Model Refer Refer Identification Identification Audiogram of familiar sounds shows hearing levels and ranges of hearing Audiogram of familiar sounds shows hearing levels and ranges of hearing

23 From Diagnosis to Self-Actualized Person Medical Model Prescribes technology/surgery Prescribes technology/surgery Prescribes treatment plan Prescribes treatment plan Self Actualized Model Fits amplification Fits amplification Teams with parents to find/investigate resources Teams with parents to find/investigate resources

24 From Diagnosis to Self-Actualized Person Medical Model Clinic-directed therapy for the child Clinic-directed therapy for the child Dependent on technology Dependent on technology Enables parent (therapist/teacher) Enables parent (therapist/teacher) Self Actualized Model Relationship based service providing unbiased support Relationship based service providing unbiased support Technology enhances skills and abilities Technology enhances skills and abilities Empowers family (mentors, role models as resources) Empowers family (mentors, role models as resources)

25 From Diagnosis to Self-Actualized Person Medical Model Exclusionary/isolation Exclusionary/isolation Transmission of information Transmission of information Make either/or choices Make either/or choices Self Actualized Model Collaborative/ Collaborative/ community sense Interactive- experiential learning Interactive- experiential learning Comprehensive opportunities Comprehensive opportunities

26 From Diagnosis to Self-Actualized Person Medical Model Disability Disability Sub-Culture Sub-Culture Vocationally limited Vocationally limited Self Actualized Model Identity Identity Diversity Diversity Unlimited lifelong potential Unlimited lifelong potential

27 Take Home Points: Self Analysis of our values Self Analysis of our values Understanding the hierarchy of human needs Understanding the hierarchy of human needs Identify as deaf or Identify hearing levels vs. diagnosis and impairment Identify as deaf or Identify hearing levels vs. diagnosis and impairment Check your messages/tone: pass/refer (not fail); hearing levels (not loss or impairment) Check your messages/tone: pass/refer (not fail); hearing levels (not loss or impairment) How do you identify with parents? How do you identify with parents? How do you help parents identify with their deaf or hard of hearing baby? How do you help parents identify with their deaf or hard of hearing baby?

28 More take home points… Work with Deaf community Work with Deaf community Gain tools for teaming with members of the Deaf Community Gain tools for teaming with members of the Deaf Community How are parents introduced to deaf and or hard of hearing adults? What are the messages and comfort levels? How are parents introduced to deaf and or hard of hearing adults? What are the messages and comfort levels?

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30 From Diagnosis to Self-Actualization Thank you for coming to our presentation! For further inquiries and/or discussion opportunities about this topic: Email – JCrace@isfd.state.in.us JCrace@isfd.state.in.us CLawrence@isfd.state.in.us CLawrence@isfd.state.in.usCLawrence@isfd.state.in.us Websites: http://www.performance-unlimited.com/samain.htm http://www.performance-unlimited.com/whyaffir.htm


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