Presentation on theme: "A National Technical Assistance System for Early Hearing Detection and Intervention Programs in the United States."— Presentation transcript:
A National Technical Assistance System for Early Hearing Detection and Intervention Programs in the United States
Number of Hospitals Doing Universal Newborn Hearing Screening Number of Programs
. Status of Universal Newborn Hearing Screening in the United States. Percentage of Births Screened 90%+ 21 - 50% 1 - 20% 3 51 - 90%
Tremendous Progress During the Last Decade Less than 30 with UNHS in 1993; compared with almost 1400 today Almost 2 million babies are screened every year prior to discharge 32 states have passed newborn hearing screening legislation The federal government is providing financial support to encourage expansion
The Other Side of the Coin.... 2,800 hospitals are not yet screening for hearing loss More than 2 million babies are NOT screened every year prior to discharge Most states which have passed legislation have not yet implemented it Only 9 states (accounting for 7% of the births) have implemented reasonable state wide programs
Status of EHDI Programs in the United States Universal Newborn Hearing Screening Effective Tracking and Follow-up as a part of the Public Health System Appropriate and Timely Diagnosis of the Hearing Loss Appropriate and Timely Early Intervention Services A Medical Home for all Newborns Culturally Competent Family Support Elimination of geographic and financial barriers to service access
Efforts by the Federal Government to Promote Early Identification of Hearing Loss Federal funding for research and program development NIH Consensus Development Conference in 1993 Consortium for Universal Newborn Hearing Screening funded in 1993 Marion Downs National Center for Infant Hearing Established in 1996 National EHDI Technical Assistance System Established in 2000
Goal of the National EHDI Technical Assistance System Every child born with a hearing loss will be identified before 3 months of age and provided with timely and appropriate early intervention before 6 months of age Every family of an infant with hearing loss will receive culturally competent family support as desired All newborns will have a medical home State will have tracking and data management systems which are linked to appropriate public health information systems
National EHDI Technical Assistance System Web site (www.infanthearing.org) Telephone Technical Assistance Distribution of printed materials Training Workshops
National EHDI Technical Assistance System (continued) EHDI Network members located in each of ten geographic regions
- VIII IX VII VI V IV III II I X Guam, American Samoa, Marshall Islands, Palau, No. Mariana Islands, Fed. Micronesia Puerto Rico Virgin Islands Region I (38% currently born in UNHS hospitals) Antonia Maxon Region IV (46% currently born in UNHS hospitals) Faye McCollister Region III (49% currently born in UNHS hospitals) Sean Kastetter Region VI (38% currently born in UNHS hospitals) Karen Ditty Patti Martin Region VII (33% currently born in UNHS hospitals) Les Schmeltz Region IX (23% currently born in UNHS hospitals) Randi Winston Yusnita Weirather Region II (16% currently born in UNHS hospitals) Beth Prieve Region V (26% currently born in UNHS hospitals) Karen Munoz Region X (21% currently born in UNHS hospitals) Curt Whitcomb Region VIII (91% currently born in UNHS hospitals) Terry Foust Figure 2. National EHDI Assistance Network* = indicates the locations of MCHB Regional Offices which will collaborate with NCHAM. * experience and expertise of Network members described briefly on Table 1.
National EHDI Technical Assistance System (continued) EHDI Network members located in each of the MCHB Regions Annual National EHDI Conference
National EHDI Technical Assistance System (continued) EHDI Network members located in each of the MCHB Regions Annual National EHDI Conference Collaboration with Other Groups and Agencies
National EHDI Technical Assistance System (continued) Groups actively promoting and assisting with EHDI activities –AG Bell, NCHH, ASHA, AAA, JCIH, AAP, ASDC Relevant groups whose main focus is elsewhere –MCHB Regional Staff, SKI-HI, NEC*TAS, Early Head Start, 0-3, Family Voices, NCCC, KidsNET, STC, AMCHP, AHEC Collaboration with Other Groups and Agencies
www.infanthearing.org Some babies are born listeners... Others need your help!
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