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1 Sue Ziebland DIPEx Research Group University of Oxford

2 DIPEx (personal experiences of health and illness) An electronic multimedia resource available on the internet and DVD Stand alone qualitative interview studies of illness experiences Q&As and evidence based information

3 Andrews story


5 Completed DIPEx sites: depression prostate cancer bowel cancer breast cancercervical screening breast screening testicular cancer lung cancer ovarian cancer cervical cancerliving with dying epilepsy heart failurehypertension heart attack chronic pain pregnancy dementia (carers) congenital heart disease (parents) antenatal screening RA

6 DIPEx research methods literature and field review, advisory panel wide sample of people from all over UK - at different stages and from different backgrounds interviews at home unstructured and semi-structured sections digital video and audio recorded Ethics approval for broadcasting, teaching and research

7 Who uses DIPEx? Approx one million hits per month Patients, their families and the general public Teachers – medical students, nurses, social science, research methods and health policy Researchers (secondary analysis – archive for social science & history of medicine) Health professionals & policy makers (what issues are important to patients) - NICE Patient representatives (e.g. on committees)

8 teenage cancer sexual health diabetes epilepsy

9 DIPEx funding( more needed!) Ethical funding policy – no advertising on site Funding for individual conditions from health charities (e.g. ARC, Alzheimers Society, Cancer Research UK, BUPA Foundation, BHF, Macmillan) and trusts (e.g. Citrina, Welton and Warburg) Department of Health, Section 64, National Screening Committee Donations to the DIPEx charity

10 More information from The Website: & DIPEx, University Department of Primary Health Care Institute of Health Sciences Oxford OX3 7LF Tel + 44 (0)

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