1. Leading research for life-changing results ABC Research Network Seminar Connected and Networked Brad Webb Associate Director, Strategy and Engagement 12 September 2014

2. Growing children, young people and families research capacity in the Hunter: a new governance structure

3. The drive for change… A strong, representative and authoritative voice: 1.Develop clear and focused strategy 2.Advocate for paediatric research and funding 3.Develop higher levels of research capacity 4.Increase research translation and collaboration 5.Build connectivity and effective collaboration 6.Development of resource prioritisation

4. Summary 1.Children, Young People and Families Research Executive 2.Children, Young People and Families Research Advisory Committee 3.ABC Children’s Research Network 4.Hunter Children’s Research Foundation (HCRF)

5. Children, Young People and Families Research Executive To develop and build high quality, innovative research that leads to improved clinical care, better treatment options, prevention of disease and disadvantage, and the enhanced wellbeing of children, young people and families within the Hunter New England Local Health District.

6. Children, Young People and Families Research Executive 1.5 year strategy 2.Review and feedback on research plans 3.Priorities for funding and resource allocation 4.Appoint members to Advisory Committee 5.Approve allocation of HCRF funds 6.Point of contact

7. Children, Young People and Families Research Executive Chair Joerg Mattes Executive Michael Nilsson Trish Davidson Bruce Whitehead Pat Marks Paul Craven Janelle Shakespeare Lorraine Gardner

8. Children, Young People and Families Research Advisory Committee To promote and facilitate the implementation of actions addressing the strategic goals for Paediatric and Child Health Research within the Hunter New England Local Health District.

9. Children, Young People and Families Research Advisory Committee 1.Develop research plans 2.Assess and recommend HCRF funding grants 3.Strengthen paediatric research collaboration 4.Strengthen paediatric and adult research collaboration 5.Advocate through HMRI Research Council 6.Liase re donor funding opportunities

10. Children, Young People and Families Research Advisory Committee Chair Joerg Mattes Advisory Group Members Frank AlvaroNikola Bowden Clare CollinsAdam Collison Trish CrockElizabeth Kepreotes Scott NightingaleCarmel Smart Koert de WaalLuke Wolfenden

11. ABC Children’s Research Network Chair Clare Collins Deliverables 1.Communication and dissemination 2.Provide networking opportunities 3.Outreach and advocacy

12. Hunter Children’s Research Foundation (HCRF) 1.Fundraising strategy 2.Conduct fundraising activities. Fundraising auspiced under HMRI http://www.hmri.com.au/hcrf/

13. Hunter Children’s Research Foundation (HCRF) Chair Janelle Shakespeare Secretary / Treasurer Lorraine Gardner Committee Natasha BeyersdorfSheridan Ferrier Judy Hogan Helen Ancuk Sheryl Nisner

14. Questions To develop and build high quality, innovative research that leads to improved clinical care, better treatment options, prevention of disease and disadvantage, and the enhanced wellbeing of children, young people and families within the Hunter New England Local Health District.