1. www.uhcanohio.org Cathy Levine Executive Director UHCAN Ohio clevine@uhcanohio.org Consumer Advocate Beginners’ Guide to Transparency: Using Data to Win Policy Change

2. Consumer Advocate Beginners’ Guide to Transparency: Using Data to Win Policy Change Cathy Levine, Families USA Conference 2014 2 Why Should Consumer Advocates Care About Transparency? Really, do you want them deciding what’s good for us? Health care costs too much US health care quality/outcomes below other nations - disparities If you don’t measure it, you don’t know what to fix Current cost controls disproportionately fall on backs of consumers – especially highest needs and lowest income Payers/employers, providers, policymakers doing reforms Should consumers have a voice in reshaping payment and delivery of health care?

3. Consumer Advocate Beginners’ Guide to Transparency: Using Data to Win Policy Change Cathy Levine, Families USA Conference 2014 3 Case Example: Ohio Governor Kasich, 2011, creates Office of Health Transformation Website for “greater transparency” Regular reports on what they are doing – little or no data Much alignment happening in private sector initiatives, with OHT input – no consumer involvement Governor’s Advisory Council on Payment Reform - ceremonial Major decisions being made behind closed doors

4. Consumer Advocate Beginners’ Guide to Transparency: Using Data to Win Policy Change Cathy Levine, Families USA Conference 2014 4 What We’ve Done Successfully in Past Established broad, diverse coalitions for organized consumer voice United around principles Developed recommendations Supported administrative, legislative proposals when aligned Building relationships with stakeholder groups Built consumer voice in new models of care Patient Centered Medical Homes Integrated Care Demonstration for Dually Eligible Ohioans Local Initiatives, e.g. Health Collaborative of Greater Cincinnati “Make the Right Call” – education campaign

5. Consumer Advocate Beginners’ Guide to Transparency: Using Data to Win Policy Change Cathy Levine, Families USA Conference 2014 5 Successes Thus Far Seat on Ieadership body of Ohio Patient Centered Primary Care Collaborative Two “Learning Centers” focus on Consumer Engagement Seat on Gov’s Council on Payment Reform Requirement in Ohio’s integrated care demonstration that MCOs must have consumer advisory councils tied to governance Foot in the door

6. Consumer Advocate Beginners’ Guide to Transparency: Using Data to Win Policy Change Cathy Levine, Families USA Conference 2014 6 What You Can Do – Build Campaign Form policy team of consumer advocates Find state-based expert help – public employees/retirees unions, think tanks, universities Find out what’s going on – build on what’s underway Form coalition Organize around Payment Reform and models of care Principles Issue reports and develop proposals from broad coalitions Build strategic alliances on specific issues Wage grassroots campaign w/stories

7. Consumer Advocate Beginners’ Guide to Transparency: Using Data to Win Policy Change Cathy Levine, Families USA Conference 2014 7 Resources Catalyst for Payment Reform – http://www.catalyzepaymentreform.org/how-we-catalyze/special- initiatives/price-transparency http://www.catalyzepaymentreform.org/how-we-catalyze/special- initiatives/price-transparency National Conference of State Legislatures: http://www.ncsl.org/research/health/transparency-and-disclosure- health-costs.aspx http://www.ncsl.org/research/health/transparency-and-disclosure- health-costs.aspx CMS.Gov- http://innovation.cms.gov/initiatives/state-innovations/: state innovation models http://consumersunion.org/topic/health-care/health-care-costs/ www.uhcanohio.org

8. Consumer Advocate Beginners’ Guide to Transparency: Using Data to Win Policy Change Cathy Levine, Families USA Conference 2014 8 Contact Me! Cathy Levine UHCAN Ohio clevine@uhcanohio.org 614-456-0060 x222 www.uhcanohio.org Find us on: UHCAN Ohio 370 S. 5th St Suite G3 Columbus, OH 43125