1. Tracking from Birth: Massachusetts Universal Newborn Hearing Screening Program MCHB/CDC Annual Meeting on Successful Statewide EHDI Programs Presenter: Janet M. Farrell, Director February 2002

2. Chapter 243 of the Acts of 1998 & DPH Universal Newborn Hearing Screening Guidelines Birth hospital and birth center requirements –Perform hearing screening on all newborns –Submit protocols to DPH for approval –Data agreement with DPH Program statistics (aggregate) Screening data

3. Electronic Birth Certificate System Stakeholders Registry of Vital Records and Statistics Genesis Systems MDPH Bureau of Family and Community Health, Office of Statistics and Evaluation

4. Electronic Birth Certificate System Birth data entered at facility Downloaded regularly to Vital Records Daily updates to Childhood Hearing Data System Total delay approximately 5 days from DOB Birth Facility Vital Records BFCH OSE CHDS

5. Legal –General demographics Confidential –Parental demographics and information Medical –Confidential medical information including prenatal care, labor and delivery procedures, maternal & newborn risk indicators, medical conditions, neonatal procedures, etc. Electronic Birth Certificate System

6. EBC & Universal Newborn Hearing Screening

8. Massachusetts Childhood Hearing Data System (CHDS) Statewide tracking and surveillance system Objectives: Ensure timely screening, diagnosis, and intervention; Long-term research and collaboration; Develop epidemiological profile for MA

9. CHDS: Data Sources CHDS EBC Legal/Demographic Medical/Confidential Screening Diagnostic Assessment Procedures Type/Degree of Loss Risk Indicators Family contact Follow-up Early Intervention Medical Home

10. UNHSP/CHDS and Vital STEPS Objective: Develop a central database within MDPH with a common data and application architecture Assist to eliminate duplication of effort in data collection Increase capacity of DPH to track service delivery UNHSP/CHDS currently working towards integration

11. Future Directions & Challenges Evolution to web-based CHDS though Electronic Birth Registration and Vital STEPS Further data linkages with existing state programs (i.e. Early Intervention) Ensure timely screening, diagnosis, and intervention for home and out-of-state births