1. Open Membership Meeting and Leadership Forum June 5, 2011 St. Paul, Minnesota

2. June 5, 2011 St. Paul, Minnesota Margaret A. Nygren, EdD, Executive Director AAIDD Open Membership Meeting and Leadership Forum

3. A Couple of Things About AAIDD Mission AAIDD promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities. Goals Enhance the capacity of professionals who work with individuals with intellectual and developmental disabilities. Participate in the development of a society that fully includes individuals with intellectual and developmental disabilities. Build an effective, responsive, well-managed, responsibly-governed, and sustainable organization.

4. Structure AAIDD is a membership organization Governed by a Board of Directors elected by the membership Standing and ad-hoc committees of the Board Supported by 12 staff, a number of contractors, and numerous volunteer leaders Components are: Geographical units, of regional, state, provincial, and student Chapters. Professional groups, including divisions, action groups, SIGs, and task forces Fellows

5. Major Functions The major functions of the Association are to Support its members’ leadership in activities that affect people with intellectual and developmental disabilities. Publish and promote cutting edge research, tools, and materials that inform policy and practice. Develop and implement educational opportunities for professionals, policy makers, and others; and Engage in activities that promote progressive public policy.

6. THE WORK OF THE ASSOCIATION Reviewing the past 12 months and projecting into the future on

7. Membership!

8. Activities over the past 12 months Change in membership structure to allow differing benefit packages at costs tied to the package Introduction of 2 new member benefits: – weekly Member Update eblast – monthly Field Notes Investment in a new association management software platform Staffing changes to support membership goals Membership!

9. Current AAIDD Membership by Type Type% Basic ($75) 34% Classic ($125) 10% Standard ($175) 36% Premium ($250) 5% International Electronic ($50) 2% Emeritus 13% Total: 100% Students receive a 20% discount on any membership category

10. Planned activities for the coming year Build membership through targeted outreach – regional targets – partnership targets – Professional interest targets Development of new member benefits: – additional monthly electronic publication – discounts on new educational offerings Build partnerships with other national organizations that advance membership goals Delegations – Cuba in 2011 – Brazil in 2012 Membership!

11. Education

12. Activities over the past 12 months Held webinars at about the rate of 1 per month on a variety of topics Provided 2-day trainings on Positive Behavioral Supports and Supervisor Training Launched new online learning program on the Essential Learning platform Developed 2011 conference Education

13. Planned activities for the coming year Build the content and capacity of the online learning platform Continue to host webinars at least monthly Continue our current educational partnership with The Arc through its Autism NOW project Provide a full day symposium at the 2012 IASSID conference Develop 2012 AAIDD conference Co-sponsor the Coleman Institute and the ANCOR Technology conferences Education

14. Publications

15. Activities over the past 12 months Maintained strong journals program Managed international translations and publishing program Released two titles – End-of -Life Care for Children and Adults with Intellectual and Developmental Disabilities, edited by Sandra Friedman and David Helm – Supervisor Training Curriculum and Trainee Guide by Dennis Reid, Marsha Parsons, and Carolyn Green Publications

16. Planned activities for the coming year Journals – Transition to new editor of IDD – Transition to Highwire platform for journals access Books Released at this conference! – Forging a Federal/State Partnership by Robert Gettings – 2011 update to the State of the States by David Braddock et al Publications

17. Assessment Tools

18. Activities over the past 12 months Supports Intensity Scale (SIS) – Staffing changes to support program goals – Refresh of the tool underway – SIS for Children being normed Diagnostic Adaptive Behavior Scale (DABS) – Tool developed, final testing underway Assessment Tools

19. In Use State Wide In Use at the County or Provider Level Under Consideration for State Wide Use SIS ® in North America

20. SIS ® Worldwide In Use State Wide In Use at the County or Provider Level Under Consideration for State Wide Use AndorraCanadaFranceJapanSpain ArgentinaChileIcelandMexicoTaiwan AustraliaColumbiaIrelandNetherlandsUnited States BelgiumChinaIsraelPortugal BrazilCzech RepublicItalySouth Korea

21. Planned activities for the coming year Supports Intensity Scale (SIS) – Release of refreshed SIS in late 2012 – Release of SIS for Children in 2013 – Ongoing translation, training, and state adoption efforts Diagnostic Adaptive Behavior Scale (DABS) – Release in early 2012 Assessment Tools

22. Policy

23. Activities over the past 12 months Active member of the Consortium for Citizens with Disabilities (CCD) Co-sponsored the annual Disability Policy Seminar with 5 other national organizations Submitted Amicus briefs on Atkins cases Contributed to joint policy statements with The Arc Submitted comments on Rosa’s law legislation, plans to add a “wandering” code to the ICD-9-CM, others Contributed to the popular press on disability issues Policy

24. Environmental Health Initiative Chemical Policy Reform – Legislative reform efforts included sign on letters, participation in Congressional hearings and briefings, and commentary on draft legislation – Executive branch efforts included meetings with key federal staff to advance reform efforts and commentary on proposed rules. Education and Outreach – Hosted 4 Research and Science webinars and 6 Policy webinars (archived on the website) – Ongoing work with other national and state organizations to advance reform goals – Co-hosted Health Advocacy meeting in DC in January – Contributed to the popular press on issues of environmental health – Holding a post conference workshop on the science, policy, and economics of environmental exposures and the health of people with disabilities.

25. Planned activities for the coming year Continue all ongoing policy activities Continue to provide comments on draft legislation, proposed rule making, and other federal activities that affect people with intellectual disabilities and their families Policy

26. Finances

27. 2010 REVENUE, GAINS, AND OTHER SUPPORT $3,433,120 Sales of Books & Assessment Tools $1,346,833 Journal Subscriptions $707,723 Membership Dues $497,262 (14%) Fees $411,937 Grants, Awards, & Donations $245,117 Investment Income $122,737 Reprints & Royalties $62,144 Miscellaneous $39,367

28. 2010 EXPENSES $3,220,157 Salaries & Benefits $1,109,596 Depreciation $35,990 Fees for Services $656,106 Information Technology $478,498 Office Expenses $378,607 Occupancy $309,632 Travel $134,815 Conferences & Meetings $72,248 Inventory Adjustments $5,959 Insurance $28,031 Advertising $10,174 Taxes $491

29. Planned activities for the coming year We will – Adhere to a conservative budget for 2011 and plan for modest growth in 2012 – Invest in activities that support goals for membership, education, publications, assessments, and policy – Seek out new funding sources through grants and partnerships Finances

30. UPCOMING CONFERENCES & EVENTS Alliance for Full Participation November 17-18, 2011 (Washington, DC) AAIDD Cuba Delegation October 16-21, 2011 (Havana and TBD) Disability Policy Seminar April 23-26, 2012 (Washington, DC) AAIDD Annual Meeting June 2012 (Charlotte, NC) IASSID World Congress July 9-14, 2012 (Halifax, Nova Scotia) AAIDD Brazil Delegation October 20-28, 2012 (Sao Paulo & Rio de Janeiro)

31. QUESTIONS AND COMMENTS