1. Patient Stories as an agent for change in the 1000 Lives Campaign 27 th January 2010 Presenter: Sarah Puntoni

2. Patient Stories as an agent for change in the 1000 Lives Campaign Wales 3 million people All Hospitals, Primary Care and Ambulance services Six content areas: - Leadership - Critical Care/Rapid response - Medicines - Healthcare associated infection - Surgical care - General medical and surgical care * Transforming care (pilot sites) Two aims: - To save 1000 lives - To avoid 50,000 episodes of harm

3. Patient Stories as an agent for change in the 1000 Lives Campaign Tools for change Model for Improvement National/local networks Measurements for improvement Patient stories

4. Patient Stories as an agent for change in the 1000 Lives Campaign Collection of Stories Application of Stories Patient Experience

5. Patient Stories as an agent for change in the 1000 Lives Campaign Planning Why collect stories Finding the stories Framing the questions Holding the interview Storage and retrieval Connecting Content areas Hearts and minds Healthcare improvement Local feedback Technology Written, audio, video Photography Digital Stories Education Media Research Learning Inspire Patient Narrative Collection Application

6. Patient Stories as an agent for change in the 1000 Lives Campaign Education Media Research Learning Inspire Purpose: To improve care How: Generating dialogue within teams; identifying needs; creating improvements, feedback outcomes Campaign: Learning Sessions, How to Guides, Intranet dialogue. Application

7. Patient Stories as an agent for change in the 1000 Lives Campaign Concern for Dad By Susanna Haynes and The Welsh Ambulance Services NHS Trust

8. Patient Stories as an agent for change in the 1000 Lives Campaign Education Media Research Learning Inspire Purpose: To provide motivational reminders to frontline staff of ‘Why they do what they do’ How: Distribute for use on Trust intranets, newsletters and in team meetings and conferences Campaign: Newsletters, E-bulletins, intranet/websites. Application

9. Patient Stories as an agent for change in the 1000 Lives Campaign

10. Education Media Research Learning Inspire Purpose: To see the patient as equal to the treatment; enabling a focus on the patient and not just the outcomes. How: Including in lessons, course syllabus, giving examples of good and poor practice for discussion Campaign: Learning Session, How to Guides, Intranet dialogue Application

11. Patient Stories as an agent for change in the 1000 Lives Campaign Stuart’s Story

12. Patient Stories as an agent for change in the 1000 Lives Campaign Education Media Research Learning Inspire Purpose: To validate the Campaign; Change a public mindset; Endorse good work and draw attention to flaws in the system How: Features in press/TV/web Campaign: Press Releases, Case Studies, Feature articles Application

13. Patient Stories as an agent for change in the 1000 Lives Campaign Martin’ story

14. Patient Stories as an agent for change in the 1000 Lives Campaign 1 story – 4 applications One patient story has the potential to provide: Learning – to improve care; Inspiration – to provide motivational reminders to frontline staff; Education – enabling a focus on the patient, as well as the outcomes; A media resource – drawing attention to good work, including the lessons that are being learnt and implemented.

15. Patient Stories as an agent for change in the 1000 Lives Campaign 1 Story - 4 Applications Collecting stories for the 1000 Lives Campaign Media Purpose: To validate the Campaign; Change a public mindset; Endorse good work and draw attention to flaws in the system How: Features in press/tv/web Campaign: Press Releases, Case Studies, Feature articles Patient narrative Maybe captured as a written account, or recorded interviews. Best to consider all potential uses and prepare accordingly Learning Purpose: To improve care How: Generating dialogue within teams; identifying needs; creating improvements, feedback outcomes (from Discovery) Campaign: Learning Sessions, How to Guides, Intranet dialogue. Education Purpose: To see the patient as equal to the treatment; enabling a focus on the patient and not just the outcomes. How: course syllabus, lectures, etc Campaign: Learning Session, How to Guides, Intranet dialogue Inspire Purpose: To provide motivational reminders to frontline staff of ‘Why they do, what they do’ How: Distribute for use on Trust intranets, newsletters and in team meetings and conferences Campaign: Newsletters, E-bulletins, intranet/websites. Planning the Interviews Finding the stories Framing the questions Holding the interview Storage and retrieval Campaign Connectors Content areas Hearts and minds Healthcare improvement Local feedback Technicalities Written, audio, video Editing Photography Determining Uses Research Stories used as part of research projects should be based in perception and adherence to the truth of the participants experience. The Campaign work does not focus on this use.

16. Patient Stories as an agent for change in the 1000 Lives Campaign Sarah.Puntoni@wch.wales.nhs.uk www.1000livescampaign.wales.nhs.uk