PHASE I: BEGAN 1988 4500 ENROLLED PHASE II: BEGAN 1993 3900 ENROLLED PHASE III: BEGAN 1997 3500 ENROLLED PHASE IV: BEGAN 2000 3600 ENROLLED FAMILY STUDY PHASE V: BEGINS MAY 2006 STRONG HEART STUDY
Participants are volunteers They come to us with many burdens » Sophia is a 45 year old grandmother raising 3 grandchildren, she works full time and has no leave available. » Tim is a rancher and has started calving. He lives 20 miles out of town and does not have help to watch his cow herd. His work load will increase as the Spring and Summer months progress.
» Carrie is out of work and is living with her boyfriend’s family. Her oldest son has been skipping school and ended up in Juvenile Detention Center (JDC) last night. » Florence has been in the hospital with cellulitis. The doctor told her that she is in the early stages of ESRD. She is tired of being handled by medical personnel and has a difficult time getting around but does not like to use her cane in public.
Be Professional 1. It is important to be confidential with peoples information. 2. Be accountable, do what you say. ( If you open at 8:00a.m. make sure you are ready to start seeing participants.) 3. Dress professionally, use name tags so participants know who you are, clothes should be neat and clean, lab coats clean, shoes that will protect your feet. 4. Don’t take things personally. This is not about you, it’s about your volunteer and their commitment to your project. Without them you do not have a project.
5. Keep personal issues at home, don’t talk about your family issues at work, don’t talk about what is going on in the community. People will wonder if you talk about them when they are not there.
Be responsible for what comes out of your mouth.
Remember: Bad news travels 500 times faster than good news.
6. Be a good listener, that is why we have two ears and one mouth. Sometimes our participants just need someone to share their lives with. ➢ Listening to others honors them. It tells them that they are worthwhile, that you value them. 7.Be prepared when participants come in. ➢ Know your equipment. ➢ Be familiar with and follow your protocols. ➢ Educate yourself and your staff.
Education Be certain that the information that you or your staff is giving out is correct.
8. Be A Team Builder The people you work with will have many different talents. Some people might have the ability to talk with any age participant and make them feel comfortable. Some will have the talent to work with the computers. Some people might have the knowledge of peoples names and how people in the community are related. Some are comfortable running the equipment such as blood pressure machines, or drawing blood.
Sometimes supervisors have the ability to pick and choose their staff. More often supervisors have to work with the people who apply. Good teams 1. Recognize talents and develop them to best serve the project. 2. Are made up of people of different ages and both male and females gender. 3.Work to improve communication skills 1.Utilize Native speakers. 2.Develop improved communication techniques. 3.Document communication. 4.Call people on their negative behaviors.
Remember: Professionalism is Respect Remember: Professionalism is Respect
Respect Our job is to make participants feel better for having taken part in the research project. 1. Be aware of your tone of voice, this tells people if you are respecting them. 2. Be aware of your facial expression and body language, do you smile, do you look at people when you speak or when they are talking to you. In different cultures, it is ok to look at people when speaking, and in some places it shows disrespect.
4. After being NPO offer a snack and drink. 3. Make your office area comfortable for the participant: 1. Make sure you have adequate seating. 1. Make sure you have adequate seating. 2. Offer T.V. or reading material with good lights. 2. Offer T.V. or reading material with good lights. 3. Have a clean restroom available. 3. Have a clean restroom available.
Be Flexible 1. Have office hours that will accommodate the working age population, the elderly and those with children. 2.Have lunch hours open for participants who work. 3.Make home visits to the elderly and help them do as much as they can in the home. 4. Provide a ride, many people may need transportation to get to the research office. 5. If a screening takes many hours schedule half on one day and finish the next day.
Educate and Disseminate 1. Make posters and check frequently that they are still hanging on bulletin boards. 2. Be involved in health fairs. 3. Do interviews on your local radio. 4. Write a newspaper article about your research project and educate your community about a health issue. 5. Visit schools to teach children about why we do research projects. 6. Signs out by the street, telling who we need to volunteer and what our office hours are. 6. Signs out by the street, telling who we need to volunteer and what our office hours are.
People don’t care about what you know until they know how much you care.