Presentation on theme: "Autism and the Hispanic Community"— Presentation transcript:
1 Autism and the Hispanic Community Mariela Maldonado- Bilingual parent Advocate- Autism Society of NC
2 What is autism spectrum disorder? A neurobiological disorder of development that causes differences in the way information is processed. This difference affects the ability to:Understand and use language to communicateUnderstand and relate to people, events and objectsUnderstand and respond to sensory stimuliLearn and think in the same way as typically developing children
4 How many people have autism spectrum disorder? The current definition predicts thatEvery day at least 2 children got the diagnosis of autism1 individual in every 91 develop autism spectrum disorder.It means the around 100,000 families are affected by autism in NC.In base census , Hispanic families represent 7% of population
5 Four Primary Areas of Difference CommunicationSocial InteractionsBehavior and Sensory ResponsesThinking and Learning
6 Communication/Language May have little or no speech; but may be quite verbalFlat or limited facial expressionsLimited use of gesturesFails to imitate actions or soundsRepeats words or phrasesUses unusual vocal intonation/rhythmUnderstands and uses language literallyAsks repetitive questions
7 Social Interactions May be unresponsive Seems content when left alone Seeks social contact in unusual waysDifficulty with turn-taking and other “play”Difficulty reading social cuesDifficulty with joint attentionDifficulty with facial recognitionDifficulty taking the perspective of another
8 Behavior/Sensory Relating to the environment: Play is repetitive Upset by or resists changes; transitions difficultDevelops rigid routinesDrifts aimlessly aboutExhibits strong and inflexible interestsExhibits narrow/odd interests
9 Behavior/Sensory (cont.) Responses to sensory stimuli:Sometimes seems deafOversensitive to some sounds, sights, tastes and odors; difficulty with modulating inputAttracted to certain textures, patterns, odorsExhibits unusual motor movementsExhibits unusual response to pain
10 Thinking and Learning Uneven pattern of skill development Learns skills out of normal sequenceFocus on details – miss connections and relationshipsRelevant vs. irrelevantConcrete thinking; abstract concepts difficultOrganization and sequencing problems
11 Thinking and Learning (cont.) Difficulty solving problems or generating new or alternative solutions to situationsDecreased ability to scan environment and identify important elementsChunks of information that occur close together in time are quickly associatedConcept of time is impairedLanguage is understood and used literally
12 Learning Strengths Take in chunks of information quickly Remember information for a long timeUse visual information meaningfullyLearn long routines and have motivation to repeat familiar routinesUnderstand and use concrete rulesConcentrate on topics of specific interests
13 What kind of support is helpful? Highly structured, individualized approachUse of schedulesUse of visual cues in the environmentAlternative communication methodsSpecial education at schoolSpeech, occupation, sensory development therapies
14 Hispanic families and Autism Our Bilingual Advocacy department has identified some specific needs within the Hispanic community.One of the most crucial issues is the need to train Hispanic parents about autism spectrum disorder and to teach them how they can help their children Autism
15 Some barriersLanguage barriers: No written material in their own native language, no interpreters available, not understand English.Isolation for cultural issues .- Some Hispanic families feel embarrassed to have a child with autism and keep them at home out of the community. This embarrassed came from lack of knowledge about autism and because the do not have access about the resources in the community .Other Hispanic parents do not understand how works the system of medical and school appointment in base of their experience back in their countries where in some cases some illness or medical problems are fixed by herbs or house treatment.
16 Some barriers- continuation……. No knowledge about Autism- Some families do not understand features and treatment about autism and do not know how to advocate their own child.Isolation for living in rural areas where there is not public transportation, not access for resourcesIsolation for lack o transportation: Some Hispanic families do not have an own car, do not have license driver, do not know how to drive. Other only drive short distance for fear that immigration offices might caught them without legal documentation.
17 Some barriers- continuation…….. Not income to pay child care or pay somebody for transportation in order to attend meetings ..No child care available that will take children with autism in the area.
18 How we can help Increment your knowledge about autism Refer families to ASNC-Autism Society of NC is the best resources in North AmericaParticipate in the Autism Awareness CampaignInvite ASNC to provide presentation about autism in your organizationParticipate in the workshop and conference about Autism that ASNC provide for parents, professionals and the communityHelp Hispanic families to understand how works the system ( medical appointments, waiting list, etc, etc)
19 How Hispanic families can help their children Increment knowledge about autismParticipate in the workshops and trainnign for parentsParticipate in the Hispanic Support groupBuild a good relationship with teacher, therapist, medical staff, staff’Keep records and bring their children for evaluation and treatments