Presentation is loading. Please wait.

Presentation is loading. Please wait.

Efficient & Rapid Translation of Dementia Discovery IDND-PBRN Malaz Boustani, MD, MPH Chief Director of Research Indianapolis Discovery Network for Dementia.

Published byKatrina Johnston Modified over 9 years ago

Similar presentations

Presentation on theme: "Efficient & Rapid Translation of Dementia Discovery IDND-PBRN Malaz Boustani, MD, MPH Chief Director of Research Indianapolis Discovery Network for Dementia."— Presentation transcript:

1 Efficient & Rapid Translation of Dementia Discovery IDND-PBRN Malaz Boustani, MD, MPH Chief Director of Research Indianapolis Discovery Network for Dementia Center Scientist and Assistant Professor of Medicine Indiana University center for Aging Research Scientist Regenstrief Institute, Inc www.indydiscoverynetwork.com

2 5/24/2015 indydiscoverynetwork.com2 Translational Cycle From Discovery To Delivery Basic science Lab Epidemiology Clinical Observation Promising Intervention Clinical trial testing Approved Intervention Post-Marketing testing Guideline Development System and Provider Implementation Time: 17 yrs Cost: $800 million AD recruitment rate: < 1% T1 T2 T3

3 5/24/2015 indydiscoverynetwork.com3 WHY We Need IDND The IOM and the NIH-Roadmap –recommend urgent "Re-Engineering of the Clinical Research Enterprise." –Suggest building Practice Based Research Network with The lens of complexity theories The tools of information technology

4 5/24/2015 indydiscoverynetwork.com4 RI HIT Infrastrucutres INPC SPIN DOC4DOC IU-PBRN

5 5/24/2015 indydiscoverynetwork.com5 IDND-Practice Based Research Network MCP PCP Wishard HCS Clarian HCS St Vincent HCS Community HCS St Francis HCS PCP: Primary Care Practice MCP: Memory Care Practice HCS: Health Care System.

6 5/24/2015 indydiscoverynetwork.com6 Specific Aims Use the foundation of the mature INPC electronic medical records system and the valuable research operation experience of the IU-PBRN to translate IDND into a practice based dementia research network capable of –Specific aim 1: Capturing reliable dementia related patients’ data such as laboratories, imaging, medical care, and health outcomes. –Specific Aim 2: Managing, summarizing, and electronically presenting captured data to various eligible researchers –Specific Aim 3: Facilitating dementia research activities by identifying potential subjects for various studies and providing a real time health outcome data such as health care utilization and dispensed medications.

7 5/24/2015 indydiscoverynetwork.com7 The Information System IDND-PBRN Provide fast access to data about older adults with dementia, a registry index must be created. Contain the needed elements (those identified as essential by the clinicians and the researchers), which we can call in this case a “standard dementia data set” (SDDS); Increase completeness of data and representation of the population, multiple ways for data to enter the INPC are needed; this includes both electronic and non-electronic routes of data entry and data entry by multiple people in disparate sites of care; Make information quickly available to support decision-making, accessible new reports or views that are most relevant to this population are needed. These data must be available to the key authorized clinical and research stakeholders; and Automatically identify and report selected sentinel events such as hospitalization or Emergency room visit.

8 5/24/2015 indydiscoverynetwork.com8

Download ppt "Efficient & Rapid Translation of Dementia Discovery IDND-PBRN Malaz Boustani, MD, MPH Chief Director of Research Indianapolis Discovery Network for Dementia."

Similar presentations

Copyright 2004 Northrop Grumman Corporation 0 HIT Summit Leveraging HIT for Public Health Surveillance HIT Summit Leveraging HIT for Public Health Surveillance.

Copyright 2004 Northrop Grumman Corporation 0 HIT Summit Leveraging HIT for Public Health Surveillance HIT Summit Leveraging HIT for Public Health Surveillance.
Indianapolis Discovery Network for Dementia www.indydiscoverynetwork.org Comparative Effectiveness Research Trial of Alzheimers Disease Drug: COMET-AD.

Indianapolis Discovery Network for Dementia Comparative Effectiveness Research Trial of Alzheimers Disease Drug: COMET-AD.
Using Information Technology and Community-based Research to Improve the Dental Health Care System Kathryn A. Atchison, DDS, MPH Professor, Division of.

Using Information Technology and Community-based Research to Improve the Dental Health Care System Kathryn A. Atchison, DDS, MPH Professor, Division of.
Creating Health Information Exchanges: The Indiana Network for Patient Care Shaun Grannis, MD, MS Research Scientist Regenstrief Institute / IU School.

Creating Health Information Exchanges: The Indiana Network for Patient Care Shaun Grannis, MD, MS Research Scientist Regenstrief Institute / IU School.
Indianapolis Discovery Network for Dementia www.indydiscoverynetwork.com Enhancing Care for Older Adults with Acute & Chronic CI Malaz Boustani, MD, MPH.

Indianapolis Discovery Network for Dementia Enhancing Care for Older Adults with Acute & Chronic CI Malaz Boustani, MD, MPH.
Community Health Network and The Indiana Heart Hospital’s Collaborative with Regenstrief Institute to Reduce MRSA Infections.

Community Health Network and The Indiana Heart Hospital’s Collaborative with Regenstrief Institute to Reduce MRSA Infections.
Local Health Department Perspective Electronic Medical Record Software and Health Information Exchanges Kathleen Cook Information & Fiscal Manager, Lincoln-Lancaster.

Local Health Department Perspective Electronic Medical Record Software and Health Information Exchanges Kathleen Cook Information & Fiscal Manager, Lincoln-Lancaster.
Better Outcomes. Delivered. Organization Overview January 2013 Copyright © 2013 Indiana Health Information Exchange, Inc.

Better Outcomes. Delivered. Organization Overview January 2013 Copyright © 2013 Indiana Health Information Exchange, Inc.
Indianapolis Discovery Network for Dementia Current State of Dementia Care & Research In Indiana Malaz Boustani, MD, MPH Eugene Lammers, MD, MPH Indianapolis.

Indianapolis Discovery Network for Dementia Current State of Dementia Care & Research In Indiana Malaz Boustani, MD, MPH Eugene Lammers, MD, MPH Indianapolis.
ACCELERATING CLINICAL AND TRANSLATIONAL RESEARCH www.indianactsi.org Anantha Shekhar MD, PhD Indiana University School of Medicine Indiana Clinical and.

ACCELERATING CLINICAL AND TRANSLATIONAL RESEARCH Anantha Shekhar MD, PhD Indiana University School of Medicine Indiana Clinical and.
Improving Quality, Addressing Disparities, and Achieving Equity Language Barriers and Health Care Joseph R. Betancourt, M.D., M.P.H. Director, The Disparities.

Improving Quality, Addressing Disparities, and Achieving Equity Language Barriers and Health Care Joseph R. Betancourt, M.D., M.P.H. Director, The Disparities.
TRANSFORMING HEALTH CARE THROUGH RESEARCH AND EDUCATION 2012 Illinois Performance Excellence Bronze Award Leading Improvement Across the Continuum: Skills,

TRANSFORMING HEALTH CARE THROUGH RESEARCH AND EDUCATION 2012 Illinois Performance Excellence Bronze Award Leading Improvement Across the Continuum: Skills,
Deb Koester Joseph Thomas Sudeshna Paul Bruce Craig Michael Weiner Laura Sands Healthcare Utilization in Preschool-Age Children.

Deb Koester Joseph Thomas Sudeshna Paul Bruce Craig Michael Weiner Laura Sands Healthcare Utilization in Preschool-Age Children.
NHII Operating in a Community J. Marc Overhage, MD, PhD Regenstrief Institute June 30, 2003 NATIONAL HEALTH INFORMATION INFRASTRUCTURE 2003 DEVELOPING.

NHII Operating in a Community J. Marc Overhage, MD, PhD Regenstrief Institute June 30, 2003 NATIONAL HEALTH INFORMATION INFRASTRUCTURE 2003 DEVELOPING.
Steven R. Cummings, MD Emeritus Professor of Medicine and Epidemiology, UCSF Director, SF Coordinating Center Mytrus, Founder & CEO.

Steven R. Cummings, MD Emeritus Professor of Medicine and Epidemiology, UCSF Director, SF Coordinating Center Mytrus, Founder & CEO.
1.01 E LECTRONIC M EDICAL R ECORD S YSTEMS AND D ISEASE R EGISTRIES : S ELECTION A LONG THE S PECTRUM Wayne T. Pan, MD Medical Director Choosing a Chronic.

1.01 E LECTRONIC M EDICAL R ECORD S YSTEMS AND D ISEASE R EGISTRIES : S ELECTION A LONG THE S PECTRUM Wayne T. Pan, MD Medical Director Choosing a Chronic.
HealthBridge – Healthcare Transformation Conference Scott Callahan, MD FAAP Medical Director Children’s Health Care Batesville, Indiana.

HealthBridge – Healthcare Transformation Conference Scott Callahan, MD FAAP Medical Director Children’s Health Care Batesville, Indiana.
Primary Care Access Deanna Willis, MD, MBA Medical Director of Quality and Medical Management IU Medical Group-Primary Care.

Primary Care Access Deanna Willis, MD, MBA Medical Director of Quality and Medical Management IU Medical Group-Primary Care.
August 12, 20151 Meaningful Use *** UDOH Informatics Brown Bag Robert T Rolfs, MD, MPH.

August 12, Meaningful Use *** UDOH Informatics Brown Bag Robert T Rolfs, MD, MPH.
The NIH Roadmap for Medical Research www.nihroadmap.nih.gov www.nihroadmap.nih.gov.

The NIH Roadmap for Medical Research

Similar presentations

Ads by Google