1. 1 1 1.Wales 2.Welsh Assembly Government and the Voluntary Sector- NGO’s 3.All Wales Principles 4.Why Have an Umbrella Body? Role of LDW 5.LDW Mission 6.LDW Aims 7.External Challenges 8.Internal Challenges 9.Features of the LDW Umbrella 10.Building our Profile 11.Case Study 1: Cardiff Supported Living 2007 12.Case Study 2: Disabled Children Matter Wales 2008- Continuing 13.Are we making a difference? Contents

2. 2 2 Wales Population- 2.9m Long Term Illness or disability- 23% Poverty- 1 in 4 in low income Adults with severe learning disability; 10,800

3. 3 3 Welsh Assembly Government & the Voluntary Sector - NGOs Voluntary Sector Scheme Voluntary Sector Partnership Council Compacts between Municipalities and Voluntary Sector

4. 4 4 All Wales Principles 1983 People with learning disabilities have a right to; An ordinary pattern of life in the community Be treated as an individual Additional help and support in achieving their maximum potential

5. 5 5 Why Have an Umbrella Body? Role of LDW Balance voice of government and of parents Voice for NGOs Encourage development of NGOs

6. 6 6 LDW Mission “Create a Wales that values and includes every child and adult with a learning disability in Wales”

7. 7 7 LDW Aims Strengthen the Voice, rights and status of children and young people Voice, rights and status of adults Ability of parents, carers and families to make a positive contribution and Promote a range of person centred services for children and adults Set a good example in the way that it is run

8. 8 8 External Challenges The Cinderella Abuse scandals in hospitals; Ely Children and young people ‘ineducable’ Plus Understanding Welsh social constraints Collaboration with Govt versus campaigning

9. 9 9 Internal Challenges ‘Cradle to grave remit’ Picking priorities Picking issues where we can win Recruiting and retaining staff

10. 10 Features of the LDW Umbrella Governance and election processes Member consultation Facilitator and coordinator

11. 11 Building our profile Professionally presented materials and events Membership of National Assembly lobbying representative association; Public Affairs Cymru Being useful to govt: win/win Attendance at all political party annual conferences Using politicians Developing contacts in the media

12. 12 Case Study 1: Cardiff Supported Living 2007 All services re-tendered Partnership formed Judicial review ‘Won battle but lost war’ Ethical issues

13. 13 Case Study 2: Disabled Children Matter Wales 2008- Continuing Poor patchy services Investment in England Partnership formed Political activity Being ‘sucked in’ Some achievements

14. 14 Are we making a difference?