1. Creating A HIV Registry Steven Levine, MD June 2, 2010

2. Organizational Background www.institute2000.org

3. The Institute for Family Health 15 Community Health Centers – 5Bronx, 4 Manhattan, 6 Mid-Hudson Valley 8 homeless healthcare sites 1 School based health programs 3 Dental centers 2 Community Mental Health Centers 2 Free Clinics 230,000 primary care visits 72,000 patients

4. The Institute has been fully paperless since September 2002 on Epic Systems (Verona, Wisconsin) Electronic Health Record and Practice Management System In 2007 the Institute doubled in size with the acquisition of the Mid Hudson Family Health Institute. In the first month all 6 sites were live on the PMS. Six months later all sites were fully live on the EHR.

5. Background

6. Why develop an HIV registry? Aggregate view of HIV related outcomes; Timely accessibility of data; and Discover what interventions are needed and for whom.

7. Institute’s Strategy The Institute seeks to ensure that all patients with HIV/AIDS receive high quality care consistent with expert recommendations. We intend to develop an HIV/AIDS patient registry populated by electronic health record data.

8. Goals and Objectives To create and implement a guideline-based registry of patients with HIV/AIDS that can be used as a tool to improve quality of care across multiple care sites; and Develop a registry of HIV/AIDS patients that can be used to identify and address racial and ethnic disparities in care and outcomes by providing outreach to patients at highest risk of poor outcomes.

9. Development

10. Where to start? Plan Meet Design

11. Who is on the development team? The team should be multidisciplinary. Including members from all departments who interact and treat patients with HIV and EHR support staff and a report writer.

12. Team at the Institute John Weiser, MD Steven Levine, MD Kwame Kitson, MD Medical Team Weston Willett Leigh Garvey Jonah Piascik Technical Team Elisa Wallman Rebecca DiLuzio Michelle Pichardo Administrative Team

13. What standards should be considered?

14. Identify the specific parameters. Share with project team Review a test run of the report Documenting the specifications

18. Show screen shot of smart set

19. Preliminary Findings

20. HIV/AIDS Patients by Sex and Age

21. HIV/AIDS Patients by Race and Ethnicity Hispanic25.3% Non-Hispanic74.7% White19.1% Black45.2% Not collected32.5% More than one race2.2% American Indian/Alaska Native0.4% Asian/Pacific Islander0.4% Asian0.1% Native Hawaiian0.1%

22. Percentage of HIV/AIDS Patients Who Received Selected Screening over the Past 12 Months

25. Final Thoughts User friendly Time efficient Ongoing and always current Easily display trends Identify needs quickly and Effectively plan interventions

26. Thank You! Steven Levine, MD slevine@institute2000.org 212-633-0800 ext. 1275