Presentation on theme: "Dr. Joan Lluis Vives-Corrons Head of ENERCA project Head of the Red Cell Pathology Unit Hospital Clínic - IDIBAPS of Barcelona “ Rare Diseases a model."— Presentation transcript:
Dr. Joan Lluis Vives-Corrons Head of ENERCA project Head of the Red Cell Pathology Unit Hospital Clínic - IDIBAPS of Barcelona “ Rare Diseases a model of EU Solidarity” 10 YEARS OF LIFE
You feel ill… Visit your doctor… The doctor does some tests… …and says: you have anaemia! The doctor prescribes iron pills… ¿Why ENERCA ?
With the RIGHT DIAGNOSIS you feel better ENERCA 2012
KNOWLEDGE DATABASE BEST PRACTICE PATIENT’S EMPOWER MENT How ENERCA reduces Health Inequalities?
Recommendations Clinical Patient care
European Symposium on Rare Anaemias
Moving forward to the creation of a European Reference Network (ERN) of Expert Centres on Rare Anaemias ENERCA WHITE BOOK THE FUTURE: Networking
Second opinion / Interprofessional support Case manager Diagnostic orientation Experts Experts information Medical Advice ENERCA has tools and experts for a better diagnosis… Why not sharing knowledge and expertise ? THE FUTURE: Telemedicine and Telediagnosis MEDICAL ADVICE Diagnosis
Collaboration with KNOWLEDGE MEDICAL ADVICE NEW TRENDS THE FUTURE: Research
coordinate and foster research The Biomedical Network Research Centre on Rare Diseases (CIBERER) is one of the 9 public consortiums set up at the initiative of the Carlos III Health Institute (ISCIII)-Ministry of Science and Innovation, to act as a reference to coordinate and foster research into Rare Diseases in Spain. Why CIBERER? The knowledge generated is translated from the laboratory to clinical practice Translational Research Mission
60 Research Groups 29 Consorted Institutions innovative network structure: Universities, Hospitals, Research Centers thanks to CIBERER have created an innovative network structure: offers opportunities of research actions and public-private collaboration Cooperative Research in RD The centre encloses clinical and basic researchers promoting Cooperative Research in RD Network Structure
¡THANK YOU! Enerca Coordination Team Head of Project - J.L. Vives Corrons Project Manager - María del Mar Mañú Pereira Project Assistant - Laura Olaya Costa Red Cell Pathology Unit Hospital Clinic i Provincial University of Barcelona c/ Villarroel Barcelona Phone: