1. NHS Kidney Care Supporting Young Adults with kidney disease Project assets map April 2012

2. Asset mapping Defined as: The process of cataloguing the resources of a community Approach developed and used by agencies working with and supporting communities Used in local authorities planning, community development and public health Intended to help project board identify assets that can support the long term sustainability of project learning

3. Supporting Young Adults with kidney disease 2010-2012

4. Products/ tools: Website Forum YouTube E-seminar Literature review slide set Oxford YAC film YAC Reading How to guide Abstracts, posters, presentations, articles Facebook How to Guide In development: How to guides on SAF, immunosuppression… E-seminars Evaluation report App(s) Local products: Facebook pages, Twitter, Apps Newsletters Pathways Project group models Self assessment framework tool Educational resources Ready Steady Go transition documents Immunosuppression protocol Events: BRS, RA, ESOT, KEN, EWOPA, ERA-EDTNA Association for Young People’s Health, YPHSIG Diabetes UK, British Cardiovascular Society, Transplantation meetings Long term conditions Key contacts and links: Project board Learning Network Other NHS KC work programmes EB and BM contact with SS RCP transition group BRS, RA BAPN BKPA, KPAs Young@NKF YPHSIG, YPH DH, You’re Welcome Teenage cancer survivors projects NHS Diabetes, NHS Liver Care Diabetes UK, BHF, NHS Improvement Local authority young people leads Connexions Publications and media coverage: Nursing Standard, Nursing Times, Nursing in Practice CNO Bulletin, British Journal of Renal Medicine, Kidney Care Matters, Renal Association Website Children, Maternity, and Families e-bulletin Journal of Renal Nursing National Youth Agency website Children and Young People Now Kidney Life, Derby Telegraph BBC Radio Oxford, Jack FM Newcastle Evening Chronicle Nottingham Evening Post BBC Oxford TV, BBC Radio Tees Synapse (Trust magazine at Nottingham) Your Local Guardian

5. Project champions Existing: Elisabeth Buggins Beverley Matthews Donal O’Donoghue Sheila Shribman Janet McDonagh Paul Harden Local project group champions (see over) Claire Lewis (Young@NKF), other young adults BKPA, KPAs BRS, RA, BAPN Could develop: Cancer: NHS Improvement, DH Diabetes: NHS Diabetes, DH, Diabetes UK Liver: NHS Liver Care, DH Other transplanted organs CF, other LTCs e.g. BHF YPHSIG AYPH Director of Nursing and Medical Director of NHS NHS Improvement DH CNO and CMO

6. Project group champions East Midlands –Matt Tomlin (keyworker) –Charlotte Bebb –Emma Coyne –Cathy Johnson –Catherine Byrne –Wendy Hope London + SEC –Clare Nottage (keyworker) –Sue Cox –Stephen Marks North East –Lorraine Lentell (keyworker) –Laura Baines –Margaret McQuade South Central –Paul Harden –Dan Lonsdale (keyworker) –Katy Priddis (keyworker) South West –Jo Woodland (keyworker) –Sally Tutton (keyworker) –Rachel Gair

8. Some asset maps include: Risks: e.g. NHS reforms and funding Strategies to sustain: e.g. links to DH and RCP