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25April2003 -- SH Weiss, S Collini1 Task Force on Cancer Prevention, Early Detection and Treatment in New Jersey EVALUATION COMMITTEE.

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Presentation on theme: "25April2003 -- SH Weiss, S Collini1 Task Force on Cancer Prevention, Early Detection and Treatment in New Jersey EVALUATION COMMITTEE."— Presentation transcript:

1 25April SH Weiss, S Collini1 Task Force on Cancer Prevention, Early Detection and Treatment in New Jersey EVALUATION COMMITTEE

2 25April SH Weiss, S Collini2 The Evaluation Committee’s Web Site Is Located At:

3 25April SH Weiss, S Collini3 This document reflects a "work in progress." This document reflects a "work in progress." It is meant ONLY as a general guide and overview to some of the many dynamically evolving implementation issues related to the CCCP. It is meant ONLY as a general guide and overview to some of the many dynamically evolving implementation issues related to the CCCP. This particular set of "slides" includes issues related to the Task Force Workgroups and interactions with OCCP etc, and the This particular set of "slides" includes issues related to the Task Force Workgroups and interactions with OCCP etc, and the new “County Evaluators for the CCCP” for which the 25 NJ CEED programs are receiving NJDHSS funding related to the CCCP objectives. Caveat/Disclaimer:

4 25April SH Weiss, S Collini4 Evaluation Committee Chair: Stanley H. Weiss, M.D. The evaluation committee is part of the Task Force on Cancer Prevention, Early Detection and Treatment in New Jersey The evaluation committee is part of the Task Force on Cancer Prevention, Early Detection and Treatment in New Jersey This committee will provide some overall guidance to the CE/CCCP and Workgroups This committee will provide some overall guidance to the CE/CCCP and Workgroups Evaluators and Workgroups will report to the OCCP and Peg Knight, who will Evaluators and Workgroups will report to the OCCP and Peg Knight, who will  Synthesize their reports and  Relay them to Dr. Weiss and to the Task Force for further assessment

5 25April SH Weiss, S Collini5 Evaluation Committee Will Also: Consolidate input from evaluation activities both within NJDHSS and external sources, including the county evaluators for the CCCP (CE/CCCP) Consolidate input from evaluation activities both within NJDHSS and external sources, including the county evaluators for the CCCP (CE/CCCP) Seek input from the re-formulated Task Force Workgroups Seek input from the re-formulated Task Force Workgroups Provide feedback to the Task Force Provide feedback to the Task Force

6 25April SH Weiss, S Collini6 So, Where Does Everyone Fit in?

7 25April SH Weiss, S Collini7 Administrative Matrix for CCCP: Who Reports to Who? Office of the Governor NJDHSS Cancer Registry State NJ CEED Office OCCP Exec. Director: Peg Knight Task Force on Cancer Prevention, Early Detection and Treatment in NJ Chair: A. Baskies Evaluation Committee Chair: S. Weiss Workgroups – responsible for each cancer/area (8) and key over-arching issues 25 CEED CE/CCCP UMDNJ-SPH Training S. Weiss (PI); M. Sass (Co-PI) UMDNJ-NJMS Evaluation S. Weiss (PI) CINJ – Comprehensive Cancer Center NCI/CDC American Cancer Society NJLINCS & Local Health Officers Battelle Centers for Public Health Research and Evaluation

8 25April SH Weiss, S Collini8 Collaboration and Data Exchange Matrix for CCCP Office of the Governor NJDHSS Cancer Registry State NJ CEED Office OCCP Exec. Director: Peg Knight Task Force on Cancer Prevention, Early Detection and Treatment in NJ Chair: A. Baskies Evaluation Committee Chair: S. Weiss Workgroups – responsible for each cancer/area (8) and key over-arching issues 25 CEED CE/CCCP American Cancer Society UMDNJ-SPH Training S. Weiss (PI); M. Sass (Co-PI) UMDNJ-NJMS Evaluation S. Weiss (PI) CINJ – Comprehensive Cancer Center Dotted Line: Interaction/Collaboration between two entities Arrow: Direction of Data Flow NCI/CDC NJLINCS & Local Health Officers Battelle

9 25April SH Weiss, S Collini9 TASKS for the Workgroups 1. Need to review CCCP and the deadlines set forth in the plan. Are those deadlines realistic today? Are those deadlines realistic today? Will they need to be adjusted? Will they need to be adjusted? How will they be adjusted? How will they be adjusted? 2. Look at their section of plan critically and what has been completed and what has not?

10 25April SH Weiss, S Collini10 Workgroup Tasks (Cont) 3. Workgroups will also need to start working with County Evaluators (CEs) for the CCCP to identify cancer resources throughout the state for their specific cancer site. Information on how to contact each Workgroup will be provided to CEs. 4.Make contacts with other Workgroups in areas relevant to their cancer site. Note: The overarching Work Group has been formally split into its constituents: Access and Resources, Advocacy, Palliation, Nutrition and Physical Activity, and Childhood Cancer.

11 25April SH Weiss, S Collini11 Workgroup Tasks (Cont) 5. Review the administrative and collaboration matrixes and realize their role going forward. 6. Provide OCCP and Task Force with updates…

12 29April SH Weiss, S Collini12 Tracking Progress in the Workgroups Battelle Centers for Public Health Research is working on developing an electronic tracking system that each Workgroup is to use under the direction of the Workgroup chair or appointee. Battelle Centers for Public Health Research is working on developing an electronic tracking system that each Workgroup is to use under the direction of the Workgroup chair or appointee. A draft version is explained in the attached Word document, it should be used with appropriate goal/objective/strategy, names and numbers – replacing those in the draft. A draft version is explained in the attached Word document, it should be used with appropriate goal/objective/strategy, names and numbers – replacing those in the draft. These should be modified by each Workgroup so as to create one form for EACH strategy. To modify, simply make a copy and type in the goal/objective/strategy from the CCCP. These should be modified by each Workgroup so as to create one form for EACH strategy. To modify, simply make a copy and type in the goal/objective/strategy from the CCCP.

13 29April SH Weiss, S Collini13 You should use these immediately for gathering data. You should use these immediately for gathering data. If and when more sophisticated electronic versions to capture this information are developed, these will be provided to the Workgroups. If and when more sophisticated electronic versions to capture this information are developed, these will be provided to the Workgroups. On a bi-monthly or quarterly basis, the OCCP requests that each Workgroup provide an update. On a bi-monthly or quarterly basis, the OCCP requests that each Workgroup provide an update. First updates desired by OCCP during June First updates desired by OCCP during June See example……. See example……. Tracking Progress in the Workgroups

14 29April SH Weiss, S Collini14 Electronic Tracking System Date Form Completed: [AUTOMATED] Work Group: CHILDHOOD CANCER Submitted By: [FIRST NAME] [LAST NAME] Goal CC-1: To improve care for adolescents and young adults. Objective CC-1.1 : To educate healthcare providers about the availability of existing clinical research protocols and the referral of young adults up to the age of 21 to pediatric oncology centers. Strategy CC-1.1.1: Conduct a pilot study to validate the existing research and assess any difference in cancer survival based on treatment regime between adult treatment centers and pediatric treatment centers. Funding Amount:Source:Comments: i.e. $25,000Wonderful Granting Agency's NameGrant application – award announcement March2003 i.e. $30,000Another Wonderful Granting AgencyOn hold for FY 2003 Targets Target Date:Status: Date: month/year of anticipated or actual completion ……… Principal Change Agents Last Contact Date:Name: i.e. American Cancer Society

15 25April SH Weiss, S Collini15 Battelle NJ CCCP Database Fields v2 draft of Monday, April 21, 2003 Fields for Progress Reporting on Specific Strategies for Each Workgroup Process Work GroupsWork Group Names Principal Change AgentsAgency Names Original Schedule Ongoing

16 25April SH Weiss, S Collini16 Battelle NJ CCCP Database Fields v2 draft of Monday, April 21, 2003 Fields for Progress Reporting on Specific Strategies for Each Workgroup Tracking and Monitoring Submitted byName Date Form CompletedDate Funding AmountDollars Funding SourceText Funding CommentsMemo StatusOngoing (O). Completed (C), Suggest Dropping (SD) Actual Target DateMonth/year Target DescriptionMemo Target CommentMemo Target BarriersMemo Last Contact DateDate Last Contact PersonName

17 25April SH Weiss, S Collini17 Additional Project By Battelle  Battelle is also developing indexing/cross-indexing of the CCCP according to key parameters  Enable tracking by Workgroups of NJ activities with respect to the CCCP, by linkage to the above CCCP database system

18 25April SH Weiss, S Collini18 Battelle NJ CCCP Database Fields v2 draft of Monday, April 21, 2003 Key Parameters ContentNeed to be able to select more than one choice Cancer Site or TypeBreastStomach CervicalOther Cancer Childhood Site or Type Colorectal Lung Leukemia/Lymphoma Oral/Oropharyngeal Ovarian Prostate Melanoma Other Skin Cancer (basal/squamous) Liver Continuum of CarePrimary prevention Early detection Treatment Rehabilitation Palliation/End of Life Survivorship

19 25April SH Weiss, S Collini19 NJ CCCP Database Fields v2 draft of Monday, April 21, 2003 Key Parameters Screening TestMammography Other Screening Test Pap test (include Thin Prep) Colonoscopy Virtual Colonoscopy Flexible Sigmoidoscopy Fecal Occult Blood Test (FOBT) Double-contrast barium enema Prostate Specific Antigen Oral cancer exam Spiral CT scan Strategy AreaResearch/EvaluationHealth Disparities Public EducationClinical Trials Provider EducationInfrastructure Planning Insurance Language Transportation Program/Intervention Collaboration Access to Care Quality Assurance Funding/Resource Development Information Dissemination Policy/Advocacy Battelle

20 25April SH Weiss, S Collini20 Battelle NJ CCCP Database Fields v2 draft of Monday, April 21, 2003 Key Parameters Risk FactorTobacco Obesity Occupational Exposures Alcohol Other Drug Physical Activity Diet Environmental Hazards Family History Infections UV Radiation Population FactorsGender Geographic Area SES Insurance Status Age GroupsChild Adolescent Young Adult (college age) Adult Senior

21 25April SH Weiss, S Collini21 Battelle NJ CCCP Database Fields v2 draft of Monday, April 21, 2003 Key Parameters Partners for StrategyGrass-roots CBOs Faith-based Organizations Provider Organizations/Professional Associations Schools Worksites Hospitals and Clinics Academic Institutions Legislators Insurers – Third-party Payers Advocacy Organizations Survivors Parents Health Department Laboratories Pharmaceutical Companies Other Industry Other Partner Race/EthnicityAsianWhite BlackNative American HispanicDisparities

22 25April SH Weiss, S Collini22 Who are some of the various agencies and groups aiding the CCCP efforts? Office of Cancer Control and Prevention Office of Cancer Control and Prevention Cancer Registry Cancer Registry NJ Cancer Education and Early Detection (CEED) Programs NJ Cancer Education and Early Detection (CEED) Programs Training of NJ CEED CE/CCCP – UMDNJ-SPH Training of NJ CEED CE/CCCP – UMDNJ-SPH Technical Assistance to NJDHSS/Task Force, and External Evaluation – UMDNJ-NJMS Technical Assistance to NJDHSS/Task Force, and External Evaluation – UMDNJ-NJMS

23 25April SH Weiss, S Collini23 The Original Planned Fiscal 2003 New $3.25M Allocation Was to Support: NJDHSS : NJDHSS : 1. Office of Cancer Control and Prevention - Office of the CCCP Executive Director Peg Knight, RN, MEd 2 new staff positions [On HOLD]

24 25April SH Weiss, S Collini24 The Original Planned Fiscal 2003 New $3.25M Allocation Was to Support: NJDHSS : NJDHSS : 2. Cancer Registry - Office of Cancer Epidemiology Betsy A. Kohler, MPH, CTR 2-3 new staff positions [On HOLD]

25 25April SH Weiss, S Collini25 The Original Planned Fiscal 2003 New $3.25M Allocation Was to Support: NJDHSS: NJDHSS: 3. NJ Cancer Education and Early Detection (CEED) Programs 25 new positions at each program (programs in all 21 NJ counties with 4 counties having 2 programs) 25 new positions at each program (programs in all 21 NJ counties with 4 counties having 2 programs) Administered by: Doreleena Sammons-Posey, SM and Anna Ruth Thies, RN, MA Administered by: Doreleena Sammons-Posey, SM and Anna Ruth Thies, RN, MA 1 new central State staff position in fiscal 2003 [On HOLD] 1 new central State staff position in fiscal 2003 [On HOLD]

26 25April SH Weiss, S Collini26 The Original Planned Fiscal 2003 New $3.25M Allocation Was to Support: NJDHSS: NJDHSS: 3. CEED Programs [continued]: $57,100 to each program in Fiscal 2003: $52,100 for a staff/consultant position for Capacity/Needs Assessment and Evaluation as the “County Evaluators for the CCCP” (CE/CCCP) $52,100 for a staff/consultant position for Capacity/Needs Assessment and Evaluation as the “County Evaluators for the CCCP” (CE/CCCP) $5,000 for support resources - computer equipment $5,000 for support resources - computer equipment

27 29April SH Weiss, S Collini27 The Original Planned Fiscal 2003 New $3.25M Allocation Was to Support: NJDHSS: NJDHSS: 3. CEED Programs [continued]:  On March 5, the above mentioned $57,100 in funds received an extension for use beyond JUNE 30 th - to permit use through SEPTEMBER 30 th.  As of April 1, 2003, this has CHANGED and the extension will be through DECEMBER 31st, providing a more adequate time frame to accomplish the goals.

28 29April SH Weiss, S Collini28 The Original Planned Fiscal 2003 New $3.25M Allocation Was to Support: NJDHSS: NJDHSS: 4. Training of NJ CEED “CE/CCCP” [County Evaluators for the CCCP] Fiscal 2003 MOA with UMDNJ-SPH 4 day-long programs in preparation, for training in basic skills and applying standardized methodology (1 st day of training set for May 14 th ) Drs. Marcia Sass [co-PI] and Stanley H. Weiss [PI]

29 25April SH Weiss, S Collini29 The Original Planned Fiscal 2003 New $3.25M Allocation Was to Support: NJDHSS: NJDHSS: 5. Technical Assistance to NJDHSS/Task Force, and External Evaluation: MOA with UMDNJ-NJMS Stanley H. Weiss, MD [PI] Stanley H. Weiss, MD [PI] Susan Collini, MPH Susan Collini, MPH William Halperin, MD William Halperin, MD Judith B. Klotz, MS, DrPH [after May 1 st ] Judith B. Klotz, MS, DrPH [after May 1 st ]  Funding after June 30, 2003 [ON HOLD]

30 25April SH Weiss, S Collini30 5. Technical Assistance to NJDHSS/Task Force, and External Evaluation: Review assessment/evaluation plans and implementation of other States identified by CDC as exemplary models Review assessment/evaluation plans and implementation of other States identified by CDC as exemplary models Assess instruments and systems for data collection and systemization by NJDHSS and its contractors Assess instruments and systems for data collection and systemization by NJDHSS and its contractors Public health/epidemiologic assessment of the Comprehensive Cancer Control Plan (CCCP) Public health/epidemiologic assessment of the Comprehensive Cancer Control Plan (CCCP) The Original Planned Fiscal 2003 New $3.25M Allocation Was to Support:

31 25April SH Weiss, S Collini31 Additional Funding by the State in Cancer Research Cancer Institute of New Jersey William N. Hait, MD, PhD William N. Hait, MD, PhD  NCI-Comprehensive Cancer Center, with NCI mandates related to the community  Added allocations of $20M Fiscal 2003, $18M Fiscal 2004  Including for development of a system to foster communication about treatment programs  RFAs issued March 2003

32 25April SH Weiss, S Collini32 Non-state Funding Sources CDC National Breast and Cervical Cancer Early Detection Program (NBCCEDP) operates in all 50 states, D.C., 6 US territories, 12 Am Indian/Alaskan Native organizations Federal funding -- established 1990  stability of NJ CEED programs American Cancer Society (ACS) Plans to share with OCCP (and the CE/CCCP) results of regional ACS C/NA ACS is adopting the NJ CCCP in its own forward planning, which is important in terms of long-term goals

33 25April SH Weiss, S Collini33 Implementation Is Moving Forward: An Update

34 25April SH Weiss, S Collini34 New County Evaluators for the CCCP (CE/CCCP) As part of the Implementation Process of the CCCP, the new CE/CCCP will be hired by each CEED program to conduct a Capacity and Needs Assessment (C/NA) and evaluation of all aspects concerning cancer prevention, detection and treatment in their county. As part of the Implementation Process of the CCCP, the new CE/CCCP will be hired by each CEED program to conduct a Capacity and Needs Assessment (C/NA) and evaluation of all aspects concerning cancer prevention, detection and treatment in their county. These “County Evaluators” will either be consultants or employees. These “County Evaluators” will either be consultants or employees.

35 25April SH Weiss, S Collini35 New County Evaluators for the CCCP (CE/CCCP): Key Responsibilities     Describes impediments to best cancer prevention practices in their County Describes impediments to best cancer prevention practices in their County Describes the system for early detection and prompt therapy of cancers in their County Describes the system for early detection and prompt therapy of cancers in their County Develops guidelines to implement a comprehensive cancer C/NA and a work plan to implement the capacity and needs guidelines Develops guidelines to implement a comprehensive cancer C/NA and a work plan to implement the capacity and needs guidelines Works with OCCP and the Cancer Registry to identify communities and populations where cancer burden is highest Works with OCCP and the Cancer Registry to identify communities and populations where cancer burden is highest

36 25April SH Weiss, S Collini36 Purpose of Capacity Needs Assessment  To provide the best approach to implementing the CCCP  To help keep the implementation process on target  To provide both baseline and (over time) follow-up information for evaluation purposes

37 25April SH Weiss, S Collini37 Collaboration Information will be gathered by the County Evaluators through collaboration with multiple sources, such as: Information will be gathered by the County Evaluators through collaboration with multiple sources, such as:  American Cancer Society - already conducting their own C/NA State Cancer Registry  Task Force Workgroups  Local and county health officers  Battelle Centers for Public Health Research and Evaluation  CDC and NCI’s Cancer Information Service and Partnership Program

38 25April SH Weiss, S Collini38 CCCP, ACS & CEED Priority Areas CCCPACSCEED 1. BREAST YYY 2. CERVICAL YNOY 3. COLORECTAL YYY-recent 4. LUNG YYNO 5. MELANOMA YYNO 6. ORAL/O-P YNONO 7. PROSTATE YYY

39 25April SH Weiss, S Collini39 CCCP Priority Area: Over-Arching Issues Access and resources Advocacy Palliation Nutrition and physical activity Childhood cancer

40 25April SH Weiss, S Collini40 CCCP Priority Area: Emerging Trends Access to clinical trials Cancer survivorship Complementary/alternative medicine Infection and cancer EBV HIV H. pylori HPV HBV [vaccine], HCV

41 25April SH Weiss, S Collini41 CCCP Priority Area: Short-Term Issues Historic geographic issues: i.e. bladder cancer - What has been happening? “Cluster Busters” – Drs. Dan Wartenberg and Eddy Bresnitz, and Betsy Kohler CCCP Priority Area: Long-Term Issues Emerging Cancers - i.e. HCC, especially issue of HCV

42 25April SH Weiss, S Collini42 Long Term Issues Sequential, prioritized analysis from an epidemiologic standpoint, of relative efficacy and cost-benefit (including BOTH direct and indirect effects) of extant primary, secondary, and tertiary prevention efforts for each cancer type, with comparison to actual effort and $ expended, to assist policy makers in resource allocation.

43 25April SH Weiss, S Collini43 ACS’s 6 New Jersey Regions Region No Counties Counties 2002 Report Received Number of CEED Programs 1. Northwest 5 Morris, Warren, Sussex, Somerset & Hunterdon 5 2. Northern 2 Bergen & Passaic Metro 3 Essex, Hudson & Union 5 4. Central 2 Middlesex & Mercer 2 5. Shore 2 Monmouth & Ocean 2 6. South 7 Camden, Gloucester, Burlington, Salem, Atlantic, Cumberland & Cape May 4/1/03 8

44 25April SH Weiss, S Collini44 The Comprehensive Cancer Control Plan on the Web….. Copies are available via the Internet at the Office of Cancer Control and Prevention Program's Website Copies are available via the Internet at the Office of Cancer Control and Prevention Program's Website Office of Cancer Control and Prevention Program's Website Office of Cancer Control and Prevention Program's Website

45 25April SH Weiss, S Collini45 Additional Resources: Researchers Dataset From the NJ Cancer Registry An individual-level dataset is available from the New Jersey State Cancer Registry without identifiers, which includes data from An individual-level dataset is available from the New Jersey State Cancer Registry without identifiers, which includes data from A Public Use Agreement must be signed A Public Use Agreement must be signed File is available in both ASCII and ACCESS '97 formats File is available in both ASCII and ACCESS '97 formats Accompanied by a file containing populations counts appropriate for calculating rates Accompanied by a file containing populations counts appropriate for calculating rates

46 25April SH Weiss, S Collini46 Additional Resources: NJDHHS Website  Resources can be explored on the New Jersey Department of Health and Senior Services Website Related Cancer Links


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