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Update on AAIDD Health and Wellness Action Group Healthcare Guidelines project AAIDD Annual meeting June 7, 2011 Saint Paul, Minnesota.

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Presentation on theme: "Update on AAIDD Health and Wellness Action Group Healthcare Guidelines project AAIDD Annual meeting June 7, 2011 Saint Paul, Minnesota."— Presentation transcript:

1 Update on AAIDD Health and Wellness Action Group Healthcare Guidelines project AAIDD Annual meeting June 7, 2011 Saint Paul, Minnesota

2 Joseph O’Grady Jr. M.D. FAAP Associate Professor of Clinical Psychiatry Patient Safety and Quality Officer Medical College of Wisconsin Medical Director Vice President for Clinical Services Phoenix Care Systems Inc

3 AAIDD Health and Wellness Action Group HWAG Healthcare Guidelines Workgroup Joseph O’Grady Jr. Co-chair Carl Tyler Co-chair Alixe Bonardi Tom Cheetham Dalice Hertzberg Sharon Oxx Janet Reich Bill Sullivan

4 Presentation goals Know the current IDD healthcare guidelines environment Understand HWAG Healthcare Guidelines project: purpose, goals, and current status Get feedback from AAIDD members

5 Presentation Outline Introduction Review IDD healthcare guidelines environment Review AAIDD HWAG Healthcare Guidelines Workgroup project Questions and feedback

6 Why is this important? Healthcare disparities for persons with intellectual and developmental disabilities with increased rates of: psychiatric disorders psychiatric disorders medical morbidity medical morbidity preventable mortality preventable mortality dental disorders dental disorders ‘Closing the Gap’ Dr.Satcher 2002

7 IDD Healthcare guidelines environment Currently there are 2 active IDD healthcare guidelines projects: Canadian project: focusing on recommendations for primary care providers Canadian project: focusing on recommendations for primary care providers Massachusetts DDS project: focusing on recommendations for a broad base of implementation Massachusetts DDS project: focusing on recommendations for a broad base of implementation Agency for Healthcare Research and Quality AHRQ National Guideline Clearinghouse

8 National perspective What is the role for AAIDD as a national organization regarding healthcare guidelines for persons with intellectual or developmental disabilities?

9 HWAG Healthcare guidelines project Our Goal or Vision: position AAIDD as national leader in healthcare for persons with IDD Method: Use an expert consensus model integrating Canadian and Massachusetts guidelines using representatives from both groups as well as AAIDD HWAG members Focus: healthcare preventive screening for adults with IDD Target audience: persons with IDD, physicians, providers, organizations, family/advocates

10 HWAG Healthcare guidelines project Project stages or Mission: 1. Development of guidelines/standards 1. Development of guidelines/standards 2. Development of educational and 2. Development of educational and training programs based on standards training programs based on standards 3. Development of Quality measures based on 3. Development of Quality measures based on standards standards 4. Generate data to guide practice based 4. Generate data to guide practice based research activities research activities 5. Generate data to guide public policy 5. Generate data to guide public policy healthcare advocacy healthcare advocacy

11 HWAG Healthcare guidelines project Process Planning began in 2008, meetings began in Dec 2009 Planning began in 2008, meetings began in Dec 2009 monthly phone conferences monthly phone conferences evidence based literature review evidence based literature review expert consensus process expert consensus process assigned sections assigned sections behavioral and mental health behavioral and mental health cancer cancer infectious disease infectious disease medical disorders medical disorders sensory disorders sensory disorders wellness wellness

12 HWAG healthcare guidelines project Process: section leader drafts proposals and section leader drafts proposals and presents to group presents to group group discussion group discussion consensus recommendation written consensus recommendation written supporting information listed: considerations, supporting information listed: considerations, important articles, websites, other important articles, websites, other guidelines listed, level of evidence rating guidelines listed, level of evidence rating above expert consensus above expert consensus

13 HWAG healthcare guidelines project Process: Section leaders as liaisons to other healthcare organizations (will ask for organization feedback once draft completed) Section leaders as liaisons to other healthcare organizations (will ask for organization feedback once draft completed) AADMD AADMD IASSID IASSID Special Olympics Special Olympics DDNA DDNA

14 HWAG healthcare guidelines project Progress: Completed sections: Completed sections: Wellness Wellness Medical disorders Medical disorders Partial completion Partial completion Cancer Cancer Infectious disease Infectious disease Pending Pending Sensory Sensory Behavioral and mental health Behavioral and mental health

15 HWAG healthcare guidelines project Examples/handouts HWAG healthcare Guidelines table HWAG healthcare Guidelines table Wellness sample Wellness sample Colorectal cancer sample Colorectal cancer sample Medical disorders-osteoporosis sample Medical disorders-osteoporosis sample Guidelines table layout: Guideline recommendation, considerations, articles, links, other group recommendations, ranking above expert consensus Guideline recommendation, considerations, articles, links, other group recommendations, ranking above expert consensus

16 HWAG healthcare guidelines project Additional handout materials: Massachusetts DDS guidelines Massachusetts DDS guidelines Canadian consensus guidelines 2011 Canadian consensus guidelines 2011 Canadian tools 2011 Canadian tools 2011 preventive care checklist forms for preventive care checklist forms for men and women men and women crisis plan form/ ABC form crisis plan form/ ABC form programs/medical- services/pages/primarycare.aspx

17 Summary Review of IDD healthcare guidelines environment with Canadian and Massachusetts projects Review of the AAIDD HWAG healthcare guidelines project Presentation of examples of current guidelines

18 Feedback


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