Presentation on theme: "Moulias & StuckelbergerUN Social Forum - Geneva A Plea for the Active Participation of Older Persons in Development Moulias R, ALMA (Allo Maltraitance)"— Presentation transcript:
Moulias & StuckelbergerUN Social Forum - Geneva A Plea for the Active Participation of Older Persons in Development Moulias R, ALMA (Allo Maltraitance) & Old Up Stuckelberger A, NGO Committee on Ageing, Geneva & IAGG-ER 1
Moulias & StuckelbergerUN Social Forum - Geneva Older Persons Rights : A Dilemna To present all old persons as frail or dependent is an « ageist » or an act of « age discrimination » However, science shows that with higher age increase in frailty an increase risk of functional incapacity that can lead to dependency, and even limitation of decisional autonomy The question How to protect frail or dependent elderly, provide life long human rights and strenghten their role and autonomy in society ? 2
Moulias & StuckelbergerUN Social Forum - Geneva3 Heterogeneity of Old Age Many groups of older persons: different age groups and generations (e.g. young old, old, old old, nonagerians, centenarians) Typologies A majority: are fit, with full physical and mental capacities, and remain independant throughout life unto their last year of life A large part of old old (80 years old and more) are «frail elderly» (isolated, depressive, disabled, malnourished) needing special care, attention and/or compensation of handicaps A minority of older persons are functionnally dependent persons, with special physical and mental conditions creating limitation of their autonomy in decision-making and needing special protection (i.e. at high risk of violation of their basic human rights such asabuse, neglect and mistreatement)
Moulias & StuckelbergerUN Social Forum - Geneva4 Human Rights with Advanced Age: When do we gain or lose rights? Nobody has defined any age at which Rights and Duties are modified Ageing differs from one person to the other, depending on the life course, the lifestyles and the evolution of societies or generations Disability or dependency does not automatically mean a decrease in autonomy and decisional abilities (e.g...it can happen suddenly or slowly over time, can depend on situations and crisis, can be reversed, it can even never happen..)
Moulias & StuckelbergerUN Social Forum - Geneva5 Age discrimination is a factor of Ageism To give special human rights or limit human rights in function of age does not make sense To limit rights (e.g. health care, bank credit, driving, management, education, vote, etc) in function of age must remain an illegal abuse In spite of the Madrid Plan of Action on Ageing (MIPAA, 2002) and the EU Directives on age discrimination (2000), such ageist discriminations are still frequent in all parts of the world
Moulias & StuckelbergerUN Social Forum - Geneva6 Active Ageing and Participation is a Must … Evidence Based Medicine has proven that keeping physically and mentally active as well as participating in society, are the main factors for « ageing well » and for preventing pathological ageing or the emergence of « age-related diseases» even in case of severe diseases, with a serious diagnosis, active older persons have better prognosis and rehabilitation in society.
Moulias & StuckelbergerUN Social Forum - Geneva7 Inactivity and Isolation: the Worst Plague of Old Age Scientific evidence also shows that the strongest risk factors for a high level of morbidity and mortality at any age, but mainly in old age, are: Sedentary lives, with no mental stimulation Isolated Excessive time spent in bed, or in arm chair Watching TV Older Person as Active Citizens : A Need for Society In every country worldwide: % of older persons old old Increase is more rapid in emergent countries with limited resources. Why would we exclude 20%-30% of the population from active life? will it not be unmanageable and against their rights ?
Global Ageing is a reality worldwide with very different situations
Numerous Experiences of Active Ageing Many models of ageing well and long life active older persons exist: Many associations working in arts, charity, culture, development, social help, sport, worship, etc, are managed by active competent (often experts) older men and women Everybody knows very old artists who remains fully active. Their work need physical strength, full memory and cognitive capacities, ability to cope with stress For example: Hans Erni, born 1909, who painted the fresk in front of the UN front gate on Place des Nations 2009 at 100 years old – he is still active and painting
ALMA : Helpline for Older Persons A Model of Retired experts helping older persons of any age: Retired professionals are especially prepared to listen, to analyze, to counsel and to follow up callers, victims or bystanders of misteatments on vulnerable or disabled adults or older persons. They work together with active experts and students. ALMA France: How it is organized? 57 proximity centres cover 75% of the national territory. 900 volunteers. In each centres, a team of volunteers listen and advise older persons in need and it is fully complementarity with local authorities. The network « treats » and helps 4’000 to 5’000 cases each year: the largest experience in the field ALMA (allo maltraitance) is an associative national network in France who offers helplines devoted to address cases of mistreatement and abuse of older or disabled persons.
Other examples AGIR : ingeneering and management helps for young enterprises Voice of the Voiceless (Uganda) Old Up (France) octogenarians socially active MUCA (mutuelle des aînés du Cameroun (Care self organization of older citizen)..and more: Care of orphans of AIDS, etc, etc There is an urgent need to develop the specific human rights of older persons to not only protect them from discrimination and abuse but also from exlclusion to an active and participatory life
Declaration of Bologna on Human Rights of Older Persons International Association of Gerontology and Geriatrics European Region […] In order to obtain better living conditions and quality of life for older persons, we need more knowledge of human ageing and human old age, a physiological period of life, growing in length and in quality. Research on ageing and old age must become a societal, scientific and political priority. These studies and research must answer to the same laws of protection and human rights of the person as any other research focussed on human subjects and their development across the life course. They must respect the ethical rules of autonomy, equality, informed consent, dignity, freedom, distributive justice and safety. Key objectives for these research should be a better understanding of both the deleterious and protective mechanisms of the ageing process, while collecting data on how to intervene on these processes to improve the quality of life, functioning and well being of older persons, as well as their systematic inclusion range of activities in society in the widest possible. Bologna European IAGG-ER Congress, April 2011
Moulias & StuckelbergerUN Social Forum - Geneva13 Declaration of Bologna International Association of Gerontology and Geriatrics European Region A unique article : Growing elder should in no way affect either the rights, the duties or the freedom of any person, or modify in any way the foundation of those principles which is embedded in Human Dignity 1.Right to an active life 2.Disability does not alter Human Dignity 3.In case of deficiencies 4.In case of dependence 5.In case of limitation of decisional autonomy 6.« Natural » Caregiver 7.Professional Caregivers 8.Research on ageing and old Age
So, it follows that : 1. Right to an active life Someone ’s active contribution to society does not stop with the end of their professional life. Everyone should be able to continue to lead a socially active life…. 2. Disability does not alter Human Dignity Regardless of age, no deficiency alters human dignity, nor the human qualities as beholder of rights, duties ans freedom 3. In case of deficiencies Regardless of age, when a deficiency affects the capacity to carry out one ’s daily life, the compensation of this deficiency should be ensured….. …to maintain or restore, as far as possible with the current scientific knowledge, an independent life with dignity Declaration of Bologna International Association of Gerontology and Geriatrics European Region 4. In case of dependence Regardless of Age, when somoeone’s deficiencies make them dependent of the support of another person….the society must enable the persons …. to access their rights… with the aim of allowing them to live a dignified life.
5. In case of limitation of decisional autonomy Regardless of Age, when a deficiency limits a person‘s decision making capacity,the provided protection aims to preserve the rights and freedom of this person and to respect their choices and wishes….. The person designated to represent the person must know this person ….. 6. « Natural » Caregiver The caregiver of an individual - dependent or limited in decision making - is entrusted with an added responsibility. The « natural » caregiver must be recognized so as to enable her/him to carry out the various aspects of their task Professional Caregivers Professionals assisting individual who are physically dependent or limited in making decisions autonomously should be clearly considered as a distinct group - from service delivery. Differences exist at levels of recruitment, education, training, etc – Codes of ethics are needed, including the way in which these sevices are financed. Declaration of Bologna International Association of Gerontology and Geriatrics - European Region 8. Research on ageing and old Age For obtaining better living conditions for older persons, we need a better knowledge on human ageing and Old Age Ageing is a complex multi -factorial process: pluridisciplinarity in research and policy- making has to be strongly encouraged as a rule.
Conclusion I Message to take away 1. Maintaining retired persons in active social life, will be a health, economic and social priority for the XXIst Century. It will increase well being and self esteem of all old populations 2. Deficiencies and dependence are not age specific. Disabled and dependent persons need an universal protection without illegitimate age linked barriers
Ageing in the World (N+%) emergence of 2-3 generations of older persons more 60+ than 15 years old and under (double in 2050) vs UN has no specific human rights of older persons + UN agencies and specialized programmes no fixed budget for ageing nor mainstreamed older persons only 2 positions with very little staff working on ageing + NGOs very few take into considering older persons or a life course perspective At the United Nations: The Paradox of ignoring an irreversible social global transformation Population Ageing is a world priority vs their absence in UN Agencies, budget and no participation and inclusion in the UN system
2006: NGO Statement on the Rights of Older Persons (Geneva, UN Commision HR) signed by 25 NGOs Engl(French 2009: NGO Statement on the Rights of Older Women ( Geneva, UN Council HR) signed by a record nr of 34 NGOs Engl/Fren/Spanish
Call for a Convention on Human Rights & Elimination of Discrimination against Older Persons …in 1999….then in And now the movement is growing… more and more countries and NGOs support the idea! Request for a Convention on Older Persons since 1999 UN Chronicle in 2002: Danielle Bridelle, Chair of the NGO committee on Ageing at the United Nations in Geneva Request for a Convention on Older Persons since 1999 UN Chronicle in 2002: Danielle Bridelle, Chair of the NGO committee on Ageing at the United Nations in Geneva
Human Rights of Older Persons - work in progress…. 2002: UN Assembly on Aging, Madrid: MIIPA 2007 MIIPA MIPAA+10 Oct CEDAW GR 27 Participation of scientists and NGOs Participation of scientists and NGOs IAGG Valencia Forum IAGG NGO Forum Nov OEWG UN-NY Annual Report OHCHR OP and social protection Aug SpecRapp Health OP OHCHR General comments OHCHR General comments OHCHR Resolution on Consultation GE 29 Sept 2012 OHCHR Resolution on Consultation GE 29 Sept 2012 Missing voice: Older Persons are still chronically excluded! Specific binding law for the Human Rights and protection of older persons,: i.e. older women (UN Women), older refugees (UNHCR), older migrants (IOM) Right to Development for Older Persons UN global agenda (MDGs, ICPD, etc) UN agencies and specialized programmes (i.e.ITU/WSIS, UNESCO, etc) Missing voice: Older Persons are still chronically excluded! Specific binding law for the Human Rights and protection of older persons,: i.e. older women (UN Women), older refugees (UNHCR), older migrants (IOM) Right to Development for Older Persons UN global agenda (MDGs, ICPD, etc) UN agencies and specialized programmes (i.e.ITU/WSIS, UNESCO, etc)
Conclusion II Political and structural recommandations addressing systematically the missing components of older women and men in the UN agenda and UN agencies Empowerment in UN agencies Human Rights = LL include old age ILO = work – LL older worker – no social security UNHCR = older refugee and displace person IOM = older migrant UNESCO = science & tehnology & ethics of OW OCHA & al= humanitarian aid, emergency OW WHO = ageing, LL reproductive rights, chronic D UNAIDS = older persons and AIDS prevention World Bank = poverty in older men and women, etc Recommendations Revisiting the UN agenda with OP and a LL perspective Political, socio-economic, cultural and technological dimensions Require UN to include higher age and gender equality in all statistics Require an institutional structure like UNAGE to reach age equity (as UNICEF for children, UN-Women for women) Recommendations Revisiting the UN agenda with OP and a LL perspective Political, socio-economic, cultural and technological dimensions Require UN to include higher age and gender equality in all statistics Require an institutional structure like UNAGE to reach age equity (as UNICEF for children, UN-Women for women)
Participatory Development more dynamic more efficient more sexy … until 80, 90 and even100 years old Including older persons is a must and we better get ready to be one!